Tag Archives: depression

Open honesty and healing

Henry is my inspiration to keep on going despite the depression, Henry is my son and he turned twelve on Sunday.

Other than him, the other things which keep me going are things I have to work hard to find and think about – it can take some training to learn how to remove yourself from your present state and look at yourself as though you are a stranger or a friend. 

Most people can’t bear to look at themselves in a positive light, because most of them feel too attached to who they are, that they forget that everyone and everything is changeable and that if you just forget that you are you, for just a few moments, you can then see clearly and work things out in yourself. 

For me, I stand back and pretend I am as perfect as I want to be – I imagine seeing the imperfect me right in front of me (easier to do in front of a mirror) but instead of judging who I see, I imagine that I love this person tremendously, because they have potential that they do not see – that they are in effect = my child!  A child who is very sensitive and a child who has been treated badly by others, a child who you have rescued and adopted!

You have to see yourself this way, so that you act cautiously and lovingly towards this frightened, abused and mislead creature; because you are going to be the one who rescues it wholly, changes it for the better and you are going to be the one who will make it happy and healthy!

Don’t see this person as the adult it might be, see it as a very young child, because that will trick your brain, a good method in making it more believable would be to make yourself look more childish, dress the part and put a mirror at a lower level than you, so you are looking down (effectively making yourself look smaller).

This works for me at times, when I have the opportunity to be alone. 

For me, one of the biggest healing methods is the “inner child nurturing therapy” I have kind of learned about in dribs and drabs over the years.  Your parents were either good or not, but now you are an adult, you have to parent yourself and you must do it with the kindness of a good parent!

As a good parent, if something happens in your life that makes you uncomfortable or someone says or does things to you that makes you uncomfortable it is your responsibility to take it into hand and to tell the person that you don’t like it and to please stop.  You need to think in your mind, that this child needs someone to stand up for it and you are the only one who can do that, because this child needs to be saved from anymore turmoil.

In order to do this, you need to start understanding that you need to heal, you need to acknowledge the fact that you need change and that you and only you, can speak up about how things make you feel and to explain that this bad thing another person has done to you, is a trigger – so please stop.  If the person is a true out and out bully and they find amusement in this and continue their behaviour or it gets worse, then you need to remove yourself from this person or seek professional help via the police, because no one has the right to make you feel like a laughing stock for your sensitivities – no one has the right to do this to another person, so please stop taking their shit!

Would you tolerate a bully doing this to your adopted badly neglected and abused child?  If not, then why are you tolerating it for yourself?  What makes you different from that child?

Nothing, nothing at all!

You only believe you are worthless and you deserve it, because for so many years you have allowed other people to dictate to you how you should or shouldn’t think about yourself, instead of understanding that it is just lies to control you  in order to inflate their own egotistical needs!

So stop it, stop it now – stop feeding their egos – stop making them feel good, when you feel so awful!

Consider this…

What wonderful changes have you done to the world simply because you exist right now?

STOP THINKING TOO BIG ABOUT THIS ANSWER!

The little things count too!

I remember things I have done in my life that have helped others, without me, they would never have got through certain things – everyone on this planet has done this!  Only you were so busy abusing yourself that you didn’t realise and remember you did it.

I will give a few examples from my own life, which make me feel better about existing…

When I was 6yrs old a new girl came to join my class late in the year, she had muscular dystrophy and couldn’t make friends because other children saw her as very different, she was also mixed race and at the time this was still considered rather strange in the community I was raised in.  I was very popular in this school and I had a lot of friends, I didn’t like how people treated her and I told them all how I felt about what they are doing to her.

I told them I was very sad that people find enjoyment in hurting another person, especially a person who is so sick and very scared because she is new, that because they are mean to her I will sit with her and I will play only with her until they feel that they can be kind to her.

This changed and the girl became very popular too by the end of the week.  This young girl has always remembered me and she found me some years later to let me know that she is working towards a career in fashion now and she insists that this one day, changed her own opinion about herself and that it was because of me!  I never thought anything about it, because I left the school a few weeks later and literally thought everyone there would have forgotten me – but she didn’t!  She recognised me when we were in college, I didn’t recognise her, yet she still had her walking frame and though she did kind of stand out, I didn’t specifically associate this girl as her!

I have helped several complete strangers, one of which was an old lady in her eighties, she had her shopping bag on wheels caught in a drain and I was walking past and pulled it out without thinking.  She stopped me for a moment to thank me, and I said think nothing of it and walked off.  The old lady tried to call me back but I was late for work at the time and told her so – she eventually found me, it was easy because I was in uniform and she came to my workplace to seek me out and told my manager how nice I was to her and that she wanted to do something for me.  But I wouldn’t let her, she was so surprised at my kindness and said it was so rare these days that she tried to work something out with my boss.  But I wouldn’t let her reward me, she always remembered me as after this day, whenever we passed each other she’d say something friendly.

This same job place, there was a woman who was having a heart attack in store, she was frightened and the company said that in first aid situations like this, if you are late for your duties forego your humanity and get to your post – but I couldn’t leave this woman who was scared for her life.  I was reprimanded by the manager for being fifteen minutes late for the checkout services, but I wanted to go with the woman on the ambulance like she requested, but I was told I would lose my job.  She died, but later on in the week her daughter sought me out and told me what her mother said about what I tried to do for her and she gave me a gift.  Meanwhile, they spoke harshly to the manager about their mistreatment of me.

I also found a lost child, a young boy around ten years of age who couldn’t speak English, his mother couldn’t speak English either, when she found I was comforting her little boy and trying to find her, but her actions spoke louder than words.  Because she gripped my arm and bowed her head several times to my arm and I presume was thanking me wholeheartedly.  I think they were Chinese but I am unsure.  But that little boy could have come to great harm where he was, because he was so frightened he was curled up in a ball crying when I found him in a place where a car could have parked and hit him as in that area, cars often parked up onto the pavements without thinking.

I have also rescued a handful of people from suicide, spoke them through their hard time online (people I never met, but had online friendships with). 

A few people have also turned away from a life of crime because of comforting words I supposedly had said to them which changed their ways and even gave a child a father.  What I mean is, I had a friend who fathered a child and his instant response was to run away and pretend she didn’t exist because he wasn’t ready to be a father.  I told him to speak this through with his girlfriend and work something out together about it, because running away will only cause both his girlfriend and daughter to hate him potentially.  He told me he was brutally honest to her about how he can’t commit to the child but he will do whatever he can to help her as long as he doesn’t have to live with them.  This worked out fine for them and in as little as eight months down the line he felt he had value as a father and eventually moved in and married her and now he is a happy present father.

A lot of people mess up their lives because they are afraid of being honest, because they think that their honesty is going to make things worse… how ironic, it is usually always the opposite!

Whenever someone has difficulties in their lives and they need a loved one to fully understand, they normally choose not to communicate it and things blow out of proportion.  I often suggest, well just tell them, but the answer is always – “I can’t, because (insert irrational fear here).  Those who have felt confident to do so, come back to me a few days later, thanking me, because, literally – their fear was worse than the reality of it!

My attitude is this… if a person hates you for your honesty and mistreats you for your honesty, then they don’t love you enough to be worthy of sharing your life!

Believe me when I say, there are more than enough people in the world who will share your beliefs, your traditions, your ways and ideas, you have just got to make the effort in looking for them and the only way you can do this, is by living your life as honestly and as openly as you can!

That is the key to good relationships – open honesty.

Thanks for reading!

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I need to glow again

I’m dead inside

Like a robot I continue

I laugh and I cry, but it’s all a lie for I feel nothing at all inside

I pretend and I do it well

To you it must seem like Hell

But to me it’s a kind of peace

A kind of heaven

A place where my mind can leaven

A warm and quiet place

Where my mind is numb, but only for awhile

Whilst it heals and finds its pace once again

So I can once again smile

And feel it whole and great

Feel the love and elate

Whilst I spread the feeling around me

Covering all that I know

Melting all the hardness

Melting all the numbing snow

And fill the world with my presence

In an everlasting glow!

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I’m about to fall

Have you ever had a bad mental health day where you feel so down that when you walk around, you feel like you are about to pass out or that whenever you hear yet another bad thing turn up in your or your loved ones lives, you feel like you are about to drop where you stand?

I’ve been living in this kind of state for about a month now and it’s getting worse.

 I suppose if there has to be a positive note about it, at least I am not as suicidal as I was between 2013 and 2017, I suppose that is something.  But I can’t describe exactly why I feel on a constant state of near fainting, just because of mental stress…

This is one of the major reasons why, in spite of being physically ill, I have struggled to put words to paper for a while.

I have had two nervous breakdowns in the past, this is not like that, it feels different and the difference is scary!

It’s scary because it feels like I am so down in the dumps that my own heart is starting to pack up – because I have palpitations and my blood pressure is sky-rocketing even on Ramipril!

No I haven’t spoken to a doctor about it, because I don’t want therapy (of the mental kind), it makes things worse (experienced it, thank you).

The thing is, I have identified my problems, I have acknowledged what they are and worked out a method of overcoming them, but it is totally impractical right now, when I am too sick to do those necessary self-care essential things and what is more, I do not have the money to make one major difference possible.  You might say that money isn’t everything, but you know, for me, right now, it is a matter of if I have more money; I have a means to move out of one home and into another.

Now this is where the big Catch-22 comes into play!  You see, I know I need the money to do the major thing that will uplift me, but I am too sick and depressed to motivate myself to do it.  So until I decide at some point that I must suffer through the work in order to get some money, I won’t get through this!

I don’t have a support network that I can lean on and say… remove myself for a respite break from my current situation and get my thoughts together, then come back to it in a month or two – otherwise that would be exactly what I would seek out right now, someone who’d tolerate me for a month or two.

Because I don’t have that reprieve, I am more or less stuck, until my depression allows me to do the work I need to.

I am not using my depression as an excuse not to do the work, but if you knew how my depression is presenting itself right now, you would know that I am sleeping thirteen hours a day because I dread waking up each day, I wake up with the instant thought of “oh fuck it, I survived the night, how delightful” with the most sarcastic stance you can think of!

“Why, oh why, couldn’t I have drowned in my COPD mucus during the night?  What other kinds of shit experiences does the universe want me to experience today?”  Yes, I wake up with such enthusiasm.

Then I am made to feel guilty at 8:00am when my son bursts into the bedroom full of smiles and love for me and wishes me a great day, as he skips off to school!

Conflicted – much, I stay alive for him you know…

I think he knows it, he has planned as soon as he leaves school to become a father, so I must care for his grandchildren as a glorified unpaid babysitter for him.  Oh joy, no that’s not sarcasm, that is sincere, but then when can I feel that nobody needs me so I can just die?

That’s how I feel these days, I am literally plodding on like a zombie, one that is about to falter at any moment and it’s scary, but it is also exciting because… have I gone so far in my depression my body is finally going to give out?  Because, though I want things to get better for me, I feel hopeless, so in a big way, I am excited about death.

For those with a dark sense of humour you may find comedy in the fact that despite what I am saying here, I am drinking eight glasses of water a day, reducing sugar and fat wherever possible and has a mostly plant based non-vegetarian diet, meaning I do eat meat but it’s like 25% of my diet.  On good physical health days, which are not often, I do try and partake in high intensity interval training (HIIT) on my exercise bike and jogging or skipping on the spot five to ten times a day for 3 minutes a time.

To say I am not at war with myself would be laughable.

But that’s how it goes.

Thank you for reading!

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Increased productivity

Since learning that ideas and character names cannot be copyright protected and that generally creative license as long as your idea is as unique it can be is unlimited in reality, I have found that I am starting to write at my old pace again.

This is exciting, because I used to be a workaholic in regards to my daily word count and the amount of projects that I used to do!

In the past eight to ten years I have been very stunted as far as creativity goes, because of false information that was given to me from non-professional sources.  I have in that time been unable to produce more than say, twelve thousand words per week and I could only concentrate on around three ideas at a time and I completely gave up the idea of short stories and articles because of this!

Now, I am back to my old self again and it has only been two days now!

I am now writing towards a vast array of projects once again and I am thinking about restarting my short stories for my blog again soon and I may even start up my online magazine articles again!

I used to write a lot for online magazines and article websites a decade ago, but due to fear of coming across as a rip off from similar subjects by other people I stopped!  I never outwardly copied another person, but the subject matter may have been similar.  For example, back in 2009 I read an article about the increasing population of wildlife in urban areas and I did an article based on foxes in urban areas in particular.  This had no backlash, but I was riddled with guilt for a while over it and a friend back then, suggested that I was copying too many themes from others (not theirs)!

I told them that although wildlife in urban places is a shared theme, it was not a direct copy because our subject focuses within our articles were very different, but she made me feel that it was too obvious and noticeable, though it was only in our minds at the time, for nobody else suggested otherwise.

I should have listened to an older friend of mine, who is more professional in the article writing industry that what she said was nonsense and there was a defined difference between each of our articles and that it was clear to him! 

These articles were non-profit anyway, but my female friend made such a do about it, that I decided to stop.

She even affected my ability to produce wildlife photographs too, because again, she claimed that my wildlife images, although I took them myself with my own camera, looked too much alike to other professional photographers that I would be in the same situation even there!  That in her opinion, I would find it very difficult to prove that my photograph is not the same as their photograph.

Paul being a professional photographer in the past said to me this is utter tosh and that I can of course prove it because of the time stamp on my camera and on the memory chip!  My friend retorted and suggested that those things can be easily faked or photo shopped!

Paul didn’t want me to give up my photography and articles, but I did anyway, as I was getting a bit too stressed out by all of it and other personal things in my life at the time!

But now, because these things are now confirmed or dismissed by professional friends I have been making it has lifted a huge burden from my creative shoulders.

Honestly, overnight my depression has lifted by at least 50%!  The tension in my back is much less; it is so weird how some kind of belief like this can actually physically manifest itself on your body like this!  I am beginning to wonder if some of my health may actually improve now, because of this too?

Hope so!

So it has only been around two days since I learned this and my writing amount has increased dramatically.  In the past two days I have written approximately 6k of words towards projects, a nearly a 5k increase to my usual amount when trying to work hard, from how I have been for the last five years in particular! 

Anyway, Happy reading all!

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What is my secret?

There is a new category I have created today, called “Diary”.

This is not going to be updated daily, but will be as often as I can.

You will find out more about me and my life day to day, it will mostly focus on my mental  and general health more than anything else.

Why am I doing this?

To be honest I have no one to get certain things off my chest to, plus, I want people to understand mental health better, not just mine, but how it affects a person who lives with it as a whole – their ups and their downs and what helps them when they are this way and what things can make them worse!

I also want to show you how my mental well-being affects productivity. Sometimes I throw myself into my work and other times my mental problems make me hate my work altogether and the mere idea of writing anything just makes me cry.

This is not because I hate writing or I feel that my writing is failing in anyway – one thing I have kept to myself, one big mystery that people are trying to understand about me and I have never been open about before TO ANYONE until now – it’s like a coming out, but I have a personality disorder.

Yes, people know I have mental health problems, but I have always leant to telling them it was mostly anxiety and recovering from toxic relationships from my past, this is true!  But not the whole story!

I have a personality disorder, a type of schizophrenia, I have anxieties, body dysmorphia, eating disorders that are erratic from gluttonous to starvation, and it depends day to day!  I am severely co-dependant – suicidal – manic depressive – there is a lot to know about me.  Day to day I even change my whole personality, what do I mean by that? 

Well I consider myself bisexual, I mostly love being female and trying to be as feminine as possible, but some days I wake up and I want to cut my hair short and dress like a man, I feel more masculine at times, then I regret my decisions and go back into dark thoughts, because the mostly feminine me is back again.  I don’t have the money and the resources to change the way I look dramatically day to day to match my fleeting desires.  If I ever won the lottery it would be so much easier to just say, cut my hair, but a ton of wigs and buy all styles of clothes I love, just in case I wake up wanting to be like that tomorrow. 

I don’t really know what this disorder is called, if it is a disorder at all, because although I have had therapists in the past for other things, I generally try to avoid any psychological help as much as possible, because I don’t want to be pumped full up with drugs.  Various therapists in my past have suggested oodles of medication for me and I have refused – only to have them look me stark in the eyes and say, that if I actually do harm myself or another person to hospitalisation, then I will have the choice taken away from me!

I do self-harm, but not enough to become hospitalised… yet.

There are times where I am super social and I love being around people, but occasionally, though it is not that often, I just want to shut myself away and completely ignore the world.  There have been times where I have been so used to living in a forced isolation (by toxic relationships in my past) that self-isolation comes so easily and I don’t fall apart like other people do when I do it. 

I am also a germ-o-phobe, because of this, I am terrified to go out since Covid happened, because I have had pneumonia five times in around four years or something like that.  I have only gone out six times since March 2020, to a doctor, a vet and the dentist.

All of this is the primary reason why I have not approached publishers and agents yet.

I will do so eventually and this is not idle talk, because I have a couple of good online friends who really believe in me and they are trying to teach me how I can become a published author, without being thrown too much into the deep end, because of both my disabilities and mental health problems – people who are actually within the profession themselves.  Whether they will stay true to their word, who knows?

But this is the big mystery about me.

Not much of a mystery now is it?  Just a revelation about just how sick I really am.

This is why at times my posts can seem very flighty – I find it easy to control at times how I behave around people, but it is all too easy to be spontaneous at times and post things without thinking about it first. 

Most of the subjects I talk about are very controversial and I have never really learned how to behave and react around certain subjects, purely because I have been socially isolated my whole life.  I am not using this as an excuse; I am telling it how it is.

I am a person who can seem heartless and blunt in certain subjects at times.  I am one of these people that when I am in social situations I am often put into a situation where I have put my foot in it again – I tend to leave early and beat myself up over it for months!  Some people are very forgiving and understand and have told me not to worry, but still, months down the line I am still punishing myself for my stupidity.

I’m not a loose cannon in the sense that I am overly insensitive and gun ho – but I am in regards to not thinking about how sensitive a subject can be for others.

Yes, this is an indication about my recent poll on here that I have now deleted.  But I had hoped that the poll would spur on a friendly discussion about why such subjects pertaining to “suicide” as a theme for a book was so controversial and disgusting to readers and publishers, when someone like me who struggles with such a thing day in and day out finds reading characters who are suicidal, helpful in my own problems.  I need the world to try and come out of their little boxes and help me understand society, because I have been shut away my whole life!

Is this so difficult to understand?

Is the concept of a person staying inside their house day in and day out and not socialising much their whole life offline –  so alien to so many people that they cannot even empathise with the stuff that a person who has lived in such conditions haven’t experienced or learned to become?

What I mean is – when a person has been socially isolated their whole lives, they have never had the opportunity to learn from their mistakes as a child; to grow with a society and understand the rules that others take for granted.

I am in that situation, have been my whole life and I tell you now; I am puzzled by how “normal people” are and how they behave.  I am puzzled by how society has progressed how it has, because whenever I have smiled at someone in a waiting room, they look at me nervously and back away, whenever I start a general conversation in a queue at a shop I am ignored or get a sarcastic remark as a reply!  When I used to go to the school gates to take my son to school, most parents couldn’t be bothered to talk to me, but would talk in their small circles instead.  I am confused how people have friends outside of their families basically, when in my experience, nobody wants to talk to a stranger!

How the fuck does society do it?

I am never rude, I am never gross, I always start with open ended questions, like self-help socialisation books tell me to, I never pry with personal questions.

I hate to say it and I could lose what little friends I have over this, but the only people who have maintain contact with me when I have done this are people with social awkwardness themselves who are more than thrilled someone has spoken to them first hand and they didn’t have to approach me first!

Out of desperation they invite me to theirs for a cup of tea, or in some cases a mutual café or library meets up, before introducing each other to our homes.  I understand them, I feel the same when someone approaches me – I feel honoured someone wants to talk to me, oh my goodness, someone has spoken to me, try not to screw this moment up Tina and say yes to anything they suggest if it sounds nice!

I know I sound like a sad pathetic moron, but people need to understand how it is for some people.  It is hard enough when you have social anxiety and mental health problems as it is, but when you throw in thirty three years of social isolation, it is unbearable!

Especially when you do socialise with people who have nothing better to do than to try and ruin your life, wreck your reputation before you’ve even got one and is just downright bloody nasty and manipulative to boot!

Because of my mental health and my lack of social hardiness, I have found some very rotten people who have introduced themselves into my lives more than readily in order to manipulate me for their own pleasure and amusement and in turn, it has damaged me more and more.

So this is the mystery of The Tardy Creative, Tina Victoria Cousins.

This is who I am, in my rawest form and these are my challenges I am sharing with you!

Happy reading! 

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It’s my birthday and I hope for better things!

It is my birthday today I am thirty nine and I hope that the saying “life begins at forty” is a true one!  I hope so much that with these emergency appointments I have at the hospital etc. is going to fix something and that I can have a normal life again!

There are so many things I want to do with my life, but when it is a tiring task to just get dressed and maybe vacuum a room in a day at most, it is hard to see past that.

Things I would love to do if only the health was there… obvious one would be study and work outside of the house.  I miss people interaction and I love jobs where I am in the service of others, not just my creative pursuits, of course I love my creativity and it would be lovely to have a job where creativity is a must, but generally I love jobs where I feel I am needed and relied upon for things – particularly hospitality.  I am a lovely meet and greeter, always happy to help, with a bubbly personality, professional manner and experience as head of admin and customer services. 

I often wonder if Sue Holderness remembers me, during my short time as Christmas staff at Marks & Spencer’s she would always gravitate towards my till because she said I was pleasant and she often added points to my services as Marks and Spencer’s have a point system in play for their staff to see who is performing well.  I was only there for a few days over one particular Christmas; I doubt she’d remember me!

I used to love work and if I had been allowed to keep my jobs in the past I would have.  It sounds funny to say that, because it is not a normal thing to say – but it is true, in the past many times I had a lovely job I loved dearly, but I was forced to give it up as it didn’t sit well with my mother.  For those who are new to my blog, I was micro-managed within an inch of my life by my mother who tried to isolate me for years and I only managed to get her out of my life fully in 2013, when I was twenty nine, just shortly after Henry’s 3rd birthday in fact.

Thinking differently these days, I may not go into hospitality if I had the health back though, I have other ideas.  I am not sure if starting university for a science degree and to have a science career would be something someone my age should really consider.  But it is interesting; I have an unnatural curiosity and obsession with microbiomes; but maybe that is more of a hobby thing… like gardening?

I had thought, what I would do if I found out my health problems are actually curable even if it is by 50% – I had thought what would I do with my life now?

Obviously still write and do art, but what else? 

I had thought about the concept that my lungs may allow me to once again do music and singing again and if it did, I have to say musical theatre pulls me;  Particularly writing operas or comedy musicals for the stage.  One of the things I have neglected about myself a lot since becoming ill is my love for music to the extent of practising my instruments and composing becoming non-existent.

I miss musical composition more than I miss the idea of sitting down to write a full length novel, to be honest… well a full length non-vampire or dragon novel that is.

I do know I miss sport a lot too, I was very active before getting sick – walking an average of nine miles per day, just for the fun of it and also because I am a cheapskate and walked everywhere for the sheer economy of it.  I love bowling, basketball, jogging, and cricket and wanted to take up rock climbing, to name but a few.  But one thing I did really want to get back into and that is dog agility training and judo.  I am also a true water baby and twice I nearly got into the commonwealth games in my life, once for swimming and once for judo, but shit happens.

The commonwealth audition was cancelled due to emergency life-saving mastoid surgery, which consequently ended my judo career before it even had a chance!

The swimming for the junior games was cancelled because my mother wouldn’t let me go and stay the night away from home without her and made me decline.

I know I have to think about practical things, but I do like working for charities, at least half of my previous jobs were helping disabled people, particularly those with mental learning difficulties or brain injuries.  I have a passion for helping people and fighting for their rights to lead a dignified life!

I have been in a situation myself where I have been in special needs schools for a few months in between home schooling, I also have a long history of mental health where for four years I had to go to a day care centre at Napsbury hospital for treatment as a child and schooling as well as being in a very physically vulnerable state with sensory deprivation for nearly two whole years!  I have seen two sides of people who are supposed to be “carers, in caring jobs” and it is not all good.

I went through a time as a child where I was absolutely terrified of all men, except male relatives who were close to me, I wouldn’t speak to anyone if they were a stranger for at least ten or more visits and I went into strange bouts of bulimia, anorexia and compulsive eating throughout most of my life – this cooled off a lot when I met Paul.  I was spiralling into food obsession for three years before I met him.

It is totally weird how, now I am away from the stresses which dictated my eating habits, that I have developed a sickness where I can’t eat a bunch of specific foods without pain and vomiting and some people who remember my past, have asked me on the quiet, “it’s not your old thing again is it”?  I still maintain some friendships distantly via facebook and pen palling with some of my day care compatriots, who remembers a the time where I ate half an orange and a quarter of a cheese sandwich without rushing to the bathroom and they celebrated it for me, whilst I just sat there frowning and grimacing at the fuss and the taste.

I will say though, that I am becoming more and more of a picky eater despite the dietary restrictions I am under because of my intolerances.  This does worry Paul, because with our current budget, he is struggling to provide for me.

I must maintain a gluten free and lactose free diet, I cannot eat flax seeds, I can’t have too much sugar in a day, I minimise citrus fruits, I can’t have soy, I can’t have vinegar unless I want pain (who does?), I may have a mustard intolerance as recently I am reacting against mayo and a couple of other sauces which have mustard in, I can’t have pineapple and I can’t have anything too fatty and if it is fatty it has to be because of olive oil, I must be careful with eggs, no more than 3 times a week!  I can’t have too much coconut produce either; I can only eat small amounts of beef and no more than twice a week!  I shouldn’t have tomatoes everyday either, but that one is a hard one to surrender as I like tomatoes almost with everything!  But ideally I should never have them according to doctors.  I can only have two Brazil nuts in one sitting before strange things happen to my mouth! I can only have a beverage with tannin no more than once per day and preferably not at night. So, yes, I am not fussy about all of these, this is just the foods I can’t have because my body will hurt me a lot if I do!  Because of all of this, I have according to the doctor a very low salt diet, because I don’t add salt to my cooking and he told me I need to start, because my levels are too low at times and could account for the cramps I get!

So, as perplexed as you all are, I know you are, because I have seen the faces of offline friends when I mention this to them – what the fuck do you actually eat then Tina?  Food, to put it bluntly, proper, wholesome, mostly unprocessed food, weird isn’t it?

It’s the reason I love sauerkraut so much, the salt my body needs, the cabbage is really good for you too and you get added microbes for your gut!  Ironically, my health is slightly improved for the gherkins (dill pickles) and sauerkraut I eat these days, without that being in my diet three times a week, I would actually be a lot sicker!  I know, I tested it out for a whole month and it thwacked me hard!

I think the unhealthiest thing I eat these days is the local chippy once a fortnight, because I don’t eat their battered fish, I prefer their kebabs without the bread that is!  They have their own oily sauerkraut with gherkins and pickled jalapenos and its sheer heaven with their homemade chilli sauce!  Their meat is also homemade, so they guarantee it has no gluten and lactose and they don’t spice it as much as the places in town, so it’s just like fatty lamb pates really.

My most usual food to eat for dinner is gluten free pasta with homemade chicken arribiata, pan fried salmon stir fry or sausage and bean casserole with mashed potatoes.

My most usual food for lunch is, fried tomatoes and mushrooms with gluten free toast, a smoothie, vegetable frittata, or Ham & lacto free cheddar cheese ploughman’s sandwich with gluten free bread, I know the sweet pickle has a bad product for me, but it is so little my body hardly notices too much.   I don’t have celiac disease apparently, it is an unidentified IBD.

My most usual breakfast is, air, or very rarely cinnamon gluten free porridge or just homemade fruit salad.

My snacks are nuts, celery, carrot sticks, lactose free Nutella with gluten free digestive biscuits or rice cakes, pancakes with said Nutella or lemons or honey or maple syrup or fruit compotes, fruit, or smoothies, rarely jellied pick n mix and crisps purely for the low salt days. 

When finances improve, I am excited to ditch a lot of the above for things I really love!  Such as honey nuts, dark chocolate with fruit in, fruit leathers, chicken legs, kimchi, , king prawns and the expensive fruits and veg like avocadoes, coconuts, pomegranates, figs, chickpeas, mange tout, things someone on my budget consider birthday or Christmas treats!

Well it’s a life I hope that will happen anyhow, I am trying my best to fight through it all and get that life, even if my body does seem held bent on killing me!

Happy reading!

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A scary thing happened today…

I have had ever decreasing health since 2013, little by little my body has taken more and more of life out of me; each day there is something new I can no longer do, or I have to get used to.

Today I woke up fighting, literally, fighting for breath as I coughed up copious amounts of thick white mucus, something I have unbelievably gotten used to in the last five years and though my throat was raw, I avoided my first beverage of the day for nearly ninety minutes, because I knew it wouldn’t stay down.

I got angry with myself for being like that and knowing that this mucus will take a couple of hours to clear and it was getting in the way of what I really wanted to do, I started to move around the house, clasping onto furniture as I struggled for breath, to try and get washed and dressed in spite of it.

I noticed something I never noticed before; my mucus was clearing faster but in bigger globules and although for tens of seconds I couldn’t breathe at all, it was coming at a faster rate.

I woke up around 10am, I didn’t sleep until 5am; I managed to get downstairs by 11:25am, something which in recent months is very unusual!  I wouldn’t be downstairs until 1:30pm on average, simply because my lungs would dictate the course of the day. 

This could be a one off (I have plenty days like those), but it could also be something that could make me function sooner rather than later in the day if it is not a one off. 

I was happy that by 12:30pm I could contemplate breakfast, or rather lunch as it really would be to normal everyday healthy folks.  I felt my chest had cleared enough to keep something down – another thing which is getting more and more debatable as years go on.  I am losing a tremendous amount of weight, size and muscle mass because of the sickness.

So, I made tomatoes on toast with some black pepper corns.  I wasn’t sure I’d eat two slices of toast, but strangely I did today and I kept it down.  What is more, was the fact that I ACTUALLY MADE IT!  I washed, cut, sliced and fried those tomatoes myself with no help at all, I insisted.  Things went well but then I got a little cocky after lunch had settled down and I attempted to do more.

I decided, you can’t get decent sauerkraut from the supermarket, it has to be homemade!  I wanted sauerkraut with my chicken in a wrap and salad tonight for dinner – I had that too.  But I didn’t complete making the kraut myself.  I cut the vegetables and surprised at how weak and out of practise I was doing it and it hurt, it hurt a lot, especially the kneading of the salt into the cabbage and carrots for enough time to make enough brine for it to be storable. 

Halfway through making the brine, I broke out into a cold sweat, really bad cramping pains overtook both my shoulder blades and my heart started thumping hard and I felt dizzy.  I had to go sit down and Paul had to finish the kraut for me after he took my temperature, which was 35.3, unusually low as my temperature usually sticks to around 36.8.

The pain was quite bad but it subsided after fifteen minutes rest, I nearly felt the need to go to the hospital!

I am angry and depressed I didn’t get to do what I wanted to do today, even if I have done more today than I normally would do in a day since 2019.  My life has been completely sedentary since autumn 2019, purely because I am getting sicker and sicker.  Paul is scared, but he doesn’t take me seriously when I honestly tell him, that I personally think I am dying!

I have no proof that I am, but with how I struggle to do the little things now, it makes me wonder?

I am writing this in bed at 00:33am, the day is now over and a new day has already begun.

I have been dreaming recently of large pumpkins with white bottoms and dreaming that I am dying and being made comfortable by a strange bald headed man.  Whether or not I am scaring myself about my health that it’s making me dream such things or whether or not the dreams really do have alternate meanings – who knows?  I read up online that kabbalists take dream interpretation very seriously and it is a fine art – my two types of dreams mentioned above, both mean similar things.  It means that I am metamorphosing, changing, it’s a positive change, a renewal, recognition perhaps or success?  Medical help could be on the way and my life could change through that, or I will develop a new coping mechanism for what is going on with me?

Who knows, but if the kabbalists say it’s positive, I hope they’re right!

Happy reading!

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Update on whereabouts

Where have I been again?  You may well ask, originally I couldn’t type for around 3 to 4 weeks because I somehow injured my hand, I still don’t know what happened to it.  Woke up one morning and couldn’t use it, it was so painful and I had to even change my diet to accommodate a spoon fed way of eating. 

I couldn’t use my other hand as a substitute and go down the route of cutting things with forks, because that hand is permanently disabled and doesn’t work well due to being deformed. 

I then caught a very bad head cold that made doing most things difficult and then a chest infection.  During the chest infection something then happened where my shoulder and arm lost its entire strength and I was lopsided for about 2 weeks, as there was a noticeable slack to my shoulder muscle. 

I gave up trying to do anything to the blog after all of this for the last 3 weeks because of the summer holidays and everybody who is a long term reader here knows how difficult I find working with Henry home as there is little support in keeping him out of my hair.  Not to mention, that Paul is also badly injured, so couldn’t take Henry out for walks and hiking like he’d usually would.  He has an Achilles problem we think, it’s hard to tell as he won’t see a doctor about it.

Henry starts High school for the first time on Friday and he is dreading it.

Henry has been having a lot of emotional problems in the past couple of years, quite serious anger and depression issues, but school so far has poo-pooed this as being something caused primarily by Covid isolation, but it was something that was building up around a year or two beforehand.  Since Henry was eight years of age, he has been having suicidal thoughts and that unnerves me because I have never ever known anyone as young as that to be that depressed and is not trustworthy enough when he is angry to be around sharp objects!  There is surprising little support about this primarily because of waiting lists and Covid didn’t help with that.

Until Henry actually attempts to physically harm himself in a manner of which can be officially proven, Henry is not considered an emergency case, even if he does punch himself in the face and chest really hard, because the bruising is not sufficient (whatever that means) he can wait.

Henry’s life, I admit has not been an easy one, it is no wonder he is growing up to become an angry and bitter soul.  He is a member of Warwickshire Young Carers because he has me (a sick mum) and a sort of elderly father.  Though I impose no care routine on Henry, school felt that the young carers could give him emotional support because his mother’s health and future is uncertain.

Along with this, Henry has experienced a lot of death in his father’s family and the majority of family communication from Paul’s side has stopped because certain people have passed away or they have their own illnesses or problems and cannot commit to visiting more than once a year on average.  In Henry’s small life, he has heard of nine family deaths, and four serious family illnesses.  Four of the deaths affected Henry directly because three were his main child carers when I went in and out of hospital.  There is no one we can rely on for that anymore, so basically I have to skip hospital appointments if they coincide with Henry’s holiday times.  A family friend also died of Covid recently.

Along with this we also have a problematic neighbour which makes Henry nervous to go out into the garden anymore, in fact, so do I.

I’d like to move but Henry doesn’t and Paul respects Henry’s wishes on that.

Because I don’t feel safe with this excessively nosy, rude and obnoxious neighbour, Paul and I have planned to get a dog.  We did organise a border collie with a farmer, but the breeding went wrong and they only had 2 pups which survived the birth and we have to wait another two years.  But luck has it that we may end up by Christmas with a bloodhound, because a local man wants to give away a couple of his pups to a good home for free and he said he won’t want them to go before they are 6 months of age.  It is likely to be a female bloodhound and a solid colour, very light brown or as the man calls it, yellow.

In the past I was very skilled at training dogs and was once offered a position as a police dog trainer but my mother made me turn it down, because I have to bring my work home with me and she didn’t want extra dogs in the house.

A bloodhound will be a new experience and I have done a lot of research on the breed to see if I can cope.  Physically maybe not, but if all else fails you can walk a dog with a disability scooter, lol.

But I think… though Paul disagrees and thinks I am way too optimistic…. That I am only as sick as I am because I am not motivated for doing things for myself.   I live for others; I have never lived for myself.  Paul has always endeavoured to take a lot of my responsibilities away from me because he wants to indulge in caring for me and also Henry.  So Paul doesn’t need me and neither does Henry, every time I try to do something for either of them, someone else takes over.  I guess that’s why I am so sick, it’s a form of depression – I don’t feel needed.  I don’t feel I would be missed.  I have absolutely forbidden both Paul and Henry to do anything with the dog if we get one.  Because I think, I need that needed feeling back again and I think a dog is the answer!

I am trying to find new ways to feel needed.

I know I sound like a sad bugger saying all this.

But I need to try to find something that makes me feel that I have some value.

So, I have a webcam and mic now – I am researching skill share and other things about how to set up a YouTube channel and how to create an art and writing business.

I am hoping to start the YouTube channel by January 1st, perhaps sooner; I don’t know how long it will take me to learn all this technological stuff to do it.

I’ll keep you posted.

Thanks for reading!

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Health update 12th June 2021

Because I am spending more time in bed due to my immune system having a major crash for the last week, nearly two weeks now, I have re-established my addiction to Codeword puzzles.

I seem to be completing them faster these days; I am starting to become a bit more of a word geek than I was before. 

Also, I tried to get back into playing online word games such as word tornado and scrabble on my laptop in bed as I decided I could do things in bed on my laptop as at least I would be more productive than just watching YouTube videos on TV and reading books.  But guess what?  BT decided to update this areas exchanges so internet connection has been tetchy and almost non-existent, so I can’t do that or watch YouTube on TV without a disruption every 15 minutes.

I thought only last Thursday to do this, take the laptop upstairs, play word games and update my blog in bed as I don’t like how my illness dictates to me how much work I do, because I’d rather work downstairs on the desktop computer.  Friday afternoon BT alerted us for the coming week that they will be updating everything and they apologise for any disturbances that they might cause during this time.

I would say “typical” but I am not that kind of person, because I know that certain thought patterns can affect your reality and make things happen.  But I do take it as a sign that Paul is right about the universe trying to get me to rest, because it is hard for me to sit back and rest entirely.  I have never been the kind of person who relishes in relaxing and living with Paul has been an education in that at least.

So, I am here, on my desktop again, only to update this blog and have my dinner before going back up.  I am having a really bad day with my arthritis, inflammation, ear infection and migraine.  I can barely eat because my IBD and IBS is bad too, in fact it is becoming a major concern for Paul and the doctors, because I am now eating in deficit, I am losing inches but not weight which is also confusing.

Since Christmas I have lost 3 and a half inches but no actual pounds, it is visible loss but not scalable other than measurements.  I am not exactly changing my diet either, I just physically can’t eat a whole sandwich anymore, I am having what Paul terms as micro meals or not-so-posh-nouveau-cuisine, just to eat something.  Thing is, I really need a tiny half tea plate of food around 5 times a day to be at the calories I need, but I only really get around 2 now.

My mother if she knew about this wouldn’t believe how little I am eating lately and it’s not by choice, it’s because of pain and the inability to keep things down.  If I eat a whole sandwich, I will vomit some of it back and that’s not bulimia, it’s just my body rejecting it.  I have a stupid amount of vitamin and mineral tablets I have to take daily because of this.

I joked to the doctor once about how I must be the only fat person they will know to die of malnutrition, in fact they shocked me with their reply; “it’s more common than you think”.  He said.

Let’s put it this way, my mother used to serve me up 6 to 8 fish fingers with 2 or 3 fish cakes, 2 slices of bread, half a can of beans and half a plate of chips as a regular once a week meal.  These days, she doesn’t feed me; she hasn’t seen me in years.  But now if she still knew me she would be shocked that I could only be served 2 fish fingers, two slices of bread, 1 fish cake, 1 spoon of beans, 1 tong serving of chips and I won’t eat everything before my stomach plays up!  This is a bad example of my regular food intake, because that is what I am eating today.  Usually I have stir fry, salad, and veggie frittata (despite egg problem), casserole with veg, or chili (for some reason my stomach can cope with chili despite the disease, which is baffling to everyone).

Yesterday I had quinoa, with beef chili, loads of Mediterranean vegetables, yesterday’s meal was the biggest meal I ate without a problem all week, but I still only ate half of it, but at least it was around 800 calories.

Which was a big contrast to the day before that, as that dinner was 2 slices of vegan cheese on toast, onion, tomatoes, peppers, and a side of celery and carrot and that was it, I couldn’t eat anything else the whole day!

But this has been normal for almost 2yrs, just got worse around 3 months ago.

I’m permanently exhausted and in pain and I am bruising way too easily too.

In a nutshell, my life sucks.

Happy reading!

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Am I wrong? A poem

I don’t like life

It hurts too much

What is the point of living if I can’t do such and such?

Why am I here?

Why do I live?

What does a person like me have to give?

What is the point of carrying on?

So I can sit and write you more depressing songs?

Or tell me please… am I wrong?

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