When you’ve been bedbound sick for a while you learn coping mechanisms, to keep you going; especially when you start to believe you are failing as a mum because you can’t do the things a normal housewife could and should be doing.
You learn to release responsibilities to your husband so that you can heal, so there are less hospital trips due to you collapsing over exhaustion as you try to pretend there is nothing wrong with you!
You learn that there are things you can still do as a bedbound parent, but it doesn’t feel the same. As a bedbound parent you learn to make the most of a small space, you learn that you don’t have to need a desktop PC and you can use a laptop in bed with an adjustable table.
You start to think that you are a burden, but you can’t help it. I became this badly sick when Henry was 3yrs old – Henry hasn’t really known a healthy mum, he is twelve now and my health is stabilising slowly.
You start to believe that your rocky relationship with your son who is worried sick about you, will improve as you get better – but that’s a fallacy!
Since Henry was five years old, he learned that the best way to have time with me and play is by sitting with me drawing, reading or playing Roblox games every moment he is out of school.
I was wrong not to set tight boundaries about that, because in all honesty, I never believed I would get better – in fact I thought I was going to die before Henry becomes a teenager!
But now I am getting better, I am trying to make a life for myself – I have lost nine years of freedom from my mum since becoming sick and I want to make it up to myself.
I really thought my immediate family would be pleased I am getting better, but far from it, they resent it. Paul feels less needed and is dropping things at such a rapid pace nowadays that it is leaving me feeling like he is sabotaging my healing process because he is afraid that my health may mean he’ll lose me. Because he knows I am unhappy with the state of the house and unhappy with the morose behaviour the people of this house has!
Henry doesn’t understand that I need to drop the games because twenty minutes of fun always ends up with six hours of lost time.
I am trying to hone my skills as a writer, keep this blog alive, learn how to use social media, networking with other creative people, trying to learn how to set up a YouTube channel and how to get into screenwriting professionally and learning Italian because I want to get back to my Italian roots. I am trying to do this by my own set schedule and goal and time is running out!
Henry’s behaviour has become sour since I seem to be getting better and in the heat of the moment he has screamed that he wished I would get sicker again, just so he’d have someone to play with all the time again!
There is no emotional support from Paul regarding this – as Henry storms off because I won’t play for longer, Paul runs after him telling him he knows how he feels and how mum needs to do this and that, but also how I really should spend more than just half an hour a day with him and he knows its not fair.
Proverbially slapping me in the face in the process!
Paul is tired of updating my friends when I am too busy, sick or absorbed in free courses – he has made his stance very clear to me. I ask him not to be rude to them, because sometimes he can be a bit too terse with people; he isn’t known for tact.
I am in this on my own.
It’s my fault I am getting better and chose to actually pull us out of poverty because I can’t hack just making do anymore, so I have to do it all myself now!
It’s abundantly clear and it’s a lonely place to be.
I have resided myself to the fact that perhaps this family doesn’t want me unless I am in bed all day playing games to keep the boy happy and out of Paul’s hair. We’ve had this discussion and it’s clear, I might be moving away from them soon – we don’t know when – but it’s something that’s coming.
The prospect of complete independence is stomach churning.
I’ve never been alone before.
I’ve always been dependant on others, can I do it?
Am I being fair to them? I can’t help but feel guilty for wanting this!
Thanks for reading!