Tag Archives: IBD

Starving fat girl

What did I mean in the former post about “problems starting up again”?

Ok, well I have an undiagnosed digestive problem, IBS and IBD of unknown causes, where sometimes my body swells and shrinks day to day.  Sometimes it mostly affects my spleen, where my spleen will swell and become painful and pushes against the stomach a lot, so I can’t keep food down even if I push myself to eat that day.

Consequently I have been having issues with malnutrition, because I have days like this at least three times a week on average!

Just because I am fat, doesn’t mean I am actually eating anything!

It can be quite bad, like yesterday where I wake up and the first thing that happened immediately after I drank a small sip of water was to bring that up with bile.  I know it sounds disgusting and it is!  But this is what I have been living with for years and there are two reasons why it’s been left undiagnosed.

One major reason is we can’t afford the taxi fare to go to appointments about it and secondly the hospital we go to is in so much debt that they are reluctant to help anybody unless its life or death and we can’t afford to go further afield.

I take omeprazole since I was pregnant with Henry, because for some reason or another, after I gave birth to Henry my body didn’t rebalance itself again like it should have. So I am prone to heart burn.

Whenever I do manage to eat, I can’t move around or go for a walk for around twenty minutes, just to make sure it says down.  Any physical movement after a meal can make me purge.  Which makes quick lunches in town, near impossible!

My doctor knows I want to lose weight and he is a little anxious I am trying to exercise when I have these nutritional problems right now.  He told me that I probably wouldn’t be so big if my body wasn’t constantly in starvation mode; my body is storing anything it can get its hands on and I have a lot of water retention too which is affecting circulation.  I am constantly cold.

My doctor has urged me to go private if I can, but we just can’t do that.

He has sometimes wondered if it is an imbalance of friendly gut bacteria, because he learned once that my mother was known to be so OCD in cleaning, that sometimes she would add a tiny dash of bleach to our vegetables when she washed them!

I did find a marked improvement in keeping food down after several weeks of adding fermented foods to my diet, but because our benefits got cut we could no longer afford to maintain that diet for me. 

We still are clueless about it all and only time will tell, what it is.  Soon Paul retires and so our money will improve a little, but as we’re separating soon, who knows what is going to happen with all this!

All I know is, I rarely eat breakfast, I have lunch occasionally, I always eat a dinner and I have a snack a couple of hours before bed.  I struggle most days to eat more than a whole “normal” sandwich in one sitting.

So get the idea out of your head that all fat people constantly eat, because in my case it’s simply not true!

I think the biggest meal I can regularly eat at the moment is a 3 egg scramble with a single toasted bagel and a banana right after it!  That to me is a huge meal!

I practically live on that every two days; because it’s something I can keep down.  I also drink a large glass of cranberry juice for the vitamin C.  Because my doctor said that three eggs in one day is all the vitamins and minerals your body needs except for vitamin C, which you can’t get from eggs.  So I do this, because its really high in protein and it’s got everything I need in it!

Occasionally my late night snack, which is around 9pm are usually two or three roasted chicken legs, a tuna bagel or a fruit salad.

Yesterday all I managed to eat was vegetable soup, three slices of bread, a banana and 2 oat biscuits in the whole day. Very low in protein unfortunately, because I had too much pain and struggled to keep things down.

Thanks for reading!

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Body whispering

My diet is reverting and it’s great!  It’s not a diet for weight loss, it is a diet based on my old principles. 

I have known for several years that I have a protein metabolism; something that Paul never took too seriously.  This is based on a book I read around seventeen years ago called “The metabolic typing diet” by William L. Wolcott and Trish Fahey; because Paul didn’t want to cater towards the foods I was used to for whatever reason, I as I always do, compromise what I want for being easy on others, so this meant that I increasingly ate a high carb diet.

This did not affect my weight at all, but I believe it did affect my health.  I became really sick regarding eating and digesting food for quite a while to the extent I got out of the habit of eating food at regular intervals primarily because of digestive pain and the inability to keep things down!

Recently I was told by a doctor that I have no allergies or intolerances whatsoever like Paul believed I had – it is likely the big bouts of pain I have are due to IBD flare ups, because it would seem I would still have days like that, no matter what I was avoiding.

So, I have gone back into a normal for a human type diet – but I wanted to empathise to Paul about my dietary past, before I moved in with him and how I believe that I am not getting the right fuel for my metabolic type.

Just because he is worried about the lack of food I am in taking for the past couple of years and how sick I have been over the years, he has decided to cave into what he believes is this fad idea and he has been surprised at how my appetite is increasing and it has only been six days into the diet.  This post was written on the 24th August, after some friends are still concerned online that I am not eating enough.

You see this change of diet I am undergoing was actually exactly what I ate before I moved in with him, thirteen years ago!

Since going onto a high protein diet, my appetite is coming back and I am regaining energy and I have already noticed a significant change in my skin, despite this, the caloric intake is not as high as you’d expect, I am now averaging 1900 a day, which is a vast improvement from an average of 1000 and not keeping it down! 

Since my energy levels are improving, I have noticed that I am starting to get more energy to help around the house again and I am not shaky when I do physical activities anymore.

I knew my body very well, I used to be athletic, I used to go on nine mile walks a day, I would do weight training in the evenings, walk a dog, practise the swing ball, do my tae bo exercises twice a day and was always begging people to play netball, ping pong, darts or rounder’s with me.  I had a mostly lethargic social group, but I motivated some of them!

Oh and I loved swimming, a true water baby – I can’t sit on the side of the pool, that’s not me, I love to dive right in there and get bratty like a kid if I am asked to get out of the pool!  I think it’s because my inner child likes to think herself as a mermaid when she is in there!

I learned to know my metabolic type; I felt it is vital for everyone to learn that – because one man’s food is another man’s poison.  You might very well love munching down on crudités, but if you were built for protein, you need to make sure that the vegetables you are consuming are high in protein; there are more than you think!

I poisoned myself for the sake of convenience and I believe it’s what nearly killed me!

I don’t do well on high carbs or high fat and lots of people have the misconception that high protein means high fat, not at all, it depends on the type of protein you are putting into your body!

I have seen such a vast improvement lately that I believe this time next week; I’ll be able to do some kind of light exercise again.

But at the moment my body is going through a healing process, where I feel that whilst I am getting the building blocks into my system, I need a bit of rest.  I can sense my body asking me to slow down and take it easy – don’t leap into anything just yet and I am not going to ignore that!

One habit I never got out of when my diet became high carb was that I never got lulled into the habit by Paul of drinking mostly coffee or tea; I still stuck to three pints of water a day with a green tea, even though for years I did lose my daily cranberry juice, but I’ve got that back too!  Yay!

Most people sneer at someone like me as they see a fat sick person and don’t realise that they are actually more switched on about nutrients, metabolism, dieting and exercise than the average Joe.  Looks are very deceiving my dears, I wasn’t like this in my past!  I got fat due to illness; I actually have a natural propensity for building muscle quite quickly – I don’t need to exercise as much as the average person as I bulk quite quickly.  I suppose I am fortunate for that.

I think the one main thing that bought Paul around to my way of thinking was the fact that I told him, he doesn’t have to change his diet for me, but now I am turning forty in October I really need to ramp up the protein as I will start losing muscle mass at a quicker rate and really it could happen faster for me, because of my rheumatic arthritis. 

In fact, eating a high protein diet could stop my muscle wasting so fast because of it too; this is something a friend told me online.  She is an over fifties body builder and she’s been helping me get back on track with how I used to be!

I am also a natural hourglass shape, my waist has always been unusually small, and my bone frame is considered petit by the doctors, which has always worried them when I gained weight. 

I am also planning to get back into exercising for my shape, with “escape your shape” by Edward Jackowski, which I loved twenty years ago and really helped me sculpt my body the way I like it!  I am also 5ft 8.

So, these are the changes happening in my life right now.

My digestive health is certainly starting to feel like it is stabilising and I was told by my friend that my immune health should right itself in a few weeks’ time too!

I hope so!

It’s challenging with our budget, but I hope we can manage it!

Happy reading!

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Price of ink and financial rants

My situation is such that when I write I will print off as I go along, because I don’t trust clouds and data saving technologies, because they have failed me numerous times before.

Recently my finances have become worse and this has affected my novel writing more than anything, now I am able to get back into novel writing since I had Covid, it has meant that because of the decline in my finances I can no longer print the seventy pages a week I used to, I can only afford to print twenty a week at most and one week in the month, nothing at all.

If it is novel writing, I will print it as I go along, because of two reasons – I do not trust data saving technologies and I find it difficult to read and edit from a screen, whether I create a blue background to read from or not.

It’s frustrating because I want to write towards four ideas immediately and I can’t write by hand anymore because my arthritis is getting bad.  Every time I write more than an A4 page of handwriting, my hand swells up to the extent I can’t properly hold the pen anymore and if I ignore it, the cramps come on.

My arthritis has meant I have had to give up my knitting hobby altogether, because not only does it exasperate the arthritis, but it has also reawakened my carpal tunnel problem too!

I miss knitting, because of the style of gloves I used to make for myself and the scarves – because the style and colours I like can’t be bought cheaply, like it can be made!

I don’t have the money to buy a knitting machine or else I would do that, I also liked making toys for children I knew, but now I have been thinking about learning felt crafts or sewing the toys instead – because for some reason or another sewing doesn’t affect me.

At the moment we have a printer that is breaking down, because it appears not to be getting a hundred pages per cartridge anymore and we can’t afford to replace the printer for at least a year.  The cost of the ink is always £15, cheap in comparison, but for us it’s three days meals.  We’re near the brink of needing food bank help again – and no Lee Anderson, I can actually cook thank you very much, in fact I cook most things from scratch and manage left overs very well so there is never food wasted here!

Amongst my cooking skills are homemade pies, cakes, soups, casseroles and pasta dishes, not to mention the fact that I have been fakeaway cooking at least ten years before it became “fashionable”!  But when your colleagues Mr Anderson insist that because I have a bus stop outside my house which is within the walking distance I can do without an asthma attack they cut my mobility money by £100 a month, which meant that I could no longer afford to manage the finances which included getting medical help to try and get me back on my feet (in order to work), because you took the money I needed to travel to the local hospital 20 miles away in another town, which costs me £20 a time and I need treatment around twice a week quite a lot of the time – which meant I had to decide to become anorexic and get treatment, or just give up fighting to get my life back and make sure my family doesn’t starve to death!  Which one would you choose? 

Because when I had to do the above we had £10 for the week for food and I often had to cancel at last minute the doctors, because I couldn’t afford to get there – because doctors don’t house visit anymore, no matter how poor you are!

Along with this, we’re still not getting a lot of free stuff sending our child to school.  We had to cancel his eleventh birthday last year and all household birthdays and have the crappiest Christmas ever just to save up to get him school uniform for his new secondary school, because you can’t get it free here and there was no way in getting second hand, we checked.  The child gets reprimanded at the school if their uniform is not complete, whether you can prove poverty or not!

We would love to give up the internet in order to get £6 a week more in our pockets to eat better and maybe get some medical attention – but that would mean my son can’t do his homework so losing the internet is not an option for us!  The irony is, they say that they are doing more and more for kids in poverty these days, honestly I don’t see it!  His meals aren’t free at school; it costs him an average of £3.50 a day for a hot meal in winter.

Don’t you dare blame the poor for poor management!

Free schools, meals in schools, the NHS was all originally created for the poorest in the community, but these days the poorest in the community are not reaping the rewards of yesteryear, it basically is slowly turning back to how it used to be.  Everything is slowly privatising again and they think we don’t see it!

I don’t normally turn my posts into political rants, but this Lee Anderson has a lot to learn and remember about the society he is trying to lead!

Funny thing is, despite being bed bound and housebound sick for around twenty weeks of the year, I could work, at the pace I can.  There is some work I could do, but the problem comes with practicality – I’ve tried slogging on looking for a job outside of the house whilst managing my sickness and nobody wants me!  No one wants someone part time three hours three days a week, even on a check out, because I have ailments which embarrass the company!  I have what appears to be a permanent streaming cold!

No one wants to work alongside someone who is sniffling all year around and then needing three weeks off four times a year because she can’t even get to the bathroom she’s so sick!

So I told the benefits OK, there are other things I can do, I can write, I can do art, I can upcycle things to sell, help advise me in how to set up my own business to do that and teach me what I need to know to run a business from home.  They won’t.

But understood only this… you said you can work?  OK we’re taking your ESA away and making you go to job search centres five days a week all year around and if you don’t turn up for three consecutive days because you are sick, we’ll pull your benefits again and it will take six weeks to reapply for benefits again, meanwhile there is no transitioning money…

So, who is going to opt for all their amenities to be switched off and starving your family for six weeks solid?  What sort of incentive is there to actually get your ass off benefits if you are sick?  What kind of incentive do they give the sick to try and work out their own ailments in order not to be a scrounger?

Because seriously, this is how it is here!

So people who call sick people on benefits scroungers, talk to your government about their crackpot schemes, and don’t go attacking us!  It’s not our fault!  Most of us would love to be independent and work and get even £5 extra a week in their pockets, because no one likes going through those humiliating interviews every year!

Paul and I had thought about going to Ireland as they take care of artists and writers on sickness benefits more than they do here in England – but lately we’ve seen the news, there are political issues cropping up – will we be welcomed in Ireland?

I know my great grandfather was Irish (from Roscommon) and I know that genetically I would be accepted with opened arms, but it’s still looking complicated…

I am very frustrated, because there are lots of things I need in order to get myself a job and there is absolutely not help at all and the money is being cut again and again, to the extent, that I haven’t impulse bought a thing since 2017 and I am losing a huge amount of weight, but can’t afford to replace my clothes as the weight falls off and I am looking ridiculous!  I have lost four dress sizes in nearly a year.

Doctor says that they don’t find that a worry because I was so large to begin with.  I was a size 28, I am now nearly a size 20, they won’t worry until I am a size 12 potentially – potentially I might be dead by then, before they investigate why!

They know I have an IBD because of my high markers, but they won’t investigate until I literally start screaming in pain at A&E, seriously, been told that, NHS is so badly stretched financially that they are now only dealing with life threatening conditions as they appear, cancer not one of them, government recently warned the UK that if you get cancer now, you are more or less fucked if you rely on NHS!

Also, I have a new cholesteatoma growing in my left ear, but my ENT specialist said his department is in so much debt right now, he will not deal with it until it is life threatening! I have been through this before when I was a teenager, I really don’t want to go there again, but I have no fucking choice, because he won’t help me! That means, if the worse comes to the worse again, I won’t be able to physically care for myself bathing wise for nearly three years again nor bend down! I will also be 100% deaf!

Anyway, I am going to close this rant up, because people are home now.

Happy reading everyone… if it was that kind of experience, which I doubt. 

P.S sorry for being an Eeyore today!

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It’s my birthday and I hope for better things!

It is my birthday today I am thirty nine and I hope that the saying “life begins at forty” is a true one!  I hope so much that with these emergency appointments I have at the hospital etc. is going to fix something and that I can have a normal life again!

There are so many things I want to do with my life, but when it is a tiring task to just get dressed and maybe vacuum a room in a day at most, it is hard to see past that.

Things I would love to do if only the health was there… obvious one would be study and work outside of the house.  I miss people interaction and I love jobs where I am in the service of others, not just my creative pursuits, of course I love my creativity and it would be lovely to have a job where creativity is a must, but generally I love jobs where I feel I am needed and relied upon for things – particularly hospitality.  I am a lovely meet and greeter, always happy to help, with a bubbly personality, professional manner and experience as head of admin and customer services. 

I often wonder if Sue Holderness remembers me, during my short time as Christmas staff at Marks & Spencer’s she would always gravitate towards my till because she said I was pleasant and she often added points to my services as Marks and Spencer’s have a point system in play for their staff to see who is performing well.  I was only there for a few days over one particular Christmas; I doubt she’d remember me!

I used to love work and if I had been allowed to keep my jobs in the past I would have.  It sounds funny to say that, because it is not a normal thing to say – but it is true, in the past many times I had a lovely job I loved dearly, but I was forced to give it up as it didn’t sit well with my mother.  For those who are new to my blog, I was micro-managed within an inch of my life by my mother who tried to isolate me for years and I only managed to get her out of my life fully in 2013, when I was twenty nine, just shortly after Henry’s 3rd birthday in fact.

Thinking differently these days, I may not go into hospitality if I had the health back though, I have other ideas.  I am not sure if starting university for a science degree and to have a science career would be something someone my age should really consider.  But it is interesting; I have an unnatural curiosity and obsession with microbiomes; but maybe that is more of a hobby thing… like gardening?

I had thought, what I would do if I found out my health problems are actually curable even if it is by 50% – I had thought what would I do with my life now?

Obviously still write and do art, but what else? 

I had thought about the concept that my lungs may allow me to once again do music and singing again and if it did, I have to say musical theatre pulls me;  Particularly writing operas or comedy musicals for the stage.  One of the things I have neglected about myself a lot since becoming ill is my love for music to the extent of practising my instruments and composing becoming non-existent.

I miss musical composition more than I miss the idea of sitting down to write a full length novel, to be honest… well a full length non-vampire or dragon novel that is.

I do know I miss sport a lot too, I was very active before getting sick – walking an average of nine miles per day, just for the fun of it and also because I am a cheapskate and walked everywhere for the sheer economy of it.  I love bowling, basketball, jogging, and cricket and wanted to take up rock climbing, to name but a few.  But one thing I did really want to get back into and that is dog agility training and judo.  I am also a true water baby and twice I nearly got into the commonwealth games in my life, once for swimming and once for judo, but shit happens.

The commonwealth audition was cancelled due to emergency life-saving mastoid surgery, which consequently ended my judo career before it even had a chance!

The swimming for the junior games was cancelled because my mother wouldn’t let me go and stay the night away from home without her and made me decline.

I know I have to think about practical things, but I do like working for charities, at least half of my previous jobs were helping disabled people, particularly those with mental learning difficulties or brain injuries.  I have a passion for helping people and fighting for their rights to lead a dignified life!

I have been in a situation myself where I have been in special needs schools for a few months in between home schooling, I also have a long history of mental health where for four years I had to go to a day care centre at Napsbury hospital for treatment as a child and schooling as well as being in a very physically vulnerable state with sensory deprivation for nearly two whole years!  I have seen two sides of people who are supposed to be “carers, in caring jobs” and it is not all good.

I went through a time as a child where I was absolutely terrified of all men, except male relatives who were close to me, I wouldn’t speak to anyone if they were a stranger for at least ten or more visits and I went into strange bouts of bulimia, anorexia and compulsive eating throughout most of my life – this cooled off a lot when I met Paul.  I was spiralling into food obsession for three years before I met him.

It is totally weird how, now I am away from the stresses which dictated my eating habits, that I have developed a sickness where I can’t eat a bunch of specific foods without pain and vomiting and some people who remember my past, have asked me on the quiet, “it’s not your old thing again is it”?  I still maintain some friendships distantly via facebook and pen palling with some of my day care compatriots, who remembers a the time where I ate half an orange and a quarter of a cheese sandwich without rushing to the bathroom and they celebrated it for me, whilst I just sat there frowning and grimacing at the fuss and the taste.

I will say though, that I am becoming more and more of a picky eater despite the dietary restrictions I am under because of my intolerances.  This does worry Paul, because with our current budget, he is struggling to provide for me.

I must maintain a gluten free and lactose free diet, I cannot eat flax seeds, I can’t have too much sugar in a day, I minimise citrus fruits, I can’t have soy, I can’t have vinegar unless I want pain (who does?), I may have a mustard intolerance as recently I am reacting against mayo and a couple of other sauces which have mustard in, I can’t have pineapple and I can’t have anything too fatty and if it is fatty it has to be because of olive oil, I must be careful with eggs, no more than 3 times a week!  I can’t have too much coconut produce either; I can only eat small amounts of beef and no more than twice a week!  I shouldn’t have tomatoes everyday either, but that one is a hard one to surrender as I like tomatoes almost with everything!  But ideally I should never have them according to doctors.  I can only have two Brazil nuts in one sitting before strange things happen to my mouth! I can only have a beverage with tannin no more than once per day and preferably not at night. So, yes, I am not fussy about all of these, this is just the foods I can’t have because my body will hurt me a lot if I do!  Because of all of this, I have according to the doctor a very low salt diet, because I don’t add salt to my cooking and he told me I need to start, because my levels are too low at times and could account for the cramps I get!

So, as perplexed as you all are, I know you are, because I have seen the faces of offline friends when I mention this to them – what the fuck do you actually eat then Tina?  Food, to put it bluntly, proper, wholesome, mostly unprocessed food, weird isn’t it?

It’s the reason I love sauerkraut so much, the salt my body needs, the cabbage is really good for you too and you get added microbes for your gut!  Ironically, my health is slightly improved for the gherkins (dill pickles) and sauerkraut I eat these days, without that being in my diet three times a week, I would actually be a lot sicker!  I know, I tested it out for a whole month and it thwacked me hard!

I think the unhealthiest thing I eat these days is the local chippy once a fortnight, because I don’t eat their battered fish, I prefer their kebabs without the bread that is!  They have their own oily sauerkraut with gherkins and pickled jalapenos and its sheer heaven with their homemade chilli sauce!  Their meat is also homemade, so they guarantee it has no gluten and lactose and they don’t spice it as much as the places in town, so it’s just like fatty lamb pates really.

My most usual food to eat for dinner is gluten free pasta with homemade chicken arribiata, pan fried salmon stir fry or sausage and bean casserole with mashed potatoes.

My most usual food for lunch is, fried tomatoes and mushrooms with gluten free toast, a smoothie, vegetable frittata, or Ham & lacto free cheddar cheese ploughman’s sandwich with gluten free bread, I know the sweet pickle has a bad product for me, but it is so little my body hardly notices too much.   I don’t have celiac disease apparently, it is an unidentified IBD.

My most usual breakfast is, air, or very rarely cinnamon gluten free porridge or just homemade fruit salad.

My snacks are nuts, celery, carrot sticks, lactose free Nutella with gluten free digestive biscuits or rice cakes, pancakes with said Nutella or lemons or honey or maple syrup or fruit compotes, fruit, or smoothies, rarely jellied pick n mix and crisps purely for the low salt days. 

When finances improve, I am excited to ditch a lot of the above for things I really love!  Such as honey nuts, dark chocolate with fruit in, fruit leathers, chicken legs, kimchi, , king prawns and the expensive fruits and veg like avocadoes, coconuts, pomegranates, figs, chickpeas, mange tout, things someone on my budget consider birthday or Christmas treats!

Well it’s a life I hope that will happen anyhow, I am trying my best to fight through it all and get that life, even if my body does seem held bent on killing me!

Happy reading!

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Health update 12th June 2021

Because I am spending more time in bed due to my immune system having a major crash for the last week, nearly two weeks now, I have re-established my addiction to Codeword puzzles.

I seem to be completing them faster these days; I am starting to become a bit more of a word geek than I was before. 

Also, I tried to get back into playing online word games such as word tornado and scrabble on my laptop in bed as I decided I could do things in bed on my laptop as at least I would be more productive than just watching YouTube videos on TV and reading books.  But guess what?  BT decided to update this areas exchanges so internet connection has been tetchy and almost non-existent, so I can’t do that or watch YouTube on TV without a disruption every 15 minutes.

I thought only last Thursday to do this, take the laptop upstairs, play word games and update my blog in bed as I don’t like how my illness dictates to me how much work I do, because I’d rather work downstairs on the desktop computer.  Friday afternoon BT alerted us for the coming week that they will be updating everything and they apologise for any disturbances that they might cause during this time.

I would say “typical” but I am not that kind of person, because I know that certain thought patterns can affect your reality and make things happen.  But I do take it as a sign that Paul is right about the universe trying to get me to rest, because it is hard for me to sit back and rest entirely.  I have never been the kind of person who relishes in relaxing and living with Paul has been an education in that at least.

So, I am here, on my desktop again, only to update this blog and have my dinner before going back up.  I am having a really bad day with my arthritis, inflammation, ear infection and migraine.  I can barely eat because my IBD and IBS is bad too, in fact it is becoming a major concern for Paul and the doctors, because I am now eating in deficit, I am losing inches but not weight which is also confusing.

Since Christmas I have lost 3 and a half inches but no actual pounds, it is visible loss but not scalable other than measurements.  I am not exactly changing my diet either, I just physically can’t eat a whole sandwich anymore, I am having what Paul terms as micro meals or not-so-posh-nouveau-cuisine, just to eat something.  Thing is, I really need a tiny half tea plate of food around 5 times a day to be at the calories I need, but I only really get around 2 now.

My mother if she knew about this wouldn’t believe how little I am eating lately and it’s not by choice, it’s because of pain and the inability to keep things down.  If I eat a whole sandwich, I will vomit some of it back and that’s not bulimia, it’s just my body rejecting it.  I have a stupid amount of vitamin and mineral tablets I have to take daily because of this.

I joked to the doctor once about how I must be the only fat person they will know to die of malnutrition, in fact they shocked me with their reply; “it’s more common than you think”.  He said.

Let’s put it this way, my mother used to serve me up 6 to 8 fish fingers with 2 or 3 fish cakes, 2 slices of bread, half a can of beans and half a plate of chips as a regular once a week meal.  These days, she doesn’t feed me; she hasn’t seen me in years.  But now if she still knew me she would be shocked that I could only be served 2 fish fingers, two slices of bread, 1 fish cake, 1 spoon of beans, 1 tong serving of chips and I won’t eat everything before my stomach plays up!  This is a bad example of my regular food intake, because that is what I am eating today.  Usually I have stir fry, salad, and veggie frittata (despite egg problem), casserole with veg, or chili (for some reason my stomach can cope with chili despite the disease, which is baffling to everyone).

Yesterday I had quinoa, with beef chili, loads of Mediterranean vegetables, yesterday’s meal was the biggest meal I ate without a problem all week, but I still only ate half of it, but at least it was around 800 calories.

Which was a big contrast to the day before that, as that dinner was 2 slices of vegan cheese on toast, onion, tomatoes, peppers, and a side of celery and carrot and that was it, I couldn’t eat anything else the whole day!

But this has been normal for almost 2yrs, just got worse around 3 months ago.

I’m permanently exhausted and in pain and I am bruising way too easily too.

In a nutshell, my life sucks.

Happy reading!

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Update 13th January 2018

Hardly any writing done for anything has been done this week due to the fact that I’ve had a very painful and persistent ear infection again and a slight cold.  I found out in more depths what is wrong with me, what is wrong with my immune system though I am still being investigated for suspected two or three other things that are more severe, I won’t know the outcome of these tests for another three months at least.  But part of the parcel of why my immune system is weak is because of the pernicious anaemia I’ve had since I was a young teenager (nobody really bothered to explain to me what that is, I presumed (like my mother) that is was just chronic anaemia, but it is more than that).  Pernicious anaemia can cause deficiencies in the body and can affect the lining of the stomach and the whole digestive system if left untreated, triggering irritable bowel syndrome eventually.

Because my mother never really bothered to pay attention to doctors or ask them questions we just made our presumptions and this has developed into reflux and irritable bowel syndrome causing me to have intolerances these days that are so severe I have to completely avoid lactose and egg, though I can nibble a little at gluten without too much problems now I have solicited a fodmap diet to eliminate IBS triggers and I am getting a little bit better for it.  I can eat a small amount of gluten twice a week, but I do try and stay away from it as much as possible so not to trigger a bigger reaction like I used to have.  The other suspicions are still suspicions regarding the spleen, chrohns disease and inflammatory bowel disease which is entirely different to IBS.  Fodmap diet means I have to eliminate foods that I think would not be harmful to IBS; I have found it astounding the types of food to avoid because it triggers a response in the digestive system to play up.  Foods such as apples all high fructose foods and cruciferous vegetables, which is a shame as red apples and broccoli form part of my staple.

On a positive note I have heard rumors from a lot of people that if I have a very tightly regimented fodmap diet high in blueberries and soya and probiotics then I could effectively cure my IBS within a few months.

My husband is very supportive about this new diet change and has even adopted a household approach to eating healthier and lowering everybody’s risk of developing a digestive disorder, though he hasn’t cut out lactose and gluten for him and Henry as they don’t need to.  We are now eating more fish, chicken and rice than we used to and we ate more of that than an average British family before this anyway!  Our diet now resembles more Mediterranean meets the Caribbean, which makes me happier anyway, never did have the British palate.

Now instead of potatoes with bland steamed vegetables and sausages, we now only have that rarely say once every couple of months and now our more usual diet is rice mixed with tomatoes, sweetcorn, peas and basil with salmon and a small Greek salad (no cheese or olives due to triggers).  Our idea of a Greek salad is rocket, spinach, red onion, sweetcorn, red peppers, and cucumbers, tomatoes, on average with the occasional chopped avocado or beetroot (but that is a sparse addition).  Our usual puddings after dinner is now coconut & raspberry jam gluten free cake with custard or skip it until an hour later where we have popcorn or honey nuts.

Our most British dinner is the chicken Sunday roast with gluten free alternatives for Yorkshire puddings, stuffing and gravy.

Our most likely weekend breakfast is kippers with tomatoes and gluten free bread, weekday breakfast porridge alternating with fruits on it, cinnamon or various flavours of jam.

Usual snacks need to be amended because I go for nuts and salt and vinegar crisps, which vinegar is a trigger, but it is hard to find gluten free and lactose free snacks that are off the fodmap.  So I tend to go hungry a lot of the time these days, particularly as I never feel hungry at breakfast or lunch so often skip those dinners and I don’t have a large one at the end of the day anymore because I simply can’t eat big anymore, my stomach just can’t cope with anything bigger than a large jacket potato with tuna in regards to meal size.

I am losing a lot of weight since going on the FodMap diet; I have lost almost a stone in weight in 10 days and I don’t recommend how you can do it, because for a lot of the time I am starving hungry, but have no room in the stomach for anything else it is strange.

So that’s an update on little ol me.

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