Tag Archives: cancer

Price of ink and financial rants

My situation is such that when I write I will print off as I go along, because I don’t trust clouds and data saving technologies, because they have failed me numerous times before.

Recently my finances have become worse and this has affected my novel writing more than anything, now I am able to get back into novel writing since I had Covid, it has meant that because of the decline in my finances I can no longer print the seventy pages a week I used to, I can only afford to print twenty a week at most and one week in the month, nothing at all.

If it is novel writing, I will print it as I go along, because of two reasons – I do not trust data saving technologies and I find it difficult to read and edit from a screen, whether I create a blue background to read from or not.

It’s frustrating because I want to write towards four ideas immediately and I can’t write by hand anymore because my arthritis is getting bad.  Every time I write more than an A4 page of handwriting, my hand swells up to the extent I can’t properly hold the pen anymore and if I ignore it, the cramps come on.

My arthritis has meant I have had to give up my knitting hobby altogether, because not only does it exasperate the arthritis, but it has also reawakened my carpal tunnel problem too!

I miss knitting, because of the style of gloves I used to make for myself and the scarves – because the style and colours I like can’t be bought cheaply, like it can be made!

I don’t have the money to buy a knitting machine or else I would do that, I also liked making toys for children I knew, but now I have been thinking about learning felt crafts or sewing the toys instead – because for some reason or another sewing doesn’t affect me.

At the moment we have a printer that is breaking down, because it appears not to be getting a hundred pages per cartridge anymore and we can’t afford to replace the printer for at least a year.  The cost of the ink is always £15, cheap in comparison, but for us it’s three days meals.  We’re near the brink of needing food bank help again – and no Lee Anderson, I can actually cook thank you very much, in fact I cook most things from scratch and manage left overs very well so there is never food wasted here!

Amongst my cooking skills are homemade pies, cakes, soups, casseroles and pasta dishes, not to mention the fact that I have been fakeaway cooking at least ten years before it became “fashionable”!  But when your colleagues Mr Anderson insist that because I have a bus stop outside my house which is within the walking distance I can do without an asthma attack they cut my mobility money by £100 a month, which meant that I could no longer afford to manage the finances which included getting medical help to try and get me back on my feet (in order to work), because you took the money I needed to travel to the local hospital 20 miles away in another town, which costs me £20 a time and I need treatment around twice a week quite a lot of the time – which meant I had to decide to become anorexic and get treatment, or just give up fighting to get my life back and make sure my family doesn’t starve to death!  Which one would you choose? 

Because when I had to do the above we had £10 for the week for food and I often had to cancel at last minute the doctors, because I couldn’t afford to get there – because doctors don’t house visit anymore, no matter how poor you are!

Along with this, we’re still not getting a lot of free stuff sending our child to school.  We had to cancel his eleventh birthday last year and all household birthdays and have the crappiest Christmas ever just to save up to get him school uniform for his new secondary school, because you can’t get it free here and there was no way in getting second hand, we checked.  The child gets reprimanded at the school if their uniform is not complete, whether you can prove poverty or not!

We would love to give up the internet in order to get £6 a week more in our pockets to eat better and maybe get some medical attention – but that would mean my son can’t do his homework so losing the internet is not an option for us!  The irony is, they say that they are doing more and more for kids in poverty these days, honestly I don’t see it!  His meals aren’t free at school; it costs him an average of £3.50 a day for a hot meal in winter.

Don’t you dare blame the poor for poor management!

Free schools, meals in schools, the NHS was all originally created for the poorest in the community, but these days the poorest in the community are not reaping the rewards of yesteryear, it basically is slowly turning back to how it used to be.  Everything is slowly privatising again and they think we don’t see it!

I don’t normally turn my posts into political rants, but this Lee Anderson has a lot to learn and remember about the society he is trying to lead!

Funny thing is, despite being bed bound and housebound sick for around twenty weeks of the year, I could work, at the pace I can.  There is some work I could do, but the problem comes with practicality – I’ve tried slogging on looking for a job outside of the house whilst managing my sickness and nobody wants me!  No one wants someone part time three hours three days a week, even on a check out, because I have ailments which embarrass the company!  I have what appears to be a permanent streaming cold!

No one wants to work alongside someone who is sniffling all year around and then needing three weeks off four times a year because she can’t even get to the bathroom she’s so sick!

So I told the benefits OK, there are other things I can do, I can write, I can do art, I can upcycle things to sell, help advise me in how to set up my own business to do that and teach me what I need to know to run a business from home.  They won’t.

But understood only this… you said you can work?  OK we’re taking your ESA away and making you go to job search centres five days a week all year around and if you don’t turn up for three consecutive days because you are sick, we’ll pull your benefits again and it will take six weeks to reapply for benefits again, meanwhile there is no transitioning money…

So, who is going to opt for all their amenities to be switched off and starving your family for six weeks solid?  What sort of incentive is there to actually get your ass off benefits if you are sick?  What kind of incentive do they give the sick to try and work out their own ailments in order not to be a scrounger?

Because seriously, this is how it is here!

So people who call sick people on benefits scroungers, talk to your government about their crackpot schemes, and don’t go attacking us!  It’s not our fault!  Most of us would love to be independent and work and get even £5 extra a week in their pockets, because no one likes going through those humiliating interviews every year!

Paul and I had thought about going to Ireland as they take care of artists and writers on sickness benefits more than they do here in England – but lately we’ve seen the news, there are political issues cropping up – will we be welcomed in Ireland?

I know my great grandfather was Irish (from Roscommon) and I know that genetically I would be accepted with opened arms, but it’s still looking complicated…

I am very frustrated, because there are lots of things I need in order to get myself a job and there is absolutely not help at all and the money is being cut again and again, to the extent, that I haven’t impulse bought a thing since 2017 and I am losing a huge amount of weight, but can’t afford to replace my clothes as the weight falls off and I am looking ridiculous!  I have lost four dress sizes in nearly a year.

Doctor says that they don’t find that a worry because I was so large to begin with.  I was a size 28, I am now nearly a size 20, they won’t worry until I am a size 12 potentially – potentially I might be dead by then, before they investigate why!

They know I have an IBD because of my high markers, but they won’t investigate until I literally start screaming in pain at A&E, seriously, been told that, NHS is so badly stretched financially that they are now only dealing with life threatening conditions as they appear, cancer not one of them, government recently warned the UK that if you get cancer now, you are more or less fucked if you rely on NHS!

Also, I have a new cholesteatoma growing in my left ear, but my ENT specialist said his department is in so much debt right now, he will not deal with it until it is life threatening! I have been through this before when I was a teenager, I really don’t want to go there again, but I have no fucking choice, because he won’t help me! That means, if the worse comes to the worse again, I won’t be able to physically care for myself bathing wise for nearly three years again nor bend down! I will also be 100% deaf!

Anyway, I am going to close this rant up, because people are home now.

Happy reading everyone… if it was that kind of experience, which I doubt. 

P.S sorry for being an Eeyore today!

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Filed under About Me

Oily world

We’ve made plastic everywhere

In our food and clothes and without a care

Fishes dying on our mess

Cancer growing in our chests

Plastic and oil equals horrid future toils

How I wish we didn’t spoil this world

Greed and ease are our sin

Look at the mess we are in

I have cried those bitter tears

But am I alone in that my dears?

Roll your sleeves up and start a trend

Vow to make amends

Linen, felt, wool and cotton for clothes

Keep away from acrylic it’s rotten and society doesn’t seem to know

Don’t choke the world with your ease and greed

Listen to how I plead

Please

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Filed under poetry

Sunday word count 3

This week’s grand total of writing towards my novels is…

2500 words to be exact!

You what?  I normally write that amount in a day!  True, true, but not this week, this week has been a hard week all round for the family.  So therefore I inevitably got to go to…

THE WALL OF SHAME!

dreaded wall of shame

Says some random booming monstrous voice from goodness knows where!

“Yes and I feel so ashamed”.  Said the author of this blog with a huffy laugh and without any hint of conviction in her words;

I didn’t get anywhere near as good as I did in the first week of doing this, let alone my minimum of 10,000 words as you can clearly see. 

Here are the words spread out throughout the week so you can see how much or how little I wrote on any one day;

4th of August – 784 words, quite bad really.

5th August – 0 words – you what?  Call yourself a writer? But the books over there look so pretty, so inviting!

6th August – 811 words – better, but not great, in fact quite awful actually, but not as awful as Sunday’s count.

7th August – 0 words – what again?  What act procrastination doth thou blame this on?  The shiny books?

8th August – 196 words – Oh you are really going to get writer’s cramp with that amount aren’t you?  Rolls eyes*

9th August – 0 words – can you have zero words?  Evidently you can, there is no words to describe how awful a writing (if you can call it that) day like this is!

10th August – 709 words – Yes, good, but I won’t praise myself too much here because this week was utterly disgusting as far as being a writer goes!

The overview is that this is a shockingly terrible week and whoever thinks they are a writer, writing like this ought to completely revalue if they are really a writer or not?

Well I would say to the over viewer (which is myself, so technically I am speaking – no arguing with myself here) is this; I am a writer, however school holidays make dedication to work difficult when I choose to write in the living room, not shutting myself off from the entire world.  Family is important to me, contrary to what certain cretins might say about that!  Not to mention that this past week I have set myself a challenge to read ten enormous books by the 23rd August, so therefore I am reading much more than I normally do and it has also been a bad week for depression; a very bad week in fact for depression.

I have a lot of worries about people that I love too.  Paul has been having difficulties this week as he has injured his arm, I found out recently that my cousin is in hospital for heart problems and he is the only cousin I can trust to emotionally support me in my time of need, the only person in my family other than my immediate household in which I trust has good and non-judgemental intentions towards me.  Also my aunt has been battling cancer for two years now and as much as people think I don’t batter an eyelid, I try not to dramatise anything about others and pretty much keep my thoughts and feeling to myself regarding their problems.  But I am finding that difficult lately and people really don’t know how much I do care about them, because I never turn their problems into my own personal dramas like most people tend to.  Often this makes me come across as aloof and uncaring, but I actually care very deeply about people who are related to me or within my social circle, more than they know, I am just not very good at showing support or love for them and I am sorry for that.  You see in the past I have been accused of being too loving or caring to the point of weirdness and then not enough and so I feel I can’t ever get the balance right, so recently, I guess I don’t even try anymore.  Sorry.  Also I have learned that someone in my family has made a decision to move far away from supportive relatives and isolate themselves and I know that they don’t socialise outside of the family at all and they are very vulnerable due to their disabilities and they are elderly and this is literally freaking me out, as I think to myself, oh my god, what have you done, you impulsive thing you, don’t you learn?  They’ve placed themselves so far out of reach for a lot of caring relatives, that if they need anyone, it will be incredibly difficult to get to them as most of the caring relatives who would help them don’t have their own transport and are on the poverty line and I have heard from the grapevine that they are not happy with their choice after all and there is nothing they can do now, the move has took a lot out of them.

Along with this, Henry has had some problems too and now we are receiving help from a certain charity, I won’t mention what the charity is and what Henry’s problems are because Paul would rather me keep that to myself, but things aren’t going well for us currently and that in itself is contributing to my depressive return; and with all of this too, I have far too many hospital appointments coming up and too many tests that need doing.

Personally I am struggling a lot with my disabilities to even write or read regularly, hence these stupid goals I am forcing onto myself – I am trying to make my life somewhat productive at least.  I might have a neurological problem other than the suspected MS, we don’t really know yet; the doctors are all on guess work right now.  All I know is I am scared of whatever it is getting worse, because lately reading and writing is becoming affected.  I am getting my words mixed up a lot and I don’t even notice it when I reread it half the time.  It could just be depression, who knows?  But I am scared.

When I get bouts of depression I tend to meditate too much to try and forget what got me there in the first place. 

Last week I watched a lot of YouTube videos, this week I haven’t even done that.  But I really should, I should force myself to watch things like the Motivational Archive when I get like this, it sometimes helps.

Well anyway, thank you for reading – you’ve all been an absolute gem to keep on reading.  I hope you all have a lovely day and have lots of fun and come back again soon.

Good luck with your own writing adventures and why don’t you send me a snippet for me to read?  I don’t read many blogs, I really ought to, and there are some amazing people out there.

Hopefully next week will be a better week?

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Filed under About my work

Feather Boy

About ten years ago I watched a lovely fantasy series called “Feather Boy” on the television and I was taken by it completely enough to finally read the book; a book I was lucky to find at a charity shop a few weeks ago; such a beautiful tale about a little boy who is bullied and is then asked by his school to do a project at the local care home, where he had to befriend one of the elder residents.
He gets chosen by a lady called Edith Sorrel; this took the boy (called Robert) by surprise as he is the boy that never gets chosen for anything. Little did Robert know at the time that the reason behind Mrs Sorrel’s request for them to work together on the project was because Robert resembled her long dead son, David!
The story starts off like a mysterious ghost story; there is a mild horror element to it for the age range it’s aimed at (9 to 13yrs) and some very mild swearing. However, the gist of the story was that Mrs Sorrel wanted Robert to visit an old house she knew of thirty years ago; a house that is utterly derelict and has a bad history that gives the local children the heebie jeebies. The true story however was less adventurous and in Robert’s mind, disappointing.
The story teaches a lesson, a lesson that it’s easy to make something out of nothing; easy to misunderstand people and have an overactive imagination. The story is written around an old story about a prince who wouldn’t speak and a great firebird. This story is all about rebirth on many levels, it’s quite a spiritual book, very touching and for the first time in my life I have actually cried at an ending I knew would happen.
So, if you love tales about rebirth, revenge, growing up, courage and phoenixes, this book is very much for you.

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Filed under Reviews