Tag Archives: diet

Sickness and feng shui

Covid hit my Henry in the first week of April, then it hit me a few days later, because of this I have been functioning at zombie level, because not only did I have Covid at the time but I was recovering from a non-Covid chest infection and gastric flu – which coincidentally, happened again just a couple of days ago.  More gastric flu hit the house on Wednesday and apparently gastric flu is spiralling in and out of everybody’s lives a lot in the last few weeks or around here in any case.

Because of all of this, I haven’t written a word towards a novel since the 2nd February 2022, ironic considering this was going to be my hardest working year in writing and I wanted to start as I meant to go on for the year.

I am exhausted but recovering slowly, my asthma seems much worse these days and my bronchial tubes seem to be permanently filmy and half opened, along with this it is also a bad hay fever allergy year for me.

Just existing is difficult these days, but I am trying to push through and though I have never been a huge coffee drinker, Covid has made me become one of the worlds many addicts as it seems to be one of the main things which is helping me through it all!

I don’t know if it is my neurological problem or Covid which has made this happen, but recently I am struggling to walk in a stable manner and I am finding it hard to sit up from a laying down position.  My legs feel like they have weights on them, however the weird thing about it is, it is as though I am walking on air at the same time, or that the ground has become marshmallowy.

My appetite has decreased further, where a simple dish of a small salmon fillet and half of a small a jacket potato with nothing else, is a feast to me!  This has meant, finding highly nutritious and varied foods on a small scale has become hard to manage.  I literally need micro-meals, I don’t mean microwave meals either, I mean small meals, miniscule for an adult, perfect for a 5yr old and I need to eat at stupid times.  I now regularly have to have a small meal at 10:30 pm just to get enough calories and nutrition in the day, which doesn’t help the insomnia.

A positive thing though, is I have discovered I am not actually lactose intolerant at all – I have found I have issues with gluten and lactose purely because those foods contained soy, since eliminating soy completely from my diet, I am now able to eat gluten and lactose again and let me tell you, its pure joy!  Though being a Chinese food addict means I can’t indulge in that anymore unless it is homemade and without soy!

I found out because twice I accidentally consumed things containing milk and then expected a bad night of gastric like proportions, but no, nothing happened.  Then I had another food which had milk and soy and I reacted, Paul thought that maybe it’s because I ran out of enzymes, but then we noticed that my lactase pills were not working for certain food items.  So I began a soy elimination diet, as suggested by a friend.

So I had been spending £18 a month needlessly on lactase pills, because it wasn’t a lactose problem at all, it was a soy one!

Despite being ill a lot this year, there is a noticeable improvement in other areas of my health, since going back onto lactose and gluten.  My skin and hair have improved a lot and a couple of other personal issues.

Henry is currently sick with very bad gastric flu and his fever broke earlier today, he had a temperature for so long that the doctor had said that on Saturday, if there was no improvement, he would have had to of been admitted, so there is a lot of relief there that the fever has now broken!

Because of all these health issues and so on, I decided that I should reconsider the house in a feng shui style, I knew certain aspects about feng shui, but not a lot, and I realised that things were better in certain years when furniture was in different places and worse when it was moved in other places.  Considering this, I read some books about what I did right back then, but was doing wrong now.  I found that there is a lot of blockages in areas that was good, particularly the health – which explains why we’re sick potentially.  The health centre of our house was established around the time I started to get sick eight years ago as a laundry pile area – not good feng shui, also we have small mirrors which we glued around each other so our reflections are always fragmented and cut up into bits, again not good feng shui!

Also I noticed that I moved dragon ornaments away from the places that they would like to be according to feng shui, we did better financially when a dragon and a tortoise was in the south west corner of the living room, but things have changed since I put them both in the south area of our bedroom!  Effectively moving them from the transformation area to the career area – career wise things may have improved as we are developing good contacts, though have not dedicated ourselves fully into creating a career just yet – so we will not move them back to the transformation area, but instead, move a spare dragon from another area to the transformation area and then move the tortoise out of the bathroom, which is a bad area to keep it according to the practise, especially as the bathroom is half in the health area!  Because our health centre is split into two rooms, which is unusual and complicated in Feng shui terms!

I love Chinese culture a lot, I believe a lot in the Chinese astrology and I do not like western astrology, I believe Chinese astrology to be more accurate in my life.  So, the idea of throwing me into Feng shui as well, I think, is a good idea!

My grandmother always said there was Chinese in my family, but I found out that she was slightly wrong about the nationality; they were actually Vietnamese and Singaporean ancestors, which kind of explain my so-called throwback eyes as some people call them (I actually think it’s kind of rude, but there you go).

 I would love nothing better than to move the furniture around again, but at the moment the family is sick and the areas I want to move would cause bad things to happen moreso this year, because those areas are all the areas of this year’s sha chi, which means if you move those areas outside of good construction days (according to chinese astrology) you will activate the bad energy there and make things much worse.  So we can’t make improvements until the 9th of May or the 23rd and 24th of May, as per the household’s astrology signs.

I am a water dog, Henry is a metal tiger and Paul is a fire monkey!

Anyway, thank you for reading and maybe in the future there will be more about the feng shui as I learn more.

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Home update, diet change & differences

I am still writing and I still intend to get published in the future, but my timeline has had to be shifted dramatically because of a lot of new things happening in my life.

An old friend has reacquainted themselves with me and along with this I am also preparing the house to take in Ukrainian refugees, as well as trying to manage the worsening symptoms of my disabilities.

Also with this, Paul has bought it to my attention that we may also move house within the next few months and so there will be an even bigger upheaval.

My original publication goal was to send my work to an agent at the beginning of autumn of this year, hoping to be published within the next two years – but with these new events going on, it may be pushed back further, because I am very dedicated to working to the best of my ability to help the Ukrainians settle in and feel at home.

We’re unsure whether or not I will get a brood bitch for the service dog charities and do that this year, because of all the other things going on now.  But I hope to definitely be a brood bitch carer sometime in the future.

Also my hearing has got far worse, even with a hearing aid I am struggling and my hearing is now at 6 hertz, very low, without a hearing aid.  Because we are unsure what is happening with the refugees we will be taking on, we are holding off approaching a charity for a hearing dog for me, but it is something we have thought about.

Paul gave me some good news the other day that the bad neighbour may be moving out soon with his girlfriend because her daughter wants more independence around her house and she is tired of the conflict he is causing with her neighbours.  It still means that for this year I have lost another prime growing season, but hopefully next year I will be able to do my gardening again – it is desperately needed as things are overgrown to a very anti-social level now, primarily due to the fact that I feel sexually harassed by the neighbour when I am out there as he stalks me and acts lewdly around me – lewd for me is something that will shock people who know me well… because… well let’s just say, I am not known for being a prude!

This may mean if he moves out before Paul’s timeline, we may actually stay after all!  As we were only going to move out because of the bad neighbour, because I need the freedom to go in my garden without harassment and bullying and hearing him make loud speculations about my life to whoever is visiting him at the time – often crude and outlandish speculations at that!

Henry has been very distressed to the point of suicide because of bullying at school and the fact he may have to leave what he feels is his ancestral home, because of another bully next door!  Henry’s family on Paul’s side has lived in this house since 1956, that is 66yrs that this house has been in the family and Henry is proud of that, because also the family has lived in this village for 325 years next summer!

Not many children this day and age in the UK can claim such a heritage and Henry is not happy about breaking these family traditions of remaining in the area, even though it is Paul and I’s dream to move to a more secluded region.

We have a double bedroom available for Ukrainian refugees, we feel that we could put in a bunk bed, with a single bed and a cot, but whether or not whoever is arranging this for us, will agree to that, we do not know!

But hopefully whoever comes does not have a pet fur allergy as we have a house rabbit and would like a dog.

I have always enjoyed learning languages, I know French and Italian to better than tourist level, but not fluently and I am willing to learn how to speak Ukrainian to help them.  But Paul is all in for integration and has been coaxing me not to learn Ukrainian so that they have to learn English.  I have learned some words in Ukrainian and found that it is very similar to Slovakian, my sister in law is Slovakian and some small words she taught me are actually the same in Ukraine.

I have Latvian, Russian and Lithuanian friends, who live in this street, so they will have people to socialise with, readily. 

We researched the culture of Ukraine and I was delighted to find that the diet they have is exactly like or very near to my own personal diet – because my diet is much different to Paul’s and Henry’s because of my multi-cultural heritage.

Paul was delighted to find that too, because a lot of the food here is often thrown away as I can’t eat enough of it, and he and Henry don’t like it so won’t touch it – this means less waste for us!

I home make sauerkraut, pickles, I eat a lot of baked or pan fried fish, I have a lot of different soups and I make bone broth for myself a lot and I use paprika in 75% of all my dishes and we have crepes with berries at least twice a week, they’ll feel at home, basically!

Paul and Henry try to eat the Italian side of my heritage along with Paul’s English food, but other than that, they don’t really eat what I eat.  My personal diet isn’t very English – if I have a roast I have things that English people only have at Christmas time, cranberries and apple sauce for example, which Paul has got addicted to recently – the apple sauce – he isn’t too keen on cranberries.

He is starting to get used to the idea of paprika and or cinnamon in everything too!  I am trying to get him into the habit of remembering to use fresh herbs when he roasts meats and to baste with the herbs some of it, but that needs more coaxing!

I won around five years ago, to move him away from boiling veg to steaming or pan frying instead and cutting out salt in almost everything; though I acquiesce you need salt on some potatoes, sea or rock salt though!

I don’t think I will ever get him to like beetroot though – not even in crisp form.

I have recently learned that a lot of my food intolerances and allergies were not the things that I thought they were… this have opened doors for me again! 

I found out I was not intolerant to gluten or lactose, but I was intolerant to the products that contain soy or soya instead!  This is amazing and also I found out that I need a reduced fat diet because having fat too much in one day can make me react like a person who has lactose intolerance, so now I have managed my diet to include lactose and gluten, but I must remain strictly soy free and low fat!

I would never have found this out if it weren’t for my re- acquaintance to my friend Frank, who was very concerned at the prospect that I was becoming malnourished and were visibly losing muscle density.

So now I may eat lactose and gluten again, but I must avoid all soy and soya products, unfortunately it means no Chinese food, until I can home make them soy free!

Soy is in everything though, so though it has opened a lot of doors to me, I must check everything I buy to eat like some kind of paranoid creature because as Paul has found out… one product will be soy free, but the same product in another store from another factory may not be!  We was caught out the other week with Snickers, they were soy free and I had 9 bars in a multi-pack, but then we bought a single bar in a different store and I reacted badly that night, confused, we dived down the bin for the wrapper to find that it does contain soy!  But not all Snickers do!

It’s odd.

Anyway, thanks for reading – there will be an art update soon!

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It’s my birthday and I hope for better things!

It is my birthday today I am thirty nine and I hope that the saying “life begins at forty” is a true one!  I hope so much that with these emergency appointments I have at the hospital etc. is going to fix something and that I can have a normal life again!

There are so many things I want to do with my life, but when it is a tiring task to just get dressed and maybe vacuum a room in a day at most, it is hard to see past that.

Things I would love to do if only the health was there… obvious one would be study and work outside of the house.  I miss people interaction and I love jobs where I am in the service of others, not just my creative pursuits, of course I love my creativity and it would be lovely to have a job where creativity is a must, but generally I love jobs where I feel I am needed and relied upon for things – particularly hospitality.  I am a lovely meet and greeter, always happy to help, with a bubbly personality, professional manner and experience as head of admin and customer services. 

I often wonder if Sue Holderness remembers me, during my short time as Christmas staff at Marks & Spencer’s she would always gravitate towards my till because she said I was pleasant and she often added points to my services as Marks and Spencer’s have a point system in play for their staff to see who is performing well.  I was only there for a few days over one particular Christmas; I doubt she’d remember me!

I used to love work and if I had been allowed to keep my jobs in the past I would have.  It sounds funny to say that, because it is not a normal thing to say – but it is true, in the past many times I had a lovely job I loved dearly, but I was forced to give it up as it didn’t sit well with my mother.  For those who are new to my blog, I was micro-managed within an inch of my life by my mother who tried to isolate me for years and I only managed to get her out of my life fully in 2013, when I was twenty nine, just shortly after Henry’s 3rd birthday in fact.

Thinking differently these days, I may not go into hospitality if I had the health back though, I have other ideas.  I am not sure if starting university for a science degree and to have a science career would be something someone my age should really consider.  But it is interesting; I have an unnatural curiosity and obsession with microbiomes; but maybe that is more of a hobby thing… like gardening?

I had thought, what I would do if I found out my health problems are actually curable even if it is by 50% – I had thought what would I do with my life now?

Obviously still write and do art, but what else? 

I had thought about the concept that my lungs may allow me to once again do music and singing again and if it did, I have to say musical theatre pulls me;  Particularly writing operas or comedy musicals for the stage.  One of the things I have neglected about myself a lot since becoming ill is my love for music to the extent of practising my instruments and composing becoming non-existent.

I miss musical composition more than I miss the idea of sitting down to write a full length novel, to be honest… well a full length non-vampire or dragon novel that is.

I do know I miss sport a lot too, I was very active before getting sick – walking an average of nine miles per day, just for the fun of it and also because I am a cheapskate and walked everywhere for the sheer economy of it.  I love bowling, basketball, jogging, and cricket and wanted to take up rock climbing, to name but a few.  But one thing I did really want to get back into and that is dog agility training and judo.  I am also a true water baby and twice I nearly got into the commonwealth games in my life, once for swimming and once for judo, but shit happens.

The commonwealth audition was cancelled due to emergency life-saving mastoid surgery, which consequently ended my judo career before it even had a chance!

The swimming for the junior games was cancelled because my mother wouldn’t let me go and stay the night away from home without her and made me decline.

I know I have to think about practical things, but I do like working for charities, at least half of my previous jobs were helping disabled people, particularly those with mental learning difficulties or brain injuries.  I have a passion for helping people and fighting for their rights to lead a dignified life!

I have been in a situation myself where I have been in special needs schools for a few months in between home schooling, I also have a long history of mental health where for four years I had to go to a day care centre at Napsbury hospital for treatment as a child and schooling as well as being in a very physically vulnerable state with sensory deprivation for nearly two whole years!  I have seen two sides of people who are supposed to be “carers, in caring jobs” and it is not all good.

I went through a time as a child where I was absolutely terrified of all men, except male relatives who were close to me, I wouldn’t speak to anyone if they were a stranger for at least ten or more visits and I went into strange bouts of bulimia, anorexia and compulsive eating throughout most of my life – this cooled off a lot when I met Paul.  I was spiralling into food obsession for three years before I met him.

It is totally weird how, now I am away from the stresses which dictated my eating habits, that I have developed a sickness where I can’t eat a bunch of specific foods without pain and vomiting and some people who remember my past, have asked me on the quiet, “it’s not your old thing again is it”?  I still maintain some friendships distantly via facebook and pen palling with some of my day care compatriots, who remembers a the time where I ate half an orange and a quarter of a cheese sandwich without rushing to the bathroom and they celebrated it for me, whilst I just sat there frowning and grimacing at the fuss and the taste.

I will say though, that I am becoming more and more of a picky eater despite the dietary restrictions I am under because of my intolerances.  This does worry Paul, because with our current budget, he is struggling to provide for me.

I must maintain a gluten free and lactose free diet, I cannot eat flax seeds, I can’t have too much sugar in a day, I minimise citrus fruits, I can’t have soy, I can’t have vinegar unless I want pain (who does?), I may have a mustard intolerance as recently I am reacting against mayo and a couple of other sauces which have mustard in, I can’t have pineapple and I can’t have anything too fatty and if it is fatty it has to be because of olive oil, I must be careful with eggs, no more than 3 times a week!  I can’t have too much coconut produce either; I can only eat small amounts of beef and no more than twice a week!  I shouldn’t have tomatoes everyday either, but that one is a hard one to surrender as I like tomatoes almost with everything!  But ideally I should never have them according to doctors.  I can only have two Brazil nuts in one sitting before strange things happen to my mouth! I can only have a beverage with tannin no more than once per day and preferably not at night. So, yes, I am not fussy about all of these, this is just the foods I can’t have because my body will hurt me a lot if I do!  Because of all of this, I have according to the doctor a very low salt diet, because I don’t add salt to my cooking and he told me I need to start, because my levels are too low at times and could account for the cramps I get!

So, as perplexed as you all are, I know you are, because I have seen the faces of offline friends when I mention this to them – what the fuck do you actually eat then Tina?  Food, to put it bluntly, proper, wholesome, mostly unprocessed food, weird isn’t it?

It’s the reason I love sauerkraut so much, the salt my body needs, the cabbage is really good for you too and you get added microbes for your gut!  Ironically, my health is slightly improved for the gherkins (dill pickles) and sauerkraut I eat these days, without that being in my diet three times a week, I would actually be a lot sicker!  I know, I tested it out for a whole month and it thwacked me hard!

I think the unhealthiest thing I eat these days is the local chippy once a fortnight, because I don’t eat their battered fish, I prefer their kebabs without the bread that is!  They have their own oily sauerkraut with gherkins and pickled jalapenos and its sheer heaven with their homemade chilli sauce!  Their meat is also homemade, so they guarantee it has no gluten and lactose and they don’t spice it as much as the places in town, so it’s just like fatty lamb pates really.

My most usual food to eat for dinner is gluten free pasta with homemade chicken arribiata, pan fried salmon stir fry or sausage and bean casserole with mashed potatoes.

My most usual food for lunch is, fried tomatoes and mushrooms with gluten free toast, a smoothie, vegetable frittata, or Ham & lacto free cheddar cheese ploughman’s sandwich with gluten free bread, I know the sweet pickle has a bad product for me, but it is so little my body hardly notices too much.   I don’t have celiac disease apparently, it is an unidentified IBD.

My most usual breakfast is, air, or very rarely cinnamon gluten free porridge or just homemade fruit salad.

My snacks are nuts, celery, carrot sticks, lactose free Nutella with gluten free digestive biscuits or rice cakes, pancakes with said Nutella or lemons or honey or maple syrup or fruit compotes, fruit, or smoothies, rarely jellied pick n mix and crisps purely for the low salt days. 

When finances improve, I am excited to ditch a lot of the above for things I really love!  Such as honey nuts, dark chocolate with fruit in, fruit leathers, chicken legs, kimchi, , king prawns and the expensive fruits and veg like avocadoes, coconuts, pomegranates, figs, chickpeas, mange tout, things someone on my budget consider birthday or Christmas treats!

Well it’s a life I hope that will happen anyhow, I am trying my best to fight through it all and get that life, even if my body does seem held bent on killing me!

Happy reading!

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Health update 12th June 2021

Because I am spending more time in bed due to my immune system having a major crash for the last week, nearly two weeks now, I have re-established my addiction to Codeword puzzles.

I seem to be completing them faster these days; I am starting to become a bit more of a word geek than I was before. 

Also, I tried to get back into playing online word games such as word tornado and scrabble on my laptop in bed as I decided I could do things in bed on my laptop as at least I would be more productive than just watching YouTube videos on TV and reading books.  But guess what?  BT decided to update this areas exchanges so internet connection has been tetchy and almost non-existent, so I can’t do that or watch YouTube on TV without a disruption every 15 minutes.

I thought only last Thursday to do this, take the laptop upstairs, play word games and update my blog in bed as I don’t like how my illness dictates to me how much work I do, because I’d rather work downstairs on the desktop computer.  Friday afternoon BT alerted us for the coming week that they will be updating everything and they apologise for any disturbances that they might cause during this time.

I would say “typical” but I am not that kind of person, because I know that certain thought patterns can affect your reality and make things happen.  But I do take it as a sign that Paul is right about the universe trying to get me to rest, because it is hard for me to sit back and rest entirely.  I have never been the kind of person who relishes in relaxing and living with Paul has been an education in that at least.

So, I am here, on my desktop again, only to update this blog and have my dinner before going back up.  I am having a really bad day with my arthritis, inflammation, ear infection and migraine.  I can barely eat because my IBD and IBS is bad too, in fact it is becoming a major concern for Paul and the doctors, because I am now eating in deficit, I am losing inches but not weight which is also confusing.

Since Christmas I have lost 3 and a half inches but no actual pounds, it is visible loss but not scalable other than measurements.  I am not exactly changing my diet either, I just physically can’t eat a whole sandwich anymore, I am having what Paul terms as micro meals or not-so-posh-nouveau-cuisine, just to eat something.  Thing is, I really need a tiny half tea plate of food around 5 times a day to be at the calories I need, but I only really get around 2 now.

My mother if she knew about this wouldn’t believe how little I am eating lately and it’s not by choice, it’s because of pain and the inability to keep things down.  If I eat a whole sandwich, I will vomit some of it back and that’s not bulimia, it’s just my body rejecting it.  I have a stupid amount of vitamin and mineral tablets I have to take daily because of this.

I joked to the doctor once about how I must be the only fat person they will know to die of malnutrition, in fact they shocked me with their reply; “it’s more common than you think”.  He said.

Let’s put it this way, my mother used to serve me up 6 to 8 fish fingers with 2 or 3 fish cakes, 2 slices of bread, half a can of beans and half a plate of chips as a regular once a week meal.  These days, she doesn’t feed me; she hasn’t seen me in years.  But now if she still knew me she would be shocked that I could only be served 2 fish fingers, two slices of bread, 1 fish cake, 1 spoon of beans, 1 tong serving of chips and I won’t eat everything before my stomach plays up!  This is a bad example of my regular food intake, because that is what I am eating today.  Usually I have stir fry, salad, and veggie frittata (despite egg problem), casserole with veg, or chili (for some reason my stomach can cope with chili despite the disease, which is baffling to everyone).

Yesterday I had quinoa, with beef chili, loads of Mediterranean vegetables, yesterday’s meal was the biggest meal I ate without a problem all week, but I still only ate half of it, but at least it was around 800 calories.

Which was a big contrast to the day before that, as that dinner was 2 slices of vegan cheese on toast, onion, tomatoes, peppers, and a side of celery and carrot and that was it, I couldn’t eat anything else the whole day!

But this has been normal for almost 2yrs, just got worse around 3 months ago.

I’m permanently exhausted and in pain and I am bruising way too easily too.

In a nutshell, my life sucks.

Happy reading!

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Mental health update 26th May 2021

The thing about mental illness is that it grabs you and sometimes even the sufferer doesn’t even know why or what caused them to cry at that precise moment.  I have been having times like this a lot over the last few weeks, but in the past couple of days in particular it has been really a big struggle.

For the first time in almost two years the suicidal thoughts have come back, but along with this is a reasoning thought, that if I were to try and commit suicide right now, I am likely to be saved and therefore my life would be worse to live in the aftermath because of whatever damage the attempt may have done to me, I would then have to live with along with everything I am trying to escape from.  I am already under scrutinised watch, because of my past breakdown a few years back, so it is quite probable, that I will be saved – whether I like it or not.

I am in the situation that I know why I feel this way, but I really don’t have anyone to talk to who is not going to be conflictive with me about those matters to talk it through with.  I am too deaf to use a telephone helpline and I don’t really have enough privacy to talk about matters online.  I barely have the privacy to type this here now.

Well, Paul knows how I feel, but he is painfully irritating with his responses and usually end up making me feel worse, he isn’t the sort of person you can rely on for too much emotional bolstering or betterment.  He knows I think this way about him, and yes, it does put a strain on our relationship – especially as I try and tell him that he shouldn’t feel emotionally responsible for me despite this.  But he always proclaims that he does anyway and how could he not? 

He is in denial of his own depression, I know this, because instead of trying to help me see the Brightside of life or help me take my mind off things, he is one of these people who will wallow with me and we both sit there in our pit of despair, talking ever deeper and concentrating ever more on the crap that’s in our lives – that’s not a place of healing.  Alternatively on his more positive days, as he does have them occasionally, he will talk to me about stupid dreams of “if we win the lottery” or “if we built our dream house”, those conversations helps him in his dark times, those dreams, but it just makes me a whole lot worse!  There are times and I am sure he knows it by the looks I give him, that when he talks of me of those big pie in the sky dreams, that I just want to take those dreams he talks about and shove them down his throat.  Because, who wants to be reminded of things that are unreachable when you are in a time of struggle?

My problems are not primarily financial, that is something he can’t get his head around, I think.

My main focus is the lack of love, the lack of attention, friendship and family.  I am also very sick and I am tired of that, I am tired of constant pain, constant illness and no one to sit there and snuggle with me for more than just five minutes a time, because no one has the time.  No one has the time for me.

I talk about this to Paul, but he is so exhausted all of the time and struggling with his own injuries and pain as he is my main carer and Henry’s main carer and the household carer, that when I do talk to him, within twenty minutes he has literally fallen asleep during our conversation and wakes up with a jerk when I probe him about it.

I know I am a selfish cuss, because he struggles to balance everything for me, but he really could help himself a lot more by communicating with people who are willing to help him, but he doesn’t.  He just plods along doing all of this and coping with all of this on his own and I do literally nothing.

He is 27yrs my senior, I am terrified of how I will live if he dies.  That’s how selfish I am.  I do love the fellow, I do, but I am shit scared of what will I do if he goes?

I can’t do a thing for myself these days, on an emotional and mental health level I could barely anyway, but now the body is falling apart, I can barely even cook for myself these days.

We have no one.  We only have two adult nephews who visit once or twice a year and that is all.  We have nobody, not even a reprieve of a friend who’ll come to tea anymore.  Not since I have got too sick to reciprocate and Covid has made socialising with professional’s non-existent now.

I am ultimately desperate for two things, to move out of this house into a house that is not riddled with rising damp and holes in the roof and the ceiling literally falling apart in some rooms and I am desperate for more love and attention, especially long snuggles!

Oh I could add a third, to have a decent allergen free diet on a consistent basis, not having 2 weeks of feast and 2 weeks of famine in every month, which is how we live now.  Well, I say we, Paul and Henry eat properly, I don’t, because I am the one with the intolerances.  Gluten, lactose and occasionally egg, flax, pineapple and a few others; Gluten free foods are fine if they don’t contain flax, but most do.  My body can’t cope with chocolate more than once a week either, or beef and my body can’t cope with a high fat diet, which makes things very difficult on a diet front these days.

When I went through a phase of anorexia as a teenager, I actually ate more then that I do on the famine weeks in the month and that scares Paul, but the doctors don’t batter an eyelid.  I am still overweight you see and I am nearly a woman in her 40s.  They don’t take the food problem seriously – if I had been 8 stone, maybe they would!

Yesterday all I had eaten up until 5:35pm (the time I am writing this post) is 1 slice of gluten toast (because we are struggling with finding decent gluten free locally in the past few weeks) and 3 slices of bacon.  Later I will have a cereal bowl size of tuna pasta with new potatoes and herbs; the pasta is at least gluten free.  Because of the toast today, it will mean tomorrow I will wake up coughing up phlegm for an hour and my asthma and blood pressure will be bad.  But I needed quick food; I was feeling light-headed, shivery and headachy.

The food wasn’t ideal and I feel sick since, but I was hungry.

Anyway, this is just another bad day for me and I needed to get it off my chest.

Maybe tomorrow will be different?

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A tardiness update

Hello everyone, long time no writes, I know, sorry about that!

I want to say that I have been having a lot more infections than usual and a lot more chest and breathing problems which are not Covid related; I have not been infected with Covid luckily.  I have completely self-isolated since March 2020, I have only left the house twice in that time for dental appointments – I have been scared of Covid especially as I have a history for chest infections and pneumonia anyway!

Other than dental appointments I must admit I have steered clear of all doctor clinics and hospitals because I think that if I go, I am more likely to get infections – now this is frustrating because before Covid the doctor could care less for my health problems and whilst Covid has been a factor I have had to turn down huge amounts of appointments because the doctor is now ready to try and solve them… it is like the world is conspiring to trap me to get Covid lol!

I think there is one good thing about the fact I was isolated all of my life by my mother, that is, Covid19 isolation is literally a doddle for me as I have always learned to cope with what I have and make the best of being at home.  But it is also deeply depressing that again, I feel like the world is conspiring to keep me cooped up for all of my life!

I have mental health issues because of my past and so many people have been concerned for how Covid isolation may be affecting me mentally.  But they don’t understand that it is normal for me, I have been so used to it for so long that it is second nature.  So unlike the rest of the world that has always had some kind of freedom, I don’t go stir crazy just because I can’t leave the house for a time.

Staying at home or even cooped up for prolonged periods inside a single room really doesn’t bother me as long as there are things I can do.  If the room was empty, that could be a completely different matter, I may go crazy after a few days, but I would make do with meditations, visualisations and if I were not causing trouble to do so, singing and reciting poetry etc. 

The thing with me is, imagination is easy.  Imagination is my friend and I have learned to harness it on command for any situation.  I do meditation and visualisation so well, that there has been times I have been hungry and I have visualised eating a meal and I have come out of meditation not feeling hungry anymore!

It’s amusing really that I am overweight; when I consider that I can do this.  But I will be completely honest with you; I am overweight for only three reasons.  As part of the abuse I have been victim of, a large part of that was being fed constantly, my abusers were feeders.  I have lost a huge amount of weight since being away from them, but not enough to be of healthy weight.  Secondly, I am addicted to caffeinated sodas such as cherry cola and Pepsi, but still, not as bad as I used to be.  I have gone from a 5 litre a day habit to only 1 litre now -still trying to fight the addiction.  Third reason – the biggest one of them all is.  I lost a majority of the weight I had because when I moved in with Paul and got away from the abuse, I started to religiously walk 9 miles per day and I that was doing the trick with normal eating.  Since becoming sick back in 2012 I then walked only twice a week for about 2 miles and since Covid I walk nowhere at all, except around the house.

In my humble opinion I need to lose a lot more.  I have tried to go on a diet, but diet alone is not working at all.  I have stuck religiously to a diet for 3 months and I haven’t lost a pound!  It’s only going to go via exercise, which this body just can’t cope with right now.  Every time I try to exercise I get weird symptoms of lower back shakes and unsteady shaking legs and hands.  I am residing myself to the fact I can’t garden anymore, not for longer than 15 minutes a time.

I have to make do with trying to think about what I want to do versus what I can realistically do these days.

I love gardening, but short of sitting at table with pots, that is something I can no longer do the exact way I love the most – which is to kneel down with my hands in the dirt, pulling and pruning and chipping and replanting from ground to ground in true food forest garden fashion.

I have to reside myself to the idea that someday, if I get a little money, I can get someone in to pull my whole garden out for  me and make me hip high raised beds with seating around them, so I can sit and garden the lame man’s way.  Sorry, but to say I don’t feel bitter about not being able to do it the usual way, would be a lie!

My disabilities are affecting my creative crafts too sometimes.  Hand shakiness (presumably not Parkinson’s) are sometimes affecting me using utensils when eating as often as once a week, as well as hand cramps and so therefore drawing and painting on those days is a no go. 

My writing can sometimes be affected on bad pain days; sometimes pain is so bad I misread things, miss-type things, mispronounce things and even have spoonerisms coming out of my ears!  Hand shakiness and pain can affect how much I read in a day too as well as depression.  On a good week without much pain or shakes I can read about three books, if the depression isn’t there.  I think I mentioned this before.  You can more or less tell how I am doing by how much I am reading on Goodreads.com

But don’t be overwhelmed with sympathy for me not getting down to my art and writing however!  There are other factors besides health which leads to my tardiness – the phases I go through.  I tend to find it hard to narrow down precisely who I want to be.  So I go through weeks at a time being so involved in one thing or two and then move on again. 

For example; Between October and April, I have got into the phase of watching around 3 hours a day of YouTube videos from people who are homesteaders and food forest permaculture gardeners, as well as food preservers and artists.  February and April 2021 I have gone through another spiritual soul searching phase.  I have read books based on spirituality and cosmic ordering and I have been thinking about my self-definition a lot.  Since the start of April I have re-established my love for The Sims 4 and have been playing that daily for literally 6 hours a time.  Disgusting I know.  But I have still been practising my art approximately 3 days a week for an hour a time, which is becoming a record now, because that too, used to come in phases!  If this is an unusually long phase, then I have been in this once since last summer!

Writing is on a severe back burner, I am writing about 90 minutes three times a week since March, whereas I wrote a lot more, before then.

On a very positive note however; my art practises are for the very reason that I have decided to make a children’s picture book series and I am practising my art to get the same characters right in several different poses.  Now I know, you are all thinking that I am not a children’s author and that would be very true!  But something happened in my mind, where I just have to have this children’s series about a dragon in true infant picture book form.  I don’t know why this is happening, but I am going with the flow!

But I will tell you now; my main genres are dark fantasy and dystopia that will never change!

Until next time, thank you for reading.

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Health update & cataloging books

For the next few days I will be cataloguing all of the books in this house (with maybe the exception of my son’s bedroom as I want to live till the end of the week), to put on Goodreads.com as there has been some debate from some of my reader friends about just how many books I actually own because according to what they see on Goodreads I don’t have much.  Well I only used to add those that I bought at the time I have been a member of Goodreads, not all the ones I had before I became a member of the site – so, apparently I have to prove my hoarding addiction to the world – lol.

So that is my challenge for the week and it is back breaking!  You’re probably laughing your heads off at what you think is an exaggeration, but for me it is a reality.  Being bed bound sick for the last 7yrs has severely weakened my core that even standing up for more than 15 minutes at a time is very painful.  I think the diet I have been doing for immune boosting is working, because I am having more days out of bed, in fact I haven’t had a full day in bed since around the 21st of January.

I still need to go back up there regularly, but I am definitely seeing an improvement.  I am also taking extra vitamins with it all too.  I am not losing any weight, in fact gaining it – which is disturbing for me, because my calories are less.  Sugar and fat content is less, food is more nutritionally dense than before and I am slightly more active than I used to be.  It is puzzling why, I have the weight gain.  I am eating approximately 400 calories a day less than I did before these changes and I am doing more around the house, I am now able to care a little for the rabbit and even make snacks and lunches whereas I hadn’t been able to since 2016.  The weight gain is only 5 pounds, but it is freaking me out – somebody suggested my insomnia could be a reason for it, because your  metabolism is determined by your sleep patterns, not sure what to think of that!

My sleep patterns are all over the place.  I usually can’t sleep before 5am and sleep 9 hours a day on average, sometimes I need 13 hours, don’t know why.  I hate sleep, I really find it a time wasting thing and I resent that I need more than the average person because of my infections, arthritis and so forth.  I am trying to force my body into a sleep pattern, by forcing myself to wake up by 10am regardless of when I slept the night before; I started doing this 3 days ago, and last night I think my body decided OK, I will sleep now and the last time I saw the clock it was 02:10am, so I think it’s working a little.

I am really trying to discipline my body.  I am pleased also that whatever is happening to my body, I am able to do around 15 minutes of exercise before getting really tired – it’s a big thing for me, because as I said, I have hardly been able to move for a few years and all of this has happened much quicker than I thought it would.  But all in all there is not a massive difference in my pain levels or infections. 

I’m just trying to force myself and it is torture, I will tell you.  I need to get back to my athletic self again.  I used to be very athletic, I was always up and doing things and loved sport and I miss it so much!  Honestly, this was NOT a lifestyle choice for me, I genuinely became too ill to move and this is why I resent people who think they know about overweight disabled people, people like Anthea Turner!

I have been the victim of disability discrimination and fat discrimination for the past few years and I have seen the worst of humanity – it is especially prevalent with doctors who should know better!

Let’s pray you assholes who fat shame and hate on disabled people are never put into a situation where you are injured and sick enough not to be able to move and that you get fat too and get karma kicking your asses like you would deserve!

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Weight loss & image

Weight loss and image photos will not start until I know precisely how I am going to react after my dental surgery in early February. Because of my limited diet and because of potential pain and loss of a tooth due to an abscess I have, I may not be able to keep to new dietary changes for a few weeks, hence why realistically I am starting this diet plan after I know what is happening dental wise.

I hope to have posted my “before” photos around the end of February to the beggining of March!

The last thing I want to do is to set myself all up for this and then fail before a month is up for a couple of weeks just because of tooth complications, I want it all set for the rest of my life after this!

It is doubtful I will lose my tooth and to be honest, I have already changed my diet, but I do worry about what kinds of food I will have to eat for a couple of weeks if there are tooth complications. It is likely I will need soup, jellies and that sort of thing for a few weeks, so basically it might be high sugar because of the fructose in the fruits I would likely have to eat.

It sounds utterly stupid because more fructose when you are talking dental is the last thing my teeth will need, but hey hum – I am not sure what is soft enough for dental problems other than soup, jelly and fruits and certain vegetables.

Some ideas I have are homemade tomato soup (without cream), bone broth, avocadoes (as well as guacamole), pesto, vegetable soup and consomme, chicken consomme, overcooked gluten free pasta bolognese and arribiata without chicken, fruit jellies, canned peaches with vegan cream, gluten free berry crepes, banana smoothie, vegan banana milkshake, berries, gluten free apple or berry crumble and custard, onion soup, to name but a few. The reason behind such a drastic idea is because I am currently in a lot of pain as I have an abscess in the area of my mouth where I mainly chew meat and hard things like that. I can’t shift sides because of medical reasons, my other side of the mouth/jaw is very weak and can cause pain which leads into the neck and ear as I had lifesaving head & neck and mastoid surgery 20yrs ago. The abscess was caused by dental floss slipping the wrong way and cracked my tooth a little; my dentist recommends NOT TO FLOSS, she says people who floss have more trouble than those who don’t, instead, we should swoosh salt water around our mouths rigorously several times and spend more time brushing then mouthwash, after using mouthwash, you do not rinse it out with water again or you made the mouthwash useless!

If you can give me some ideas of what I can eat during that time which is soft, low in sugar, lactose free, gluten free, flax free, and low in fat (as I have trouble synthesizing certain fats), then I’d love to hear from you!

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New Categories to be added and old deleted

Along with my updated blog, there will also be new categories to peruse in a few days and they are as follows;

Poetry & Song – This will no longer be placed in an A-Z category.

Short stories – I plan to write a new short story specifically for the blog once every season on average.

Writing life – what I do in order to write, my tips and guides to writing and my writing development.

Art I love – sharing links to art of people I am inspired by and what their work has invoked in me.

Defining myself – my journey to self-improvement in all areas of my life along with in depth insights to my goals!

Family Life – Updates about my family life, my household in general.

My mental health journey – talking about my mental health barriers and the lengths I have gone to try and conquer them and how they might help you!

Art by me – my own personal art I have done and how it was born and why!

Fan art & fan fiction – my version of my favourite works or alternate sequels I would have done if I were the artist and author, it is just my take on what goes on in my mind as a whole, nothing to do with trying to steal someone else’s limelight or putting them down, because if I made the effort of making a fan fic of your work, then that means you have inspired a large part of my creative brain to thinking about your work and how your characters and story has a part in my creative journey!  Basically, it’s an excellent form of flattery.

Photography – photographs I have taken.

Garden & Self-sufficiency – my garden and self-sufficiency updates, if all goes well this year, I hope to do as much gardening as I used to, but I am having problems with a particular neighbour who is rather sexually harassing and so for the past 2yrs in particular being in my own garden is very uncomfortable as he will stand staring at me with a huge grin on his face and his hands in his pockets for hours on end!    It’s really weird and scary! Especially as he makes an effort to actually stand and look over his fence as near as possible and then dives down to sit on a chair as soon as Paul comes out into the garden. Paul hates gardening and I usually do it alone, but since this idiot moved in next door, I can’t garden without Paul being there to make the guy go into hiding, as he seems to get shy around male company! The front garden is worse because he will stand blocking the shared pathway to watch me and there is noway of hiding from him there! I have some new privets I hope would grow to block his view soon – but it will take 3yrs to get to a good enough height. Paul thinks he is sick enough to observe from his bedroom window, if that is the case, then I will place a cherry or rowan tree as a canopy to block him.

Myths, Legends & Folklore – all the myths, legends and folklore around the world that I am interested in and have learned!

Reviews – reviews of books and movies I have experienced.

Cosmic Ordering – I am on a cosmic ordering journey too, trying to build the life I want in a very serious sense and writing about how that is going for me and how you can do it too!

Art Journal & Mixed Media works – I have got into art journaling and mixed media art recently, I am excited to start sharing this soon.

About me – this page is going to be expanded into a new category and updated regularly because as I am trying to define myself, some old aspects of me die off and new ideas etc take its place!

Pet updates – Pets are a huge part of my life, if Paul wasn’t so assertive with me, I would have a mini zoo in this house! 

Home Projects – I like to have a project around the house on the go, either painting a wall or stencilling it again, or reupholstering stuff, upcycling furniture etc., there is always something going on!

Diet & Health – I have new dietary needs since I have found out a lot of my health problems are due to food allergies, so I will be updating semi-paleo recipes, recipes are vegan dairy, gluten free, lactose free, etc., I say semi paleo because I love beans and will still indulge in those and candies from time to time, but being I do have a non-diabetic problem with metabolising sugar, I rarely have refined sugary candies anyway nowadays!  Also general health updates and fitness etc.  A huge part of my weight was because my mother is a feeder, she got me up to a huge size, I have lost a lot of weight since moving away from her, but for the last 4yrs my weight has stopped budging, it’s like my body has got comfortable being that size and has refused to lose more weight despite a calorie reducing diet.  You can’t live on 900 to 1300 calories for 4yrs without it starting to make serious issues occur, especially if you discover you’re no longer losing the weight!  I have lost 71 pounds since leaving my mother, which is amazing as I was pregnant during that time too!  But I still need to lose 85 pounds, to be regarded aesthetically OK – 114 pounds to be doctor’s recommendation.  But I remember being my goal weight before and to me, any less than that and I was too bony as I have what doctors regard an unusually petit bone frame, they are convinced I am going to have severe skeletal health problems in the future due to the weight I’ve lived with.

Brain drain – just brain dumps, I need somewhere to put them and here it is!

My inspirations – who inspires me and why?

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Major changes explained

Updates to this blog are aesthetic updates as well as content updates; in the future I hope to post not only my poetry, short stories, art and life updates, but also updates on my mental health journey:

In future posts I will show you how I am trying to re-define who I am, because in reality, I have never been the truest version of me, I have been severely supressed and it is a journey about unleashing the real me!

Everything about me currently and in the past are not my real choices, it is not the true or real me.  What I mean to say is, I had an abusive past and a past where I was controlled and isolated very severely not only by my parents, but an ex fiancé as well.  My current fashion choices, my general knowledge of the world around me, my diet and my habits and even to a large degree, my career choices and beliefs were all facsimiles of my abusers, not me.  I do still hold myself accountable for many of the things I have done in the past, because it was due to my emotional weaknesses that I allowed those things to happen and take place, but that does not defer from the fact that my abusers were abusive to me!

This blog will include how I am changing into the habits I want to have, becoming the person I want to be, fighting through all the pain and sickness and mental health issues I have to literally sculpt myself into something I want to be, rather than making do of the moulding that my abusers have made me into.

My sense of fashion, my habits, my diet, my everything is going to change so dramatically and I know I will falter and falter a lot, because I am changing my whole existence and current life, for something completely new, unexplored and it will be tremendous hard work, which is why I feel it needs to be documented online and hopefully I will build a support system from my readers to help me through the major changes I am about to incur.

I am 39 on my next birthday October 3rd 2021. 

Let’s hope that my honorary aunts are right, that life begins at 40!

Because for me, I am still only a baby mentally, I am still only new to life – because I have never been allowed to live.  It is very scary to admit a lot of things to everybody right now, that even though I have a child who is nearly 11yrs old and even though, I have lived away from my mother since 2009 and totally broke from her in 2012, I still have never ventured out of the house alone, without some kind of assistance or support from a relative or friend.  I have literally always had someone hold my hand when I left my parents, someone to speak up for me when I am in difficult situations and to be perfectly honest, it is annoying, because even though, these people are my carers and they are helping me to come out of my shell and undo the abuse my parents have done by prepping me for life – but they also misinterpret a lot of what I mean to say to certain people or they say things in their own way, which sometimes isn’t as clear as I would have said it.  A lot of the time regarding my health, talking to doctors etc, they forget things and me being me, would sometimes be too nervous to speak out and say well actually.

Though this aspect of me has got hugely better in the past 4yrs, the doctors are surprised by the progressed I have made there, because whereas they used to look at Paul for confirmation of what has happened, they are now starting to look and listen to me, which they see as amazing progress.

It is these points which make it difficult for me to actually contemplate a life in marketing of any form – but I need to have that life, I can’t sit back and watch years go by and have more and more regrets of not doing things just because of the stuff that my abusers have locked into my head.

It is to a large point, very stupid to actually know that the world isn’t as scary as my abusers lie to me it had been, that those bad people in society were actually them and they are rarer than they make out and they are actually the worse of the lot.  It is stupid to know this and still be scared of the world.

I read a book recently which is very timely – “The Midnight Library” by Matt Haig, about a woman who lived her life in regrets and got a chance to undo those regrets by having alternate lives, therefore getting a chance to redefine herself time and time again.  There is a quote from that book which resonates to me very deeply “life fright”.  There are other quotes from that book which really connected to me too…

“If you aim to be something you are not, you will always fail. Aim to be you. Aim to look and act and think like you. Aim to be the truest version of you. Embrace that you-ness. Endorse it. Love it. Work hard at it. And don’t give a second thought when people mock it or ridicule it. Most gossip is envy in disguise.”

― Matt Haig, The Midnight Library

“The only way to learn is to live”

― Matt Haig, The Midnight Library

“Sometimes just to say your own truth out loud is enough to find others like you.”

― Matt Haig, The Midnight Library

That’s what I am doing, saying my truth loud enough, to not only start to throw off the burden of my past and to heal from it, but to stand tall and let the world know I am here and to ultimately find my tribe as it were!

Future posts on this blog will include my new diet ideas, plans, because recently I found out a lot of my illness is due to the fact that I am allergic to a lot of food!  Gluten, lactose, eggs, pineapples, flax and beef gelatine to name but a few;

I will also include, my weight loss plan

My art and photography

YouTube videos I may start at the end of the year

My skill development and so forth

I am also watching copious amounts of self-improvement videos on youtube lately, especially Blush with me Parmita, a life coach! 

All this to sculpt me into who I am, not what people think I should be.

I my opinion I need to lose 85 pounds

I need to start thinking about makeup and changing my fashion not only to my preferred tastes but to make the best of my natural body shape, as for someone who is fat, I have a very strange narrow and defined waist and an envious shaped body, well this is the opinion of many people who have told me this, personally I don’t see it – but as I have learned from a lot of self-help books, you’re inner critic needs to be ignored as it never sees the truth regarding yourself.

I consider myself hideous in every single way, yet I get a lot of attention from people about how pretty and unusually young I look for my age – I have had people interested in using me as a plus size model and hair model, but I get really hurt and confused by this, because I just see a hideous monster in the mirror!

I don’t understand how some people reckon I look like Meryl Streep that totally confuses me!

I need to start becoming more independent.

I need to start doing more art and writing and actually getting it published not only on my blog, but approaching agents too, because I keep sitting back wondering what was that movie I wanted to watch again?  To then remember that it was a book I have in my head that I have written and the movie doesn’t exist yet.  My primary motivation for writing is that I enjoy it, but also because I want to see my stuff turned into movies – I know that’s pretty pie in the sky, but that’s my dream – I think ultimately I would rather make movies than write, but there you go!

I write the books I want to see acted out on stage or on TV basically; I write the stuff I wish there was more of.

So it’s a vast change, I am already exhausted just thinking about it, especially as I have such severe health problems, nobody, not even the doctor is sure yet, if something I have is terminal yet; covid19 has caused a lot of investigative delays!

But I don’t care if I live or die and yes, part of my mental health problems is the fact I have been struggling with suicide for the last 7yrs, primarily because I am sick so often that my life isn’t really worth living, because any movement is pain!  So I guess that is one of the major factors why I am going to push myself now, if I push myself into exhaustion and collapse by changing myself so quickly, then so be it, but at least I died trying!

So there you go, it is not a New Year’s resolution, this has been brewing for some time now, but now I have had enough!

Speak soon xxx

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