Tag Archives: autism

Cross of changes

This time last year I would struggle to see how my habits and day to day activities would have changed so much in such a short space of time – I would want to question, what’s happened to me?

I still do… but I think I know what’s happened…

Yes, it all goes back to my instinct that everything is going to change soon and I mean everything!

For me on a personal level, on all levels of personal life – not the world, this isn’t some kind of big major worldwide prophecy; no… it’s very personal to me.

I think this energy has spurred me on to fight for life a bit.

Though I do have setbacks, I am not as depressed as I used to be and I am not so absorbed in unhealthy things and trying to zone out as much as I was.  As I said, I do have setbacks; there are days where I wonder if I should bother to fight – but then this energy shows up and acts like some kind of motivational coach with me.

Don’t dare give up on the idea of “me” kind of energy!

Somebody is coming into my life soon, I can feel it – and I think they have a strong spiritual connection to me whoever they might be.  They don’t want me giving up on them, because by not focusing on changes in my life and by not fighting for my life, I would have given up on them!

Now this can all be in my head – I may very well be suffering from imaginary friend syndrome or something along those lines… but is it so bad for me, if it makes me get up in the morning, change my eating habits, exercise a little and make outlandish plans for myself and make me fierce about any adversary? 

If it’s a spirit tricking me, then are they really malevolent for doing so?

Except for the fact that this idealistic person not coming into my life after all and heart-breaking me a year down the line… the rest of it is pretty good, no?

So, what’s changed?

Whether for good or bad, I am not reading more than a couple of pages a day on average now.

I find it hard to sit around for longer than an hour without doing some small thing.

I am singing a lot and starting to dance a bit.

I am not playing games online for longer than an hour a day anymore.

I am talking to strangers more – OK, they are online, but I never used to bother so much until recently.

I am forcing myself to eat a high protein and Vitamin C diet.

I am trying to get 20 minutes of exercise every two days at minimum.

I am fighting to spend time and be more active in my son Henry’s life more, instead of giving up without a fight to whatever his dad wants!

I am no longer afraid of telling Paul exactly what I think about him and what’s going on in our situation in regards to the poverty, the house falling apart etc. – I am no longer accepting our life!

I am starting to get back my old high standards for myself and living in general – unfortunately there are too many obstacles but I am trying to smash them down wherever possible!

I haven’t stuck to my goals in regards to my writing, because I am too focused on my transition and because the environment is too chaotic at times.

I also decided that I am going to throw caution to the wind and practise reiki on my son to see if it helps his behaviour and it has!

Henry was diagnosed autistic last week and since I started to treat him exactly how I did my former clients and since doing reiki on him, he is a different person.  Henry and I have come to an agreement that many things we like to do or say together should be kept away from his dad, because his dad gets hot-headed about it all.

Henry likes to learn about culture and religion, particularly the Jewish aspect of our ancestry and he likes to ask questions about other religions such as Christianity and specific biblical figures such as Moses and Jesus.  But if Paul over hears us, the arguments that blow out of control is… I can’t describe it, sorry!

So Henry and I have agreed to be more private about it and talk about it when his dad is downstairs and we’re in his room together or he is in mine.

Henry clings to tradition; it’s his comfort blanket, as it is mine… I can understand that, but Paul can’t!

Henry was so excited about something he learned about Jesus today that he absent-mindedly rushed off to tell his dad – but was met with terse rejection and then Paul started ranting about his mess and stuff and Henry came back in tears to me, hugging me tightly because he doesn’t understand why his dad hates it all so much!

Because Henry was raised to dislike Jesus for being a terrorist etc – yet I put Henry straight and said on the contrary, he was a God fearing man who respected God and was even a rabbi – Henry was shocked that Jesus was Jewish and Henry admitted to me that he was always afraid of Jesus because he thought he was a bad guy.  I said, no – but what is wrong is that he is would turn in his grave if he knew people worshipped him instead of God!

Henry’s eyes literally lit up, he looked so enlightened and it was a lovely change in him, he looked genuinely joyous!

But this and other things we can’t talk about around Paul – professional wrestling, robot wars, and the history of politics and good family memories to a certain extent.

Unfortunately, it’s all the things that Henry loves and shuts himself away doing on his own for hours every night.

Henry is slowly learning there is a vast contrast between me and his dad and Henry asked me a couple of days ago – “why didn’t you even share and say these things to me before” and the answer was simple and true… because your dad wouldn’t like it!

Why am I choosing to go behind Paul’s back now?

Because Henry needs the balance, Henry feels attacked at all sides and when I don’t take any stance at all and just sit there – he looks at me imploring me for help or a response and when I just say… do as your dad says, he looks defeated and broken and that’s hard to stomach long term!  Especially when you feel that what your partner or ex-partner has just done, is wrong!

Henry’s biggest struggle in life is learning that his father will not give him a cultural identity.

Everybody needs some kind of cultural identity, even if they are mixed up like my family – it shows us where we are from and shapes who we are, take that away and you are left to wonder what you are… what do you stand for and all kinds of existential worries!

Something like that is hard on an adult, let alone a child, especially an autistic one that doesn’t even have the security blanket an autistic person needs of a regular schedule day to day.

Henry functions quite normally at school, because it is scheduled.  Since Henry was three years old, around the time I got sick – I have been fighting Paul to get dinner at 6pm sharp.  But dinner in this house can be anywhere between 4pm and 10pm, there is no regular meal time table here and its worse in the school holidays.

Since Henry’s diagnosis I have tried to instil in Paul, schedule is everything for an autistic child, please sort it out!

But it goes in one ear out the other.

It drives me crazy no having a schedule too, my stomach can’t stomach meal times that are all over the place!

You try giving a child a roast dinner an hour before he goes to bed!

I struggle sleeping if I eat too much before bed, but a child?

There are days where we have our dinner and we have our crepes for pudding and fifteen minutes later, it’s come on Henry, bed time!

After all these years and all the times I’ve told him – it’s got to change, it never has!

I am grateful I am getting better physically – that I am able to do a little around the house, not much – because my efforts aren’t respected, they are usually undone in a couple of hours by Paul.  But – I am trying to really fight to take back control over the house.

So I can stand on my own two feet and do so well enough that I can move out into my own home!

Paul is becoming rebellious lately because he knows what’s up; I haven’t hidden anything from him.

We had a good friendship which seems to be slowly turning toxic since he found that other lady – which no longer is in his life.  He has tried to make amends with me, tried to bump up a little affection by being more mindful about hugs goodnight and goodbye etc. – but I am rejecting them, because he originally rejected me.

I lived in this house dotingly knowing that I was never happy here, that the house was a disgrace, that the environment was uncomfortable, that he was financially lazy and insecure and that he didn’t have any inclination towards intimacy with me and he certainly never defended me from our neighbour.  I did so dotingly because it was my family and I made do… I don’t want to make do anymore, because I realised that I was more loyal to him than he was to me and that was a big slap in the face!

I can and will tolerate a lot from a person if I know that they love and want me – take that away from me and I won’t stay, I don’t like leaving people, but if I know I am unwanted or easily disposed of, it makes it hard for me to want to try and make do.

I really will tolerate so much from a person, if they remain consistent in letting me know how much they love, respect and want me!  Just those things, that’s all I require oh and don’t humiliate me or insult my intelligence. 

I can tolerate so much; I tolerate rude behaviour, wacky behaviour, selfish behaviour, jealousy, and control, loss of identity, being made to become a tireless servant and to a certain extent a little aggression.  But I can’t tolerate humiliation, being reminded I am disposable, people constantly correcting me, because they believe I am stupid or misinformed. 

As long as you want me, respect me, love me, never humiliate me or treat me like I am stupid – then we’re going to be OK! 

Because my very nature is easy-going, I go with the flow and I blend in with whatever people and environment I am around the most, I am a chameleon – I am happy to be like that.  I thrive on love and acceptance and I give so much back and I don’t complain – I may cheerfully joke around and be sarcastic about my guy’s malchauvinistic ways or ego or mock affronted about their laziness… but its all in jest, really I wouldn’t want things to be different.  I miss those kinds of relationships, which is why I used to be heavily involved in the BDSM lifestyle, I wanted a husband like that.

They love me, they keep me, they get everything – I make sure to give the world to them and more if I could!

Hopefully the guy would be a touchy feely kind of guy, hands on, obsessed slightly – because I like being touched and I touching too!  In normal relationships I am too clingy, I am too passive, I am too needy or odd because I want to do things for them all the time… does that make sense?  I know the only guys who appreciate the kind of woman I am, are those in the lifestyle who aren’t emotionally distant and healing from some obscure emotional wounds from their past.  The kind of dominants who know what they want and will get it out of me by hook or by crook!

I find the most painful thing about being in a relationship like that is being ignored for too long!  Or not being given a sense of duty or daily tasks to fulfil and it can be hard when things aren’t regularly appreciated in some way – when there is no reward, whether just verbal or otherwise.

Yes I know, I sound pathetic – but it’s just me and it’s what makes me tick!

I think that if these spiritual insights aren’t founded to be true within a few months’ time, but I manage to get fit enough to leave Paul… I may go back into the lifestyle, look for a dominant or a daddy figure and do that rather than be alone.

Thing is, most dominants don’t like women over 28yrs old, especially if she wants to have more children like I do!

So I may not get what I want from life soon enough.

But I am trying so hard to manifest this, you have no idea!

Thanks for reading!

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Filed under Defining myself

He knows now

Well, something has occurred here today.

We have had a message today from Henry’s therapist.

I hate to say it, but I was proven right after all of these years that my Henry is actually on the autistic spectrum, I have known it since he was 5yrs old because I used to work with the mentally disabled when I lived in London; Paul however denied that his Henry is one of those.

Well today, Paul got a message from Henry’s therapist, expecting to hear a bipolar diagnosis, when in fact he is actually now officially autistic instead.

I am relieved that after all these years I have been proven right, because over the years I have tried to train Paul that raising an autistic child is very different to raising a regular child and I had tried to show him how to get the best from Henry – but Paul felt that it was unnecessary to change the way he parents with our boy, because Henry is not like that.

I am hoping the behaviours between my boys will change dramatically now that I have been proven right and hopefully Paul will become open to change.

I knew since Henry was 5yrs old because Henry had delayed speech and he has obsessions with lists, piles and grouping things.  He also used to walk on tippy-toes a lot and he has always been flappy, like a little chick.  He does better with a tight schedule and needs to constantly be on the go all of the time, doing something – but it has to be scheduled.  Outside of a tight schedule Henry’s behaviour becomes erratic, unpredictable and disharmonic.

Henry couldn’t speak in small sentences until he was 5yrs old, he would say things like, red ball play, rather than, let’s play with the red ball.

But as I have said in previous posts, my opinions about the boy is easily dismissed.

I am just really hurt right now that Paul dismissed my professional opinion over the opinion of certified practitioners, I know fully well that I can tell Paul how we should be handling Henry right now – but he will probably dismiss me again and again until the professionals tells him the same thing.  What upsets me is Paul usually lacks the grace to apologise when he is wrong.

So there you go, that’s what’s happening today, here in the family – we’ve also found out his school may be going bankrupt too, ho-hum.

Thanks for reading

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Brain hurricane season

It’s what time of year again, a time I call “Brain Hurricane Season”.

What is Brain Hurricane Season?

Brain hurricane season happens approximately twice a year for three weeks and inundates me with new story ideas that I have to plan out; but they come so fast I often have to pause current projects and oftentimes I never get to write all the stories I dream up!

The catalyst for this brain hurricane season was an idea I had for Marvel, thanks to discussion Henry’s friends had about Iron Man.  Can he be saved or not?  Is there hope?  I did some research but not much, only about four hours and I have got side-tracked by other things.  But still, interesting stuff nonetheless.  I need to get watching the last two movies though to fully understand what the kids are on about.

Anyway, the kids moved on and now they’re talking about three or four other Marvel movies, such as hearing rumours that Tom Hardy is giving up Venom, is that true?  I did some research and it doesn’t appear to be!  We’re big Venom fans here in this house, it is a recent movie that made us cry laughing – it was so funny!

So I can blame this little bit of research and playground gossip on being the catalysts for my brain hurricane season.

Turns out some of the new ideas are connecting to a current project; my so-called standalone Christmas novel is now going to be part of a small series, hence why subconsciously I have been holding off it for a while.  I thought it was just Christmas music as to why I couldn’t write it.

For some reason or another, the Christmas novel is going to contain poems and songs and is going to be connected to another story about Candyland and The Easter Bunny.  This idea was brand new on the 16th October 2022 and will be known as my Easter Project.

I think another catalyst to all this is the fact that Henry and I realised we listen to a lot of songs related to candies and chocolates and so we created a playlist last month called “Candy” on our only luxury, Amazon music.  It’s funny what the brain does when you listen to certain types of music!

Henry is excited by my new plans as he loves movies about candies and anything Willy Wonka related, he just loves food that kid!  But put it in a dream world where you are having adventures it gets him all excited, but my Henry is ever the businessman – he said to me “ma, think of the merchandise”, oh yes, he is already acting like my manager!  I just wish he would let me write!

I have also decided that although I love writing horror, I want to downplay the gore and darkness of it to make them into family friendly Halloween style stories, as I have decided to focus mostly on family entertainment more than just doing whatever I feel like doing at the time.

I sat back and thought the other day about what kinds of responses from fans will I enjoy the most?  I thought, I love kids, the kids of the world mean everything to me and I am most likely to respond to a child in full if they ran up to me.

Then I had the idea of, wouldn’t it be cool if I became a bestseller and I had mini merchandise toys in my handbag of the characters I wrote and handed them to a kid who recognised me on an off chance?

Thanks to Henry I am thinking about the other business behind writing, not just the book sales now.  Good to think big I suppose?

So I decided, well then, that settles that, I am writing for family entertainment with kids in mind and my inner child has been singing about it all day!

It means I can be more light-hearted and playful and I love seeing kids laugh! 

My inner child has also been insisting that I revert back to being a nine year old but I told it, OK, on some conditions… we don’t eat like we did when we were nine years old and we don’t laugh hysterically in people’s faces when we are nervous and put on a show for them and then hide behind the sofa because you forgot your senses and realised what a nitwit you made yourself out to be!

My inner child nearly cried, I was too harsh to it, so that’s why I said sorry to it and gave it 4 individual jelly babies to make up – she wants the whole bag, I said no, she cries and I am trying to ignore it – it’s for her own good!

I am not saying I can give up horror for good though, adult horror that is, because it’s a major part of me – but it’s just not as big as it used to be in my heart anymore as I am healing a lot of my darkness lately.

All I really want in life now onwards is light hearted fun, lots of love, good friends and a comfortable home, health would go a long way too – but hey, I am working on it!

There is a children’s picture book series brewing in my head too, for kindergarten age.  It’s about a friendly community of monsters that are friends with each other. 

Another story is about an angel who decides to become interviewed by a chat show.

So many new things coming to me and this is only the start of the Brain Hurricane Season, I still have two weeks to ride out, if this is a normal storm!

I wanted to do NaNoWriMo this year, but there are lots of problems in the family right now where I can’t concentrate on more than a paragraph or two per day; so this year I am just not going to bother.

I really wanted a project completed by now, but it wasn’t meant to be, I guess.

To be perfectly honest, I am losing hope to do anything creative these days as I am simply not allowed the time to myself to do anything.

I can’t rely on working on anything whilst Henry is at school, because at any moment Henry is sent home early in the day and I lose my flow.  He is being sent home as often as twice a week!

Since Henry overheard the school suggesting he has an autism assessment, Henry seems to have taken it upon himself to emotionally play up all the more, like he enjoys the attention he is getting about it.  Henry is really play acting towards the teachers concerns and I have told him, this is a dangerous game for his life long-term, but he thinks it’s all a game!

I suggested to Paul he is only doing this so he can be sent home from school to create his robots all day long and play for twelve hours a day on that darn laptop of his!  When he is sent home from school, we should ban him from TV, laptop and his robots until his proper home time comes.  But then Henry plays the suicide card and Paul relents and lets him have the things!

Then I hear the arguments and screams between the two of them because they are getting in each other’s way, and Paul can’t move around the house because of the mess Henry is causing!  I try my best to help, but every time I open my mouth it just fuels the fire in the both of them! 

I tried to take myself upstairs to my bedroom to write upstairs, but they shout so loudly to one another so often, it’s hard to drown them out unless I put earphones on and I don’t like to do that because of increased ear infections. 

I am dying of embarrassment because neighbours walk cautiously past the house, staring at it because of the hysterical screaming that goes on consistently.  I tell them about it, but Paul and Henry are so self-absorbed, they just don’t really care. 

I hate this kind of environment, it doesn’t help my PTSD at all, in fact I am often drained and can’t eat because of the stress of it all, because a lot of the huge arguments are at dinnertime at the dining table and nobody can eat when this goes on! 

I don’t wear my hearing aid when Henry is home, because to be perfectly honest I don’t need it – that’s how loud things are here as soon as he gets home.  Besides, there are times Henry will randomly screech loudly for the slightest thing and it blooming hurts if I have it in my ear at the time!  I even lost hearing a couple of years back where Henry did a screech so loud my ear bled, found out I had a perforation over it!  Henry was two feet from me at the time! 

This is what I am living with.  It’s not excuses to not working, you have to be here to experience it for yourself, because I am telling you, it’s constant!

I do most of my blog posts when they are all in bed at night; this means my sleeping pattern is badly out of sync for a healthy and social lifestyle.  My sleeping hours are anything between 3am and 1pm depends on the day!  Mostly its 4am to 10am, not enough I know, but what else can I do?

I rarely watch TV as nobody respects the fact I want to watch something, reading is getting less and less for the same reason – practising art is almost non-existent, my meditations are slowly going out of the window… it’s tough to have a decent life here on any level!  Even when I am asleep, from 7am until I wake up, someone checks in on me every 45 minutes waking me up, so it’s not even undisturbed sleep.

Lately Henry’s behaviour has been so bad, that I have often forgotten to take my meds because he has been so demanding! 

Anyway, just a heads up about why I can’t finish things.  Never used to be this way! 

Happy reading! 

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Filed under About my work

Beauty, dance, and gratefulness

A handful of friends have sent me DMs recently about my deadline.  I have to agree to take their advice and not push for it, because in the past two weeks in particular life here has been hard on me and I have found it difficult to focus on reading anything, let alone writing anything.

Henry is has recently had an emergency assessment to test for autism because his behaviour is worsening at school, at the moment they decline to say much about their findings because they feel they need to do another one or two assessments on him before they are sure.

Along with this, as you all are probably aware of, Paul and I are separating; which is a surprise really, because around 2015 we more or less decided to stick with each other, despite our relationship only meaning to be temporary.

We don’t know when we will decide to live apart as I have discussed recently, but it is on the cards.

Along with this I am trying my hardest to get into shape and lose weight, so I have more confidence in myself when I start a new relationship.

I really wanted to debut a book by summer, which is why I wanted to approach an agent on the 21st October, however, I have too much going on right now to do it and along with it all, the idea of YouTube may also be a failing start for January too; because my future is very uncertain right now.

I am also very confused by people behaviours online recently.  Since alerting my readers of my separation with Paul, I have been getting a lot of attention in DMs.  I suppose it’s not so confusing as I have more or less announced my availability, but what is confusing is the dominance some people are portraying in their emails to me from the off-set.  Like whom do they think they are?

It started with the email from a well-known author to Paul, I won’t mention names, but he is pretty big as far as authors go.  According to Paul this author had asked him outright whether or not we genuinely are in an open relationship and if it is OK for him to approach me for a relationship someday?  Paul said of course.

Though this author has not approached me in any other way other than being a sort of friendly online acquaintance, I felt it was cheeky to do that and especially behind my back!

He has a blue tick on twitter, so it’s the genuine article, but he is not the only person who has approached this recently with me. 

Unfortunately I feel some pressure by this person to finish my AD project in particular as they believe they’ve cottoned on to my plot with my hints and has got inspired to make something very similar if I am not quick enough; unfortunately, they’ve kind of guessed correctly what my story might be. or so, Paul has told me someone who is associated with this author has told him.

I don’t know whether or not Paul is just rocking the boat telling me these things, because he was initially afraid of losing me, but more recently he has found a new lady himself and doesn’t seem to think that what he told me in the past is anything to worry about, now.

I really don’t like cloak and daggers and underhanded stuff and I am getting rather uncomfortable with it all.

But if what Paul has said is true, then this author will be starting the idea around March apparently, which is why I feel the pressure to write this quickly, because its a series.

For now, all I want to do is focus on is my fitness, trimming down and getting my head together, whilst still trying to write a tiny bit per day towards any current project.  Maybe read a book once a fortnight, the reading has slowed down immensely.

But I am trying to find my true self. 

My true self, since a very young child – kindergarten almost, has always had a massive love for fashion and glamour.  For short bursts throughout my life, I have tried to get into it all big time – but there was always someone getting in my way and stopping me, usually my mother.

My mother is out of my life right now, so I feel free to be as vain and beautiful as I want, in the manner I want.

I loved the book “Matilda” by Roald Dahl as a child and in there is a quote where they say that there are two types of women in the world those that choose looks and those that chose books. 

Most of my life I chose books, purely as a means of escapism.  Had I have had a more stable life I would be more focused on looks and entertainment of other kinds, such as singing or acting.

All I know is that I am a huge daydreamer. 

I can’t help but think of great stories all of the time, often at the drop of a hat – but I have little interest in making them books, I want them to be on the screen somehow.  It has always been my primary goal.

My idea of the best kind of entertainment is visual and audio.  I read a lot, yes, but mostly to learn, I don’t really read for the amusement of it – I am just knowledge hungry, that’s all.

I really don’t think I’d be as much of a gaming or science geek as I am today, had I have been raised primarily by say – my honorary auntie Sheila or my grandmother for example.

I know had I of been raised by my paternal grandmother she’d have made me go into the equestrian gymkhana groups and gymnastics and all sorts of things like that.  She’d have fully supported my sports goals in swimming and judo and would have pushed me into other things to socialise a lot with the better classes as she’d put it; Potentially making me become a singer or an actress along with it, because she often tried to encourage me to go with my aunts to their amateur theatres to be a part of their little comedies, but at the time I was bullied out of it by being fat shamed by my mum.

I really wanted more of the life my grandmother wanted for me, as it reflected what my dad wanted for me too, but mum never supported any of it.

All my life I have envied women in gymnastics in particular.

As an adult my grandmother learned I had a passion for watching dance shows and that I really wanted to learn to dance and she arranged for me to go to Ealing to become taught by a famous dancer called Anton Du Beke.  When my mum found out I was going to go to it, she gave me a nasty ultimatum, go to this school for dance or lose the internet.  At the time I had an Ebay business and I had a lot of online friends, so losing the internet was not an option for me, so she had got her way.

I have always wanted to learn to tango, especially with a life partner, because I have a lot of passion in me and I really would love a relationship like Morticia and Gomez Addams. 

It’s a goal I have still, once fit enough I will go to find a school for the tango.  Or if I become a published author and famous enough I’d practically beg “strictly come dancing” to let me be a celebrity contestant!

But ultimately, my stories should be on the screen and should also be merchandise as a lot of my ideas are not only horror, but mostly for the family entertainment industry.  Horror is lessening these days as I am thinking of more light-hearted fantasy stories.  Sure, project AD is a dystopian, but it has anthropomorphic characters, children and comedy in it, which lightens the mood immensely.

Even if I am only writing a paragraph per day at least it’s getting done.  But for now, I can’t do much more than that because there are a lot of explosive arguments going on about me, mostly between Henry and Paul but lately, Paul is starting to drain me with his noticeable irritations, because he feels as trapped as I do.

I am just in the way.  That is not something I want to feel when I am still quite emotionally vulnerable and could at any moment decide to seek out the medicine box.  I mean, other than Henry and a rabbit, what I have I got to live for?

Paul and Henry have already decided between themselves that Henry will stay with Paul not me, so I won’t even have Henry as an excuse to stay alive soon; Just the rabbit, and he is 5yrs old on his next birthday.  He is also the last birthday present I’ve ever received since we fell into poverty, that’s if I am not including the regular chocolate bars I’ve got between then and now.

Still, shouldn’t be ungrateful.

Happy reading!

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Filed under About Me