Tag Archives: health

Research what your doctor diagnoses you with!

As someone who has had pneumonia once a year for the past 5yrs, I was told when Covid19 came into the world that I should consider never going out as I am on the very vulnerable list especially as I have other health issues on top of it all and Covid19 as we all know is known as a super pneumonia! 

Being used to isolation since childhood, it seemed to me to be a doddle of a thing to accept.  But it is frustrating, because I was just starting to get my life into gear and I am starting to feel that this is some kind of curse my mother has put on me.  I know it sounds ridiculous because the rest of the world has it and surely she can’t have cursed the whole world?  Of course I know that is nonsense, but it still crosses my mind a lot!

How ironic that this has happened just as I am free from her isolating me and shutting me away?

Well anyway, Monday was the first time I went out since the first ever lockdown in the UK, because I have dental issues that need to be seen to and I am due to have an IV treatment for my teeth in February – coincidentally today I have woken up to feel as though my chest is bruised and I have a cough and a cold on top of my usual respiratory problems.

A few days ago I started getting into the habit of making smoothies, particularly green ones, because I wanted to boost my immune system for when I have my tooth seen to in a couple of weeks’ time; when I get a cold and a cough like this after being on a really super rich high vitamin and mineral diet for the last 2 weeks, it makes me wonder why I bothered in the first place?

Surely I would be stronger by now?  But no, I have a cold or something…

Well anyway, desperate I am to find any recipes for immune boosting so I found something called Goot, made it myself, lemons, turmeric, ginger, cinnamon, apple cider vinegar, garlic and honey, going to take 2 spoons 4 times a day to see if I get better any sooner than I would normally – which would normally be around 3 to 5 weeks’ time – a lot of colds and flu turn very chronic for me and last up to 6 weeks on average at the chronic level, something doctors could never understand!

Well anyway, a few years before I met Paul, I remember being diagnosed with pernicious anaemia, but nobody explained to me what that meant so I presumed, much like my mother did, that it just meant really bad anaemia – well Paul after hearing me reminisce this, decided to research it to find out it is an auto-immune problem which can make absorption or development of vitamin B12 very difficult for me, which would explain the neurological problems I seem to be developing!  I have been living with pernicious anaemia for a little over 15yrs and no one told me what it meant or treated me, no wonder I am falling apart!  I have also been diagnosed with and untreated for 17yrs with rheumatic arthritis!

Pernicious anemia can severely damage your nervous system and digestive system over a course of years if untreated, it is an autoimmune disease which can make you severely malnourished of certain B vitamins!

So because I am scared to go out unless absolutely necessary because of Covid19 I am waiting until things die down a bit so I can tell my new doctors here in Rugby, Warwickshire about my health past and how I have never received treatment and see what they got to say about that!

I think perhaps this is what my doctor meant when he phoned me a few months ago about a medical review, because I gave him a list of symptoms in an email and he was concerned and said he is going to look into my files etc. about other things and see if there are links – but I never got back to him!  Perhaps he has seen my medical records and understood I am not being treated right!

My doctor knows that I have suffer from chronic anxieties at the best of times and I am very OCD, so getting me out of the house unless it is an utter emergency during covid is going to be a huge challenge!

Just thought I say this to update you all!

Hope that the UK takes lockdown seriously this time around so I can get my health back into check by keeping to my appointments and investigations!

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Filed under Lifestyle & Health, mental health

Beetroot & Berry Smoothie

I made a smoothie today, totally experimental and it is utterly delicious!

Ingredients are;

A cup of cranberry juice

Half a cup of frozen mixed (blackberries, raspberries, redcurrants, black currants, strawberries)

Half a lime including the zest/skin just take the seeds out!

1 medium banana

1 whole large beetroot raw!

A wedge of red bell pepper

Cinnamon to taste

I mixed this together in my nutribullet I bought about 5yrs ago and it serves three.  My son Henry needed sugar with his in order to convince him to drink it; he won’t have it with honey unfortunately!

It’s very tasty, I have had smoothies a lot in the past, but it is usually a bother for Paul to help me with making them when I am going through my hard times and so I feel guilty getting him to do them, but today I did it myself, had some energy to do so. 

It’s a new recipe for me, I made it up as I went along and I am glad I did.

I was fearful of wasting a lot of food I can’t afford to replace, but it was a good and well paid off risk and Henry seems to like it so far!

I need to find a green smoothie I like just as much, lol.

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Weight loss & image

Weight loss and image photos will not start until I know precisely how I am going to react after my dental surgery in early February. Because of my limited diet and because of potential pain and loss of a tooth due to an abscess I have, I may not be able to keep to new dietary changes for a few weeks, hence why realistically I am starting this diet plan after I know what is happening dental wise.

I hope to have posted my “before” photos around the end of February to the beggining of March!

The last thing I want to do is to set myself all up for this and then fail before a month is up for a couple of weeks just because of tooth complications, I want it all set for the rest of my life after this!

It is doubtful I will lose my tooth and to be honest, I have already changed my diet, but I do worry about what kinds of food I will have to eat for a couple of weeks if there are tooth complications. It is likely I will need soup, jellies and that sort of thing for a few weeks, so basically it might be high sugar because of the fructose in the fruits I would likely have to eat.

It sounds utterly stupid because more fructose when you are talking dental is the last thing my teeth will need, but hey hum – I am not sure what is soft enough for dental problems other than soup, jelly and fruits and certain vegetables.

Some ideas I have are homemade tomato soup (without cream), bone broth, avocadoes (as well as guacamole), pesto, vegetable soup and consomme, chicken consomme, overcooked gluten free pasta bolognese and arribiata without chicken, fruit jellies, canned peaches with vegan cream, gluten free berry crepes, banana smoothie, vegan banana milkshake, berries, gluten free apple or berry crumble and custard, onion soup, to name but a few. The reason behind such a drastic idea is because I am currently in a lot of pain as I have an abscess in the area of my mouth where I mainly chew meat and hard things like that. I can’t shift sides because of medical reasons, my other side of the mouth/jaw is very weak and can cause pain which leads into the neck and ear as I had lifesaving head & neck and mastoid surgery 20yrs ago. The abscess was caused by dental floss slipping the wrong way and cracked my tooth a little; my dentist recommends NOT TO FLOSS, she says people who floss have more trouble than those who don’t, instead, we should swoosh salt water around our mouths rigorously several times and spend more time brushing then mouthwash, after using mouthwash, you do not rinse it out with water again or you made the mouthwash useless!

If you can give me some ideas of what I can eat during that time which is soft, low in sugar, lactose free, gluten free, flax free, and low in fat (as I have trouble synthesizing certain fats), then I’d love to hear from you!

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Major changes explained

Updates to this blog are aesthetic updates as well as content updates; in the future I hope to post not only my poetry, short stories, art and life updates, but also updates on my mental health journey:

In future posts I will show you how I am trying to re-define who I am, because in reality, I have never been the truest version of me, I have been severely supressed and it is a journey about unleashing the real me!

Everything about me currently and in the past are not my real choices, it is not the true or real me.  What I mean to say is, I had an abusive past and a past where I was controlled and isolated very severely not only by my parents, but an ex fiancé as well.  My current fashion choices, my general knowledge of the world around me, my diet and my habits and even to a large degree, my career choices and beliefs were all facsimiles of my abusers, not me.  I do still hold myself accountable for many of the things I have done in the past, because it was due to my emotional weaknesses that I allowed those things to happen and take place, but that does not defer from the fact that my abusers were abusive to me!

This blog will include how I am changing into the habits I want to have, becoming the person I want to be, fighting through all the pain and sickness and mental health issues I have to literally sculpt myself into something I want to be, rather than making do of the moulding that my abusers have made me into.

My sense of fashion, my habits, my diet, my everything is going to change so dramatically and I know I will falter and falter a lot, because I am changing my whole existence and current life, for something completely new, unexplored and it will be tremendous hard work, which is why I feel it needs to be documented online and hopefully I will build a support system from my readers to help me through the major changes I am about to incur.

I am 39 on my next birthday October 3rd 2021. 

Let’s hope that my honorary aunts are right, that life begins at 40!

Because for me, I am still only a baby mentally, I am still only new to life – because I have never been allowed to live.  It is very scary to admit a lot of things to everybody right now, that even though I have a child who is nearly 11yrs old and even though, I have lived away from my mother since 2009 and totally broke from her in 2012, I still have never ventured out of the house alone, without some kind of assistance or support from a relative or friend.  I have literally always had someone hold my hand when I left my parents, someone to speak up for me when I am in difficult situations and to be perfectly honest, it is annoying, because even though, these people are my carers and they are helping me to come out of my shell and undo the abuse my parents have done by prepping me for life – but they also misinterpret a lot of what I mean to say to certain people or they say things in their own way, which sometimes isn’t as clear as I would have said it.  A lot of the time regarding my health, talking to doctors etc, they forget things and me being me, would sometimes be too nervous to speak out and say well actually.

Though this aspect of me has got hugely better in the past 4yrs, the doctors are surprised by the progressed I have made there, because whereas they used to look at Paul for confirmation of what has happened, they are now starting to look and listen to me, which they see as amazing progress.

It is these points which make it difficult for me to actually contemplate a life in marketing of any form – but I need to have that life, I can’t sit back and watch years go by and have more and more regrets of not doing things just because of the stuff that my abusers have locked into my head.

It is to a large point, very stupid to actually know that the world isn’t as scary as my abusers lie to me it had been, that those bad people in society were actually them and they are rarer than they make out and they are actually the worse of the lot.  It is stupid to know this and still be scared of the world.

I read a book recently which is very timely – “The Midnight Library” by Matt Haig, about a woman who lived her life in regrets and got a chance to undo those regrets by having alternate lives, therefore getting a chance to redefine herself time and time again.  There is a quote from that book which resonates to me very deeply “life fright”.  There are other quotes from that book which really connected to me too…

“If you aim to be something you are not, you will always fail. Aim to be you. Aim to look and act and think like you. Aim to be the truest version of you. Embrace that you-ness. Endorse it. Love it. Work hard at it. And don’t give a second thought when people mock it or ridicule it. Most gossip is envy in disguise.”

― Matt Haig, The Midnight Library

“The only way to learn is to live”

― Matt Haig, The Midnight Library

“Sometimes just to say your own truth out loud is enough to find others like you.”

― Matt Haig, The Midnight Library

That’s what I am doing, saying my truth loud enough, to not only start to throw off the burden of my past and to heal from it, but to stand tall and let the world know I am here and to ultimately find my tribe as it were!

Future posts on this blog will include my new diet ideas, plans, because recently I found out a lot of my illness is due to the fact that I am allergic to a lot of food!  Gluten, lactose, eggs, pineapples, flax and beef gelatine to name but a few;

I will also include, my weight loss plan

My art and photography

YouTube videos I may start at the end of the year

My skill development and so forth

I am also watching copious amounts of self-improvement videos on youtube lately, especially Blush with me Parmita, a life coach! 

All this to sculpt me into who I am, not what people think I should be.

I my opinion I need to lose 85 pounds

I need to start thinking about makeup and changing my fashion not only to my preferred tastes but to make the best of my natural body shape, as for someone who is fat, I have a very strange narrow and defined waist and an envious shaped body, well this is the opinion of many people who have told me this, personally I don’t see it – but as I have learned from a lot of self-help books, you’re inner critic needs to be ignored as it never sees the truth regarding yourself.

I consider myself hideous in every single way, yet I get a lot of attention from people about how pretty and unusually young I look for my age – I have had people interested in using me as a plus size model and hair model, but I get really hurt and confused by this, because I just see a hideous monster in the mirror!

I don’t understand how some people reckon I look like Meryl Streep that totally confuses me!

I need to start becoming more independent.

I need to start doing more art and writing and actually getting it published not only on my blog, but approaching agents too, because I keep sitting back wondering what was that movie I wanted to watch again?  To then remember that it was a book I have in my head that I have written and the movie doesn’t exist yet.  My primary motivation for writing is that I enjoy it, but also because I want to see my stuff turned into movies – I know that’s pretty pie in the sky, but that’s my dream – I think ultimately I would rather make movies than write, but there you go!

I write the books I want to see acted out on stage or on TV basically; I write the stuff I wish there was more of.

So it’s a vast change, I am already exhausted just thinking about it, especially as I have such severe health problems, nobody, not even the doctor is sure yet, if something I have is terminal yet; covid19 has caused a lot of investigative delays!

But I don’t care if I live or die and yes, part of my mental health problems is the fact I have been struggling with suicide for the last 7yrs, primarily because I am sick so often that my life isn’t really worth living, because any movement is pain!  So I guess that is one of the major factors why I am going to push myself now, if I push myself into exhaustion and collapse by changing myself so quickly, then so be it, but at least I died trying!

So there you go, it is not a New Year’s resolution, this has been brewing for some time now, but now I have had enough!

Speak soon xxx

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Other hobbies

What do I do when I am not writing?

Quite a lot actually, because I don’t write much at all these days; I have lots of ideas for things to write but I think illness has made me lose focus and passion for it.  I was a lot more passionate about writing than I am nowadays.  It is simply because pain distracts me and makes me lose where I am heading – coughing fits and a severely runny nose are the biggest contributors for throwing me off course, yanking me out of the zone, as it were.  As I have said before in many posts, I live with a perpetual chronic cold, with ear, nose and throat infections thrown in.  It isn’t just a sniffle, I wish it were, but I can get through five hundred individual tissues on a bad day, two hundred being the norm for me.

Since the 21st December 2019 the only things I have written are what are on the blog and approximately 5000 words of non-posted works of other things, but nothing contributing to my novels.  Hand written notes of other ideas are not included in this, I am spending more and more time in bed these days as I can barely move.  All these problems are giving me severe insomnia and hypersomnia.  What do I mean by that?  Well I don’t sleep at night, I seem to sleep better during the day, for some reason my chest and sinus is worse at night.  When I do eventually sleep during the day I sleep between 7 and 16 hours in a stretch, to wake up for 2 hours in a choking fit with a dry crusted mouth.  Not a pretty visual I know.  I can go 30 to 40 hours without sleeping, purely because I am too busy clearing mucus from my system.

So it isn’t any wonder why I lack focus and concentration really.

Basically, everything I do when I am not writing, are things I can do at home, in the bedroom.  Primarily with my desktop computer, as I have recently had it moved to the bedroom due to the fact I am often too sick to get downstairs these days and I have moved my laptop downstairs for the rare occasion I am down there for more than an hour.  Because my legs swell a lot sitting at the computer desk, I can only sit here for an hour before I have to rest with legs up for thirty minutes, to get the swelling down, so even if I am on a roll, my ankles start burning and that throws me off course and I have to go and put my feet up.

I read approximately 30 to 80 pages of a book per day and about half a magazine too.  The types of things I read the most are fantasy, sci-fi and comedy fiction with a lot of non-fiction thrown in; the non-fiction I enjoy are self-help books, nutrition books, history books, theological research, mythology, folklore and cultural studies.  My current reading list is Time Song by Julia Blackburn, The Toll by Neal Shusterman and Roy Vickery’s folk flora. 

I do puzzles such as codebreakers, arrow words and gardening magazine crosswords – before my chest got too bad I used to love doing 1000 piece jigsaw puzzles, but it is frustrating having a coughing fit and losing pieces across the room all the time!

If I am not too busy fighting mucus, I get to knit, crochet, sew or practise my recorder and keyboard. 

I watch TV only if there are documentaries I am interested in, I mostly watch Smithsonian and BBC four with some Drama channel thrown in.  I will watch anything with Lucy Worsley, anything about the history of jazz, soul and classical music, nature and wildlife documentaries, documentaries about farming and country life.  I like science too, so I will watch sky at night and space science programs as well as things in the past such as time commanders, gladiators and the occasional wrestling show.  I love comedies, I only watch the comedies on the Drama Channel, but I am picky about which ones to watch.  I like only connect and some quiz and puzzle shows like Countdown, but I don’t watch them all the time.  I have to be in the mood to watch TV and before I was sick I watched around three hours of TV a week, these days it’s about two hours a day.  We never miss Michael McIntyre’s Big Show if we can help it, nor do we tend to like missing gardeners world or shows such as the RHS show, cruft’s and BBC Proms.  I’m pretty old fashioned I suppose for someone who is thirty seven.  I dislike soap operas and drama llama stuff – yes I mentioned the drama channel, but there are three hours a day where it is strictly comedy and I tend to only watch that channel (at the comedy times) or food network when there is nothing else on.  Sometimes I put on a DVD and I will often choose vampires or family animations and comedies. 

The main things I do these days are play games online.  I don’t even socialise that much online anymore, because I lose concentration and people who know me are starting to think I have memory problems.  Because a coughing fit will make me forget what I have said or what I was on about.

The online games that grip me are… Roblox, yes Henry got me onto it and to be honest, Roblox has saved my relationship with my son!  Because I find his kind of games hard to do since becoming sick – Roblox has opened a whole new world for us and we play hide and seek and various other games together.  When Henry is at school, I still sneak onto the site and play bee swarm simulator, Ripull mini games and fairy simulator.  Bee Swarm simulator especially!

Other online games I play are ovipets it is a cute breeding game on facebook and I have been addicted to that for nearly 5yrs. 

Flightrising is another breeding game, but I go in and out of phases with that.  Primarily I have played this for a whole eight months without a break, purely because Henry wants to see what dragons I breed and he loves to name them and do what we call “Dragon Lottery”.  Dragon Lottery is where I look through the offspring possibilities scrying menu to see what will happen if I pair certain dragons up, sometimes I can’t decide, so I make a list of all the best ones that go with my chosen female that day and I number them, then Henry, Paul and I will choose a number from the list and put it through random.org and sometimes someone gets the number right, in which case that person must get a treat of some kind or get to choose to do something; I breed five pairs of dragons every five days, because that is how long it takes for the eggs to hatch and we have a limit of five breeding nests on this game. 

I used to play online scrabble but I have got accused of cheating because I know too many unusual words.  I don’t cheat on that game, I don’t see what purpose that serves other than the joy of creating misery on another person who loses and I am not a vindictive person like that.  I really do have a broad vocabulary, though I rarely use it outside of scrabble and I love doing anagrams for fun, so I see a lot of seven letter words and I am a dictionary and language addict, so I know words that are weird to normal people.  Here is a list of words I know for high scoring on scrabble, which have got me accused of cheating when used previously – plus, I have read books written by scrabble champions.

ZEBU – QAT –  QUARE – SEQUIN – AWK – EUOI – AIA – QI – KIMCHI – VEX – VAV – TAV – EAU – UVEA – AEON – OXIDE – POXY – QIN – QINTAR – FATWA – QABALA – QADI – SJOE – KHAKI – EUOUAE to name but a few.  I have to admit I was shocked when SEQUIN was considered a questionable word, the others I can understand, but I was sure almost everyone knew what sequins were?

I love words and word play so much I have considered about having a word of the week thing, but I am unreliable with keeping to things like that, as you can clearly see from past efforts or lack of.

Other than sketching with pencils or sharpies in bed and/or colouring in and story planning, I don’t do much else on a bad day.  On a good day I can add about an hour of light gardening to the list but not much else anymore.

I’m pretty boring I suppose, by my peers.  I can’t even cuddle the rabbit lately because I cough too much it terrifies the poor thing!  I suppose I sound like some big barking bear or something to the poor creature.

I have gone out to the doctors and walked past dogs when I am like this and the dogs think I am barking at them, they react accordingly, it is embarrassing!

 

 

 

 

 

 

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Money free world

Money’s a problem all over the world

It’s a simple solution and not in a dream world

It used to be reality, for everyone around

But men fell in love with shiny rocks in the ground

It’s a funny old thing, love, but it does astound

We all have to have currency, the shiny tokens of gold

It’s to help everyone, or so I am told

But I just see greed and exploitation

Unfairness and hunger and lots of discrimination

It shouldn’t be like this, in a human world

We are smarter than this, our minds have been swirled

I have heard of a time where everything was free

Money is an illusion, you just can’t see

Warmth, food, water and a place to call home

Are all basic needs which everyone should own

You can’t put a price on good quality of life

So why has humanity invented this strife?

It’s a puzzle, it really is

I hope we’ll soon all work out the quiz

But suffering world over would end in a jiffy

If everyone thought that money was whiffy

Everyone all living a life they deserve

With food, warmth and water, what a learning curve

Imagine how far we could all progress if price wasn’t an issue we always had to address?

Money is a barrier in this modern world

Money needs to go now, a new system should unfurl

A system of voluntary work and good will

A system where people go to work still

But system where freedom is always a choice

A system where people in their lives could rejoice

A system with a world united where barriers should fade

A system where teamwork is always displayed

Yes there will be some who won’t do their share

But society is good at not keeping people there

People are good at motivating the herd

People who are lazy would be considered absurd

Even the sickest has their worth

But whilst there is still money, plenty resent their birth

It is a horrible fact, but it is quite true, whilst money is still around

It’s imprisoning you

Not just you but all of mankind

Money is very, very, unkind

Imagine your life without money there, what would you do?  What would be your cares?

How would you live?  Who would you help?

Please do think about this, it might self help

It will open your mind to what you can become

I wish more people thought that money was dumb

This poem was written quickly, I know it can come across a little uncomprehending but it was written at 5:45am on a cold foggy, frosty January morning and I have a bad chest infection and I tend to think about too many points at once and my brain gets scrambled at the best of times – but this is an important message I think.  One that really should be shouted as loud as climate change awareness, because I think, if money was eliminated and people worked together in teams and progressed without the need of money incentives, things like climate change would reserve rapidly – the cure for cancer found – the ability to terraform Mars would have already been done and so many other things.

I mean come on, think about it – do you really need the incentive of a few shiny coins a month to make you make this world a better place?  Do you really need the incentive of earning little fake tokens of your supposed value in the world in order to give you the life you want and deserve?  It is a belief system that you do need these tokens as an incentive to go to a job you hate, being stuck in situations you hate, that have you enslaved, slavery is never ever truly over, until the fat cats decide to change it.  Though how many fat cats are there in comparison to the slim?  I am talking money here not the supposed “obesity crisis”.  I have always struggled with the concept that I can’t do this, I can’t do that, basic little things that most people in the Western World take for granted, because of lack of money.  I have never ever had the ability to be extravagant – I can tell you what I think the most extravagant thing I have ever done financially has been outside of special occasions – bought, shock and horror a book that cost me £25 that to me is an extravagance!

I have never had the ability to afford to get my hair done at the hairdressers when I became an independent adult, living away from my parents, I cut my hair myself!

There are so many things that would change in my life, if money was removed from the social system.

I have been told several times by many doctors that they can treat my problems, it is easily treatable with basic surgery, however, it is too expensive for a struggling NHS right now, so therefore, until the illness infringes my life to the point it becomes life threatening, they will not help me.  Money, I am afraid to say, does determine how moral and humane a doctor will be and from my experience, it means that money makes them carefree, it makes them monsters; not just them, but everyone, people kill for money for fucks sake!

People need to learn that money is evil.  Yes, money saves lives and all of that too, but that is just an illusion – really many people would never have got to the extent of needing charitable donations if it weren’t for the problem that money exists in their world.  Most people’s relationships are affected by six core things; money tops it the other four things are, lying, political and sport debates, religious differences and general discrimination (racism, disability discriminate, age discrimination, fashion critics etc.) – people argue about those six core things a lot and that usually determines how well you get along with a person or not.  Money being the biggest factor because not only do families argue about the lack of it or the want of it, but people generally avoid creating relationships with new people in case they might become their victim in some way financially.  People become more uptight socially if they are wearing expensive clothing and have the latest mobile, than those who are poorer in the community towards strangers socially approaching them. 

People also judge you by your supposed wealth or lack of wealth.  I have been in situations of worse poverty than I have now and the general public; do treat you differently, either with sympathy or with contempt, especially if you are known to be unemployed due to chronic illness.  I have also been in a situation where I have been considered quite wealthy (though the money was never mine, I was dependent upon someone for a time) and again, society treated me differently.  I became more human the more I showed to others that I might actually be better off than them and I have had friends who are super rich or of celebrity status tell me that it gets worse the more you have, you become almost godlike and infallible and this particular person who told me this said that she hated it, because she just wanted to be recognised as plain old normal Sue; she adored me because I never treated her or anyone else any differently to anyone else.  I won’t tell you her whole name because I don’t like name dropping.  But I will say she is a very respected and talented British celebrity. 

Going back to complaining about the doctors again; When I have been too sick to dress properly or fuss over my hair, I get treated like a piece of fermented meat in which the doctor is even reluctant to physically examine.  I am clean, but I wear a baggy grey jumper and black leggings those days with trainers and my hair is in a messy bun. 

I go back to the same doctor a few months later after coming from a funeral in a dress suit with the same messy bun might I add and they treated me as though I had a brain and they spent ten more minutes with me than usual and examined me thoroughly.  Why the snobbery?  Same patient, same doctor, different clothes and class appearance!

I am going to number and list everything I can’t have because of my financial situation – then I am going to number and list what I would do and have in a world without money.

  1. I can’t have an operation to remove unusually large adenoids which makes me long-term unable to breathe through my nose and smell, it also causes severe post nasal drip and breathing problems, it affects my voice and larynx and I get throat infections 8 times a year and living with constantly ear infections due to Eustachian tube blockages purely because of the adenoids. Because of this, I have severe insomnia and hypersomnia, depends on how much my body will let me sleep before I literally wake choking on the entire gunk in my body, this has gone on nearly eight years now.  One of the biggest factors of why I cannot work, because it affects my breathing, my voice and my hearing levels.  I also live with vertigo because of sinus and ear pressure and almost constant sinus migraines.  Because of the amount of antibiotics I need, I have been developing antibiotic resistance and my digestive system is collapsing as it is affecting my gut flora.  As an added bonus because of my health problems, I am self-conscious going out, because I have been accused of infecting everyone, because I come across as having perpetual flu like symptoms, cough and cold.  It is especially difficult to go out since this new Chinese virus is going around.
  2. I can’t have an operation to stretch my tendons in my left hand which renders three of my fingers almost immobile due to how tight they are, despite how twisted my fingers are that when I fall down I am constantly at risk of breaking my hand.
  3. I can’t afford to get rid of old furniture and broken televisions, computers, cookers and washing machines via a skip, so have to store them in a corner in the garden and I hate that, because I am extremely house proud and as far as the neighbours are concerned by our back garden, we must be pack rats in the house, the nasty hoarding sort – but we’re not. We don’t have a car or anyone who has a car who would be willing to help for a day.
  4. I can’t afford to get my son to socialise outside of school, because I can’t buy him the rugby kit he wants and I can’t afford the membership for the marathon club. Though there is light at the end of the tunnel for his marathon club, Henry has been seen doing so well at free running events around town that we have been told as soon as he is 10yrs old (which is May 2020) he will be eligible for sponsoring and free membership!
  5. I can’t have a balanced diet which meets my needs; even the food bank struggles with someone like me – gluten and lactose intolerant with a few other allergies thrown in like certain herbs and fruit allergies. At least once a week I have to consider eating something I am intolerant to, because our budget can’t stretch for the whole week.  It’s either that or having an entire day of just meat and potatoes with hardly any or no veg and maybe some sauce.  When money was better 2yrs ago I was having an 80% paleo diet and my health bloomed, I had more good days than not.  But when the government cut that evil thing – money, I had to cut the food and my body isn’t responding well to that.
  6. I can’t afford a fish tank and supplies, a dog or some chickens.
  7. I can’t afford certain gardening tools and supplies which will help me grow more food.
  8. I can’t afford to get a gardener to help me when I am on a run of bad health. I regularly get bed bound sick where I can’t do anything for 6 to 8 weeks at a time, by that time, my garden is ruined when I get back to it, by aggressive bindweed.  The bindweed in my garden are triffids – I was ill for 9 weeks last summer and it managed to pull down and break an entire 7ft cherry tree I had put in.
  9. My husband knows I need to get out more and see the doctor a lot more than I do, but I don’t go to see him more than once a month (though it is essential) because it costs us £12 a time in transport. Therefore, we can’t afford a car and we can’t afford to pay for me to go out, so unless I can walk somewhere, I can’t go out, so I am even more isolated now.  I am also not eligible for a disability scooter for free, because my problems are not mobile, it is mostly breathing problems due to enlarged adenoids so they don’t take that seriously at all mobility.
  10. I am struggling to be able to pay for the amount of tissues and symptom relief things I need. Such as throat lozenges, vic rub, Vaseline, sanitary towels because my coughing fits have weakened my bladder severely.
  11. I have lost a lot of weight since becoming very ill, losing weight because coughing fits have made me become involuntarily bulimic and with the lack of affordable food I can eat which fits into my dietary needs, it is hard. I have lost nearly 50 pounds in the past four months and I can’t afford to get smaller clothes, so I am wearing clothes that are ridiculously big on me.  I know there is gumtree and all of that, but really it is hard to travel to pick things up and the women getting rid of their clothes don’t like the idea of a man (my husband) picking it up for me without me present, tried.
  12. I need a wig because my trichotillomania has got worse, but I have to make do without one and tolerate the whispers behind my back when out.
  13. My bed is broken and needs to be replaced because the frame broke when Henry jumped and pulled on it last summer. I can’t afford it, so we are literally trying to hold it all together with planks of wood and gorilla tape.
  14. We’ve lived with a leaky roof in our biggest bedroom for eight years now, we can’t have the roof fixed that would be 4k, heavy rains with a northerly wind causes havoc. Also our utility room roof has caved in too.
  15. Our toilet is coming away at the wall, again we’ve had to resort to gorilla tape and sealant to try and make do until we can afford to replace that too.
  16. Henry needs new clothes too, he is growing fast, but he has my problem at the moment too – having to wear clothes too big, because he is wearing his father’s hand me downs to keep him warm this winter. Thankfully Paul is a stick and is the smallest man’s size in clothing and doubly thankful that Henry is taller than most for his age. 
  17. Our sofa is broken and that needs replacing, we don’t sit downstairs anymore because of it. Also because it is winter and we had our gas fire taken out and gas supply to the fireplace removed because it was unsafe four years ago, so we have no heating in the living room except for an electric fan heater and we can’t afford to use that more than an hour a day.  We put it on whilst we eat our dinner, we don’t eat dinner in the dining room anymore because that is even colder than the living room.
  18. I can’t afford my psoriasis shampoo and wash, so have to tolerate discomfort as the NHS has refused to prescribe me again for more, told me to buy it for myself if I need it. Also they don’t fix hearing aids in our hospital anymore; I have to go to boots, so I have a malfunctioned hearing aid now, which means I am completely deaf a lot of the time. 

Surprising isn’t it?  This is England.  This is the 21st century.  Bet you didn’t know people like me still live like that?  The funniest thing is, I am one of the better off ones – one of the least poor, there are others worse than me, I have known them.  If you think my situation is shocking, honestly, you are a very sheltered person who needs to get to know others outside of your social circle a bit better.  I have known people so poor, that despite sugar tax, it is cheaper for them to get more calories into their child with a packet of haribo sweets than to cook them a veggie dinner.   I am not that poor yet and thankfully Henry has manageable allergies.  My Henry does however, live on sausages, mash, cucumber, carrots and baked beans more often than I would like, but that is the cheapest food I can get him that he is guaranteed to eat in full.  Some of the nation’s poorest can’t even afford to give their kids beans on toast, so I really can’t moan that much I suppose!

I am not poor enough in the eyes of the government to need charity help or help from the council, because we own our home outright and therefore we must fix things ourselves.  We’ve been told that if things are so bad, why not sell up and rent?  Because our money will only last five years, I would lose benefits and security in one fair swoop and we have no means to pay the rent, it’s unlikely that I will ever get well enough to have a proper job and Paul retires in three years.

In a world of no money my life would be bearable, it would be happier, it would be easier and our needs would be met; because people are more humane to those in need when they are equal to them.

Here is my no money list.

  1. Even though I am sick, in a world of no money I would have to contribute to society like everyone else.  But society would be more understanding that not everyone can cope with long hours and hard labour.  I would help places grow food or advise people on gardening for food, even on my sickest days I could sit on the internet on live chat, helping some gardening in need with various issues.
  2. I can help the world with aesthetics, by giving people my artwork to decorate their homes with, giving people my poetry and stories in books for them to enjoy. I could even get a group of actors together and we can make plays and movies based on my ideas.
  3. I would go to a workshop on my good days and help teach people how to make preserves, jams, chutneys, allergy free cakes and breads.
  4. I could do motivational talks.
  5. I can help sew and repair local peoples clothing from home, if they deliver.
  6. I can teach people about which flowers are edible, to help broaden peoples diet.
  7. I can do the occasional arts and craft workshop to help people recycle and upcycle things.
  8. I can help people learn French.
  9. I am a good massager and manicurist.
  10. I am very good with people who are suicidal or going through a dark time. I have had several people say that if it weren’t for me they wouldn’t be around anymore.  I have often thought about becoming a therapist, but in the last five years it is debatable whether or not I will be a hearing person in the future or not.  In fact, I have been told to prepare myself for becoming profoundly deaf to becoming totally deaf with a deaf dog support.  So I gave up my course as soon as I heard this.
  11. All my household problems would be solved, no dangerous stuff, more respect from neighbours and warm living room that is comfortable.
  12. I would be able to live the diet that is optimal for me as an individual.
  13. My operations would have been done before my health got this far and I would probably be able to do more things than what I listed above.
  14. We would have an electric car.
  15. We would have a dog, a full fish tank and some chickens in the garden.
  16. We would have tools for the garden and help in the garden.
  17. I would be able to wear appropriate clothes and so would Henry.
  18. We would have a safe bed.
  19. I would probably need to apply for a house extension so I could have an extra room to use as a library.
  20. I would be able to get out more.
  21. I would shave my hair off entirely and get a wig, so I learn to stop pulling.
  22. I’d go to the cinema once a week.
  23. We’d go for a pub family meal on Sundays like we used to.
  24. I’d take Henry to the big televised rugby matches.
  25. I’d adopt four kids and concentrate on getting my body healthier, rather than push my body to get that second child I want.
  26. We’d go out on a big family day out once a month at least – a zoo, a museum, a steam train ride, a bowling day out etc.
  27. Because a world without money would be more cooperative and free, I would be free to lend my services to certain people. I would be able to assist the local elderly, cook for them, visit them to keep them socialising, take them out, play games with the playful ones, and do the same for the severely disabled. 

It is all just hearsay I know.  I am down to earth enough to realise that I may still be struggling day to day with my own needs, like I am today.  But even in a world of no money, I could manage to help society from home, in my bed with online talks.  I could go out for one half day a week doing any of those things above and still be a worthy member of society who does her bit.  Basically, I would have a better life than I do now.  But because of my current needs, ESA will not tolerate someone who can do half a day of something, without pulling the carpet from under them and saying “well in that case you can work, we will take your money from you henceforth”.  They don’t care that my illness is such that I can go out for one half day a week, but I will be bedbound for four days after it and so therefore will not function around my own home – that to them, doesn’t matter.  What matters is getting me off benefits at any cost!

I am saying, in a world of no money, I can volunteer to be present outside of the home every 4 to 7days, if society tolerates someone who has a permanent streaming nose and allergies when she does it – I often feel that people recoil from me a lot when I am out about and this leads to me thinking things such as “Well why not just euthanize me now, then?”.

I burden too many people with my presence, they make it all too obvious and people who work in benefits don’t help matters!

Money is evil, it makes us heartless.

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Filed under About Me

Not a poem, food food thought

The world is a confusing place.

Everyone wants acceptance and yet they all criticise others.

Everyone wants peace of mind and yet they will still hold grudges and set themselves up for failure or arguments.

Some people want a better life, yet instead of trying to find a way to make their lives better they would rather end it instead.

It is easier to hate than to love for many.

It is easier to ignore than to question.

Everybody wants a better world but no one is ready for the effort and strife to make it better.

A single person has a lot of power, yet they choose not to use it, because they have no time, energy, health, they have other commitments – so they sit and watch TV or play online games for three hours without fail every evening; instead of doing something constructive that will either improve their lives, the lives of their family members, a sad friend or their environment, it is strange, but true.  They would rather poison their bodies with junk food, alcohol and drugs, than spend that extra fifteen minutes in the kitchen to make something healthier for them, something that will prolong their life and give them better mobility or health.

A lot of people would rather not see that they are doing this because then that would mean that they have admitted to being a failure in some way; they can’t pass the buck, they can’t blame anyone but themselves if they realise and admit it.  People can’t stand being wrong or thinking that they are more ignorant than they know.

People would rather walk out in difficult situations rather than solve them, they would rather break up or divorce someone than work it out – because of the time and energy and self-satisfaction factor.  If you want a relationship you need to look first at how much you get along with the person in a non-romantic setting, are you good friends?  Then you have to question whether or not you both have the same life goals, morals and ethics, then after these things are established and known, you should have a relationship together and once in that relationship it should be easy to focus each other on remaining with each other, supporting each other as friends, working things out like a team – not abandoning ship.  If you feel you are a person who cannot be strictly monogamous for goodness sake be honest about it before you let someone get too deep with you – the world is more liberal than you think!

People have got to start becoming more open with the people who are involved in their lives.  They have to work together, work things out, they have to get out of the habit of this throw away culture – because people are treating other people like material possessions too much – this will eventually lead to us all losing our humanity, it is bad enough as it is with the millennial generations mobile device addiction, let alone allowing ourselves to continue how we’ve always been.

Humanity needs to concentrate very deeply on their psychology, on the way that they think, how they handle things.  No more should people just simply walk away when the going gets tough, because that will never solve anything and will only poison your spiritual environment more and more, attracting more negativity to you.

We are probably the loneliest generations ever known to human earth.  More and more we are cutting ourselves off from others.  It was said once that the average human was close to 120 people at all times with around 1000 known acquaintances – but recently that figure has dropped to a contemporary socialite having only 26 close contacts and around 300 acquaintances – online people you have never met do not count – if it did, I would be extremely gregarious!

Fifty years ago it would be normal if a friend knew you were sick and lived in the same street, to come and visit you and make sure you didn’t need any help and would make a fuss about helping you even if you didn’t want it – these days, they could care less.  So long as visit and visiting is exactly 50/50 split, like tennis, taking turns one after the other, they couldn’t be bothered to come and see how you are – even family life is becoming like this.  I have never liked the concept of a nuclear family, I always wanted to have a lot of children, but ill-health dictated that to me as well.  I do not like it, I would love nothing better than to have around five children and a little organic smallholding in a suburban place somewhere as I can’t do strict rural again.

I’m really very lucky at growing vegetables in particular, they seem to yield more than average for their type and are always bigger than expected, I have often been told I should attend vegetable shows, but I would feel silly doing that, sometimes people in those contests get a bit daft.  Now if I was to show anything, it would be dogs and guinea pigs, I would love to do that eventually.

The purpose of this post and like many more to come is to broaden your mind and help you see how you can try to have a better and happier life.  I am going to stop writing more to this now as I have noticed I am losing focus and it is 5am when I am writing this on 19th January 2020.  I will schedule this for later in the week, because I have a lot of things going on at the moment.  I am not yet over the pneumonia though I feel better today, but in the next few days I have several medical appointments to get to as well as an ESA medical and another minor operation (not sure they’d entertain that if they know I have a chest infection, it has been cancelled 6 times before because of serious sinus, throat and chest infections, it takes 6 months each time to get a new appointment).

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Filed under Brain Drain

Considering non-fiction

A common piece of advice in the writing world is “write what you know” and although I do like to write a lot of things for research and so forth I have never really completely considered writing non-fiction before, but now I feel I would like to, for magazines eventually.  I have contemplated writing for a couple of specific hobby magazines because I have extensive knowledge on their main subjects.  I am going to list what I feel I know a lot about here and I may or may not share posts in the future of these subjects just to give you a taste of what I know.

Gardening

More specifically no dig, organic, permaculture, poly-culture style gardening.  This also includes wildlife gardening and creating mini-ecosystems, building a pond and dry stone walling.

I am also very knowledgeable in wild food foraging, where plants originated from and native British species, this also includes an interest in garden ornithology, and I wouldn’t say I am a bird watcher, but I pay too much attention to the wildlife and bird life within my own personal property that I have gotten to know their numbers as well as their habits.

I would also say that regarding garden pests and flora disease I am also a very knowledgeable biological warrior, using only nature against nature, nothing man-made, to benefit my plant-life, this means I will sometimes grow things I don’t specifically want, simply to provide my garden what I call “Sacrificial” plants.

Along with this I have had an avid interest in flora folklore/superstitions and ancient medical uses and my flora Latin is quite good, almost Carol Klein like.  I keep up to date with the gardening world as much as possible and before my health and benefit cuts happened I was a subscriber to four of Britain’s most renowned gardening magazines amongst other magazines I was interested in – bit of a magazine addict I was/am.

I have a huge amount of experience gardening a lot throughout my life (not professionally) but in the past three years specifically it has been only in dribs and drabs and the garden is looking a mess to put it lightly, namely because of health complications.

American professional wrestling between the years 1990 and 2003

I was an addict of watching wrestling when I was 10yrs old right up until I met an ex-boyfriend who didn’t approve of how much I loved wrestling.  I watched every kind of wrestling that was available to me, I bought every VHS and DVD I could afford at the time and I was even planning to go to America to learn how to wrestle – upon reflection it is a good thing I didn’t considering my career would have been over aged 30 because of these health problems!  I read a lot of wrestling magazines and body building magazines because I was so into it, then aged 21 I kind of grew up and loss contact with wrestling almost completely until last year.  I now sparsely watch TNA and AEW.

I am not sure I could write very much about what I knew from that long ago because it would be considered too ancient for anyone to care, I suppose?

Dogs, dog breed histories and dog training and grooming

I have been considered by people who know me as being the female British version of Cesar Milan as I seem to be a dog whisperer and have helped several people understand their dog’s behaviour!

I know it sounds absolutely awful but a few weeks ago on TV there was a show on it called train your baby like a dog and I have to say it is absolutely true – I see no difference whatsoever in training a dog than I do a baby and vice versa, it is very similar!  Every social creature has an innate desire to become dominant within its social circle and this usually is the worst during infancy, every social creature eventually learns through infancy and good guidance from its elders that it has to follow rules or there will be ramifications, it is not different to humans at all.  Humanity has to get over this silly idea that humans are different to animals.

You get a neglected child and they tend to grow up off the rails and they attack authority at all costs in many cases, you get a well nurtured child and they are more likely to fall in line and be a good citizen.  I know from personal experience not every child who is neglected grows up to become an anarchist, because not every child in the world has the desire to control others.  Children like I was simply wanted the world to be a lovely peaceful place and this in turn, made me quite a submissive and quiet individual.  My brother on the other hand was the type to go off the rails and fight authority all his life.  My other brother was nurtured pretty well because he was a love child and was wanted, unlike me and the other brother, consequently he is a neutral person who has a good relationship with his mother and is socially stable with very little emotional problems.

It is the same with dogs in my opinion.  You nurture that dog like it is your personal baby and depending on how much discipline you demand of it, it will either take advantage of you and become a nasty biting little dog, or it will grow up a stable individual who loves his mama and will obey at all costs.  By discipline I don’t mean shout and yell or kick and hit, that is disgusting behaviour which will eventually become a habitual behaviour in whatever creature you are nurturing as it will become a normality for them.

With a dog, like a baby and a toddler you command and teach with as few words as possible that you repeat regularly so not to confuse them, so it sinks in and you give them infinite patience no matter how you feel.

Superstitions and folklore around the world including cryptozoology

I have had a massive interest in all things supernatural and all things strange and unknown since I was around seven years of age.  I have studied extensively as many books on the subject as possible, particularly witchcraft and vampires, but there has been other creatures and situations I have been interested in hugely.  I have also been interested in peasant folklore and their beliefs, such as talking to the bees, bowing and saluting magpies and being aware of what colour and type of flower you bring to a person or a house.  I am interested in the Victorian art of the language of flowers, something I should have mentioned above in the gardening section.  I have been gifted beautiful bunches of flowers and often hide a laugh behind my polite thank you smile, when I notice I have been gifted red and white lilies as in some superstitions around the world red and white denotes death as well as lilies being the flower of death.  I don’t hold with the superstitions myself, but I love learning about them.  For example, I have bought lilacs and hawthorns into my home as part of my cut flower display for the dining table, many superstitious people would say that my health is my own fault then, because those plants bought into the house will make the head of the house sick and even kill them within a couple of months.

World History primarily European and Chinese history

This is another subject that I am interested in, particularly my own personal genetic history and the history of aristocrats, royalty and gypsies, also ancient warfare and combat.  The history I am interested in is vast, I also love reading about architecture too and fashion from the ages.  I have a lot of useless information in my head if I wasn’t a writer, but as I am a writer these so-called useless bits of information that seem to serve no purpose are actually polished gems which will help me create real feeling worlds in my novels.

Food is another interest of mine

I am knowledgeable in vegan and vegetarian dishes (but not a vegetarian or vegan myself), the paleo lifestyle and the diet known as The Wahl’s Protocol, Mediterranean diet, Indian and Chinese diet, as well as desserts and pies and so forth.  I love cooking and baking, sugar crafting and making homemade sweets, cakes etc. you name it, I love it.  Despite my allergies, which adds another skill to my list, all these things above I can do gluten and lactose free!  I don’t just research recipes and share them either, I am so interested in the world around me and how to keep healthy (because let’s face it I need to try and stop being ill) that I can tell you the sorts of vitamins and minerals you will find in each piece of food you eat as well as tell you the best way to grow it and it’s best companion plants in the garden to grow it next to and the type of soil it needs for the highest of nutritional benefit!

I make compotes, jams and chutneys, soups, pies, pastries, cakes, bread, I am just very versatile in the kitchen, but I must warn you… I am one of these strange people in life who can’t do anything simple like omelettes or frying sausages, without burning them or myself, the more complicated the recipe, the better I am!

Chickens too

Yes you heard it; I am knowledgeable about keeping chickens and how to keep them healthy, including any plants you must avoid around them and using their chicken manure as well as making excellent homemade chicken stock and soup.

Gemstone healing

I used to be into this big time, but lately I am so ill with so many things going on that unless I lay down for three hours a day I really don’t benefit much from these anymore, simply because I can’t lay down for more than 3 minutes on a bad day without choking.

But the stuff I know seems to work for others.

Religion and religious history from around the world

Despite being renowned as a person with humanist leanings and having no precise religion, I am actually quite obsessed about learning about religion in all its forms and researching intensively.  I don’t have a religion because I don’t like to commit to something which could actually be what I call a “deceivers religion”, I am paranoid about getting it wrong.  In a lot of my research material I have discovered amazing things that have surprised me so much I have been absolutely stupefied at how little so-called pious people know about their own faith and its origins.

I try not to preach to people when religion is bought up (only inform so they can make their own decisions about things) but I am shocked about how little they know of their own faith, it is hard, but I have made a point that as far as religion and politics are concerned, I can air my beliefs online on social media but I will not engage on any debate about it, because once you commit to something like that, it will become a never ending argument as neither side tends to relent.  For some religious people, when I simply state “each to their own and lets agree to disagree” they simply won’t leave it at that.  I have extensive knowledge of Judaism, Catholicism and Christianity in all its forms as well as Hinduism and Buddhism; I haven’t much knowledge just yet on Islam or Sikhism unfortunately.  But I also know a lot about ancient religions such as Norse, Greek, Roman, Egyptian and especially Sumerian beliefs.

It is interesting to read the origin of Christianity too; a lot of the original beliefs are not upheld in Christian communities of today, a Christian from the time of Christ’s death around the time it first started, would have a problem digesting a lot of what goes on in Christian communities of today.

For me personally God is gender-less, they do not have a name simply as being known as a creator or more specifically the creator, I cannot give them an image nor assume that they are in human form just because I am, I will not presume what he deems is good and evil, but I do believe he will give me the innate instinct of knowing what he thinks about certain things I am pondering before I do them.  If I think I would feel bad or remorseful after doing something, I generally consider that as a sign I must not do it and I have had this belief for nearly 18yrs.  It is naughty to presume anything about God or the creator, no one must think they can speak for him or make laws based on what they believe he wants – because I do also believe there is a deceiver who works against the truth and that is the evil in the world.  If anything hurts or kills or hates or does anything remotely negative, it has been influenced by the evil in the world or the deceiver as I call them.  I will also state that I do believe billions of people can be wrong, because billions of people can be duped, look at the concept of fake new for one thing – fake news is not new.  I must admit I have been planning a book on this, but I am scared I will become the new Salman Rushdie with death threats and so forth.  Paul believes he has never met a more pious person in his life, pious but without religion, pious but without an explanation to the world and he would never dare call me religious in a mainstream sense, because that would be very wrong, there is no religion in the world which is remotely pure enough that it cannot be tainted in some way and I believe I am by far from perfect, no one can be perfect in a world where evil resides so freely.

Some people in the past have considered me to be a Satanist, simply because I quoted something that Satan was reputed to have said once.  I am trying to remember the source where I read it from, but he was quoted in saying “I do not hate God, but I hate the God of man”, which in my opinion tells me a lot, it tells me that the God of man is what man has made for himself either by humanities own design or by the design of a great deceiver, which also shows me that Satan is not someone who is at war with God if I were to believe the Judo-Christian concept – it means there is a different devil at work, someone who has cleverly kept his name unknown and has spread bad media against those of the truth, whilst endeavouring over the centuries to conceal, hide and destroy the truth, to confuse humanity with false knowledge.

It is very deep stuff, but it is worth thinking about.

I believe wholeheartedly that there is a balance in the universe and at present the balance is tipping hither and tither good and evil, there is definitely a power struggle and I have no idea why humanity is key in it all nor whether or not humans are the only creatures on earth who have a religion, because I am not Dr Doolittle.  But we can’t presume that animals don’t have a religion no more than we can presume what the truth is.

You can find the truth in a lot of lies, because a liar can never remember their own lies and will often slip up.  If you read many conflicting religious ideas over the centuries you do begin to see a pattern of both inconsistencies and consistencies.

I know I am religious in my own way because five years ago a person in the street yelled next to me at some Jehovah Witnesses in Birmingham this “God is dead”! and for me, that was a knife through the heart and stomach and it made me feel quite ill, it affected me badly enough that Paul had to stop me ranting at them about how wrong and evil they were to state it.

I know some of my poetry seem to attack God directly, but you have never asked which God I am writing about.  Usually when I write about God so venomously I write about the God of man or the deceptive God and I will tell you something extraordinary and you may not be inclined to believe it.  But when I was 25yrs old I spoke a lot about my beliefs on four religious and spiritual forums and I was researching for the truth, I discovered many things, many so-called secret societies and secrecy in general, I was shocked to find in my private message box, a message from the Vatican telling me that what I say may or may not indeed be true, but I must stop talking about it, lest I have problems from them.  Thinking nothing of it, for a short while in my life I noticed I was stalked, primarily by priests and nuns which is unnerving and a strange coincidence.  When I decided to stop vocalising about it all, they stopped following me.

Now is this a coincidence?  I was never really sure.  But it is food for thought.  Coincidentally, seven people I knew from the forums that refused to be quiet on the same subjects, died in accidents in less than two years after my silence and a further two people were arrested for apparently nothing and was never released, weird enough their families and friends are unable to visit them which has caused big stirs with the authorities.

It is a strange world out there, stranger than you think and more secretive and deceptive than you think.

Arts and crafts

I have a  broad scope of knowledge regarding arts and crafts, from doing 1000 piece puzzles, to knitting, sewing, embroidery, decoupage, greeting card making, scrap-booking, felt making, making Christmas and Halloween decorations, you name it, I have probably done it for a time. 

Learning languages and having an interest in the origins of words and names

For some of my friends I can come across as a bit of a Susie Dent from Countdown to them, I will explain the name and origins of their chosen names for their babies and I will bring up words they’ve never heard of before because they have recently been removed from the English dictionary and I am vainly trying to popularise those words so that they can get back into the dictionary once again.  I had a huge debate three weeks ago with a bunch of online friends about the new username I have on a game site we use, the word was Eventide, a lot of people misunderstood this as being Eve as in Adam and Eve and some others thought what does ide mean?  Because they thought I meant event ide as some thought perhaps I loved fishing!  Well no, eventide is old English for evening and they can’t understand why I just didn’t name myself Evening instead.  How boring.  A lot of people are forgetting the use for the words dawn and dusk and even twilight, you say the word twilight now and they instantly think shitty teen vampire movie.  Twilight by the way is my most favourite time of the day, it is so beautiful sometimes and I have often thought about naming a daughter Twyla because of it, though the meaning of the name Twyla is old English for two or double, usually given to a twin daughter a lot like the name Thomas for boys, which also means twin.  I know quite a bit of Latin, I am currently a level 3 Italian students, fluent in French, tourist ability in Japanese and Spanish and I have learned excellent methods of learning languages at an incredible speed.  If I practise a language an hour a day I am usually fluent within the year at most, regarding languages I am a fast learner, astute, adroit, you name it!  It can be difficult to speak in all the words I know because I still have that working class way inbuilt into me, but I can shift the manner of which I speak very well to whomever I am talking to at the time.  I don’t mean my voice, I don’t mean my personal mannerisms or accent, I am simply talking about going from tabloid to broadsheet whenever the situation needs it!  I often sit there, with my semi-working-class accent talking to people of upper middle or high class talking to me, they think working class, OK, I use some big words here to make myself sound smarter and I sit there and grin because I can use big words too, it is a lovely feeling to have, smarm.

That’s about it really.   That and general literature, but that is mostly useful for quizzes or recommendations rather than being a piece of worthwhile knowledge.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Filed under About my work

Munchhausen victim

Trying to be bright and happy is a hard thing to do

When you are ill and ailing and feeling very blue

I put a smile on my face for all the world to see

How my smiles lie to you, you have no idea you see

I learned to lie awhile ago about how I truly feel

Because if I didn’t do it, I would be stricken ill

You don’t understand the metaphors or words I am using here

And I don’t expect you all to; you’re all such lovely dears

So I leave it all to the imagination and a clue is in the title

It is a representation of my past, something you should know it’s vital

So now I will end my poem, opening up your minds

I hope you get the message; getting someone’s understanding is hard to find

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Filed under Poems M - O

A plan, lost time and mindless jealousy

Going back to my post about social media from the other day, I have decided today to make a list of people to watch on social media to try and make me more social with the people I love speaking to and getting replies from.  It will help me manage things better, I am a person surrounded by endless lists for things because my illness can make me too preoccupied with trying to manage my symptoms such as coughing mucus several times an hour and that sort of thing, that I can often forget to do important things such as drinking fluids, eating and even socialising.   

Paul has suggested in saving up to get an Alexa for me, so that it can remind me every half an hour to take a sip of my drink because it is becoming a big problem for me and he thought as well that this can remind me to eat and even socialise.  I sometimes go two weeks between reading emails too, because on bad days (and I am getting more and more of them) two weeks can feel like two days to me, there are times where I haven’t spoken to my favourite cousin online for six months, but to me it feels like two weeks, when I look at the last time stamp I apologise profusely for the time span between our last chats and overcompensate by talking for three hours when I do finally get to contact them again.  It is bad to consider that I make more posts for my blog than I do in contacting people I know in reality.

I really do lose such big chunks of time because of my illness, I go into a groundhog day whilst the entire world moves on and have normal different days and they get to partake in the events of the future whilst I am still struggling to breath and thinking its Sunday.  Henry comes into my bedroom to shake me awake as I am too deaf to hear him say good morning until I put my hearing aids in and I ask him;

“Why are you wearing your uniform on Sunday”? 

“It’s Thursday mum” he says.

“Oh that happened quickly”, I say whilst trying not to fall back to sleep.

But a lot of the time I don’t go back to sleep for twenty minutes because my chest needs clearing and I have to go to pee, but it is a struggle to get there whilst choking and I have a bucket midway between the bedroom and the bathroom because I often choke so bad I vomit.

On bad days those coughing fits don’t calm down for nearly two hours before I can rest again.  It is difficult to be like this when my personal doctors surgery is only opened for 8am to 4pm every day and they prefer to use after 12pm as emergencies only – I never really had a planned appointment from the doctors because my personal GP rarely works the emergency shift and if I want to see him I need to wake up around 5am just to clear my chest, get dressed and eat then rest for an hour after eating just to get to see him for 10am, they are aware of this but I am sure they think I exaggerate!

If I get the flu it lasts for 4 to 8 weeks on me because by the 5th day it always turns into bronchitis and by 2 weeks it goes into borderline pneumonia or pleurisy, doctors are worried by this, it is happen too often and I am showing signs of antibiotic resistance too!  

To all those people who work full-time and hate on people like me who rely on benefits to live and often say venomously how they wished they had my life sitting back watching TV all day instead of working – well I beg your pardon, most of the time I am too deaf to watch too much TV because of severe ear infections and I can’t hear music either during my bad days, all I get to do is read or be online and sitting at a desk is tiring, so you want my life huh?  You can have it if I can have yours!  I’d love nothing better than to work if it means I get great health with it and a great social life!

Welcome to my life for the last seven years, pretty isn’t it?  Yes, please do be jealous of this so-called lazy fat bitch, because my life is great isn’t it?

 

 

 

 

 

 

 

 

 

 

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Filed under About Me