Tag Archives: arthritis

What is summer?

I guess I am boring, but summer is my least favourite season of the year, I don’t like it when it’s too hot and too hot for me is anything over 25c/77f I think it’s because warm air is really bad for my asthma and I don’t like sweating outside of my control!

The big positive about summer though is it’s really nice to my arthritis; I have less pain in summer and I am more likely to be active in temperatures of 17c to 24c which is around 62 to 75f.  Paul thinks I was born for Hawaiian or Californian climates, but meh – I don’t think so, too dry?  I love my woodlands and would miss seeing moss and oaks and things like that – but it’s tempting knowing I’d be in less pain!

Paul nearly got us to move to Seattle a few years back as he was nearly offered a job there, but he refused on grounds that Henry wanted to stay at his current school; if Henry had taken the idea of trusting what we wanted, we’d be migrating back to the UK around now, because Paul is of retirement age and Henry would probably of had a slight American accent – he’d have been there from 7yrs old to now 12yrs old.

Summer is nice for park walks and beaches if it’s not too hot, but the best thing for me about the summer is the fact that watermelon and berries are abundant – I can live on watermelon alone during the summer if I could!

Another good thing about summer is ice-play in the bedroom, but I have had boring and wimpy exes that run from those ideas – well all but one ex and funnily enough it was another woman – no men seem to like the idea of ice!

I like the summer rain, warm with scatterings of rainbows and going for walks in it if it’s light.

Gardening has to be done in the very early morning or late at night around half an hour before twilight or it will kill you if it’s over 24c/75f.

People are happier in the summer, which is a bonus, but I hate how crowded places in nature can get during this time of year – I go out in nature to be at one and in solitude with it, but in the summer it’s hard to find a place without other people!

Midsummer used to mean parties for me, as Midsummers night is special here as a solstice, but also a couple of days later is a joint birthday between my dad and my brother and there was always a big family celebration about it!  A huge BBQ and what have you.

I love BBQs.

Another one of my favourite things is going to pick your own farms, especially the strawberry fields! I don’t think summer has happened unless I’ve gone to one of those and I love garden centres and nursery shopping!

I have always wanted to partake in country fairs, but never had the opportunity really to.

But summer is not my favourite season; this is probably why this entry is short! 

I like swimming in warm waters and tend to be even more of a water baby on really hot summer’s days because I think I am half Piscean or something – lol – well I know I am a Pisces ascendant in any case!

I am not the kind of person who sun bathes, I’m a bit of a vampire really, a true mythological mermaid!

Thanks for reading!

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Filed under Defining myself

Corduroys and weight loss

I really wished I had a pair of brown corduroys with some sunflowers embroidered on them as I like the idea of this today.  I feel a little like an autumn cottage pixie I suppose. A nice bohemian top would go nicely with those style of trousers  I miss corduroys and I am nearly able to look good in them again soon.

I found out today that I have surpassed my weight loss goal for the week, I am aiming to lose one or two pounds a week, but I found out this morning I have lost 4llbs and 2 ounces!

I think it has something to do with the new arm exercises I’ve been trying to do every two days, it’s approximately eighteen minutes, I say approximately because I struggle to do thirty solid repetitions on most of the exercises, so I am pausing around every ten reps for about thirty to forty five seconds.  I know it’s not ideal, but the main place where my arthritis is, is within the shoulder.

The facial exercises to tone down my chin and define my jawline also seems to be working wonders, in fact, according to Paul, he feels the exercises have knocked seven years off my looks.

I have also found a suitcase filled with some of my old clothes of when I was a size 18/20, most of them are starting to fit again.  So wow!

Happy reading everybody!

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Filed under Who am I today?

Bathroom Window – Snippet

Bathroom Window

The cobwebs around the bathroom window have gathered dust; even the spider has seen it best to vacate the area as the dust weighs down on the threads breaking it slowly over time.

The little pile of dead beetles, moths and silverfish line the windowsill with little black dots of spider shit.

I suppose I had better clean this place up?  Thought Gladys for the umpteenth time that year; she held the basin, trying to stand independently but faltering as her shoulders gave way to pain. 

Maybe some other time when my arthritis isn’t giving me gyp?  She thought to herself, as she resigned back to her wingback chair in the lounge to watch more dramatic daytime television – who’d have thought my life would be like this?  Thought the former gym instructor; who’d have thought?

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Filed under Brain Drain

Research what your doctor diagnoses you with!

As someone who has had pneumonia once a year for the past 5yrs, I was told when Covid19 came into the world that I should consider never going out as I am on the very vulnerable list especially as I have other health issues on top of it all and Covid19 as we all know is known as a super pneumonia! 

Being used to isolation since childhood, it seemed to me to be a doddle of a thing to accept.  But it is frustrating, because I was just starting to get my life into gear and I am starting to feel that this is some kind of curse my mother has put on me.  I know it sounds ridiculous because the rest of the world has it and surely she can’t have cursed the whole world?  Of course I know that is nonsense, but it still crosses my mind a lot!

How ironic that this has happened just as I am free from her isolating me and shutting me away?

Well anyway, Monday was the first time I went out since the first ever lockdown in the UK, because I have dental issues that need to be seen to and I am due to have an IV treatment for my teeth in February – coincidentally today I have woken up to feel as though my chest is bruised and I have a cough and a cold on top of my usual respiratory problems.

A few days ago I started getting into the habit of making smoothies, particularly green ones, because I wanted to boost my immune system for when I have my tooth seen to in a couple of weeks’ time; when I get a cold and a cough like this after being on a really super rich high vitamin and mineral diet for the last 2 weeks, it makes me wonder why I bothered in the first place?

Surely I would be stronger by now?  But no, I have a cold or something…

Well anyway, desperate I am to find any recipes for immune boosting so I found something called Goot, made it myself, lemons, turmeric, ginger, cinnamon, apple cider vinegar, garlic and honey, going to take 2 spoons 4 times a day to see if I get better any sooner than I would normally – which would normally be around 3 to 5 weeks’ time – a lot of colds and flu turn very chronic for me and last up to 6 weeks on average at the chronic level, something doctors could never understand!

Well anyway, a few years before I met Paul, I remember being diagnosed with pernicious anaemia, but nobody explained to me what that meant so I presumed, much like my mother did, that it just meant really bad anaemia – well Paul after hearing me reminisce this, decided to research it to find out it is an auto-immune problem which can make absorption or development of vitamin B12 very difficult for me, which would explain the neurological problems I seem to be developing!  I have been living with pernicious anaemia for a little over 15yrs and no one told me what it meant or treated me, no wonder I am falling apart!  I have also been diagnosed with and untreated for 17yrs with rheumatic arthritis!

Pernicious anemia can severely damage your nervous system and digestive system over a course of years if untreated, it is an autoimmune disease which can make you severely malnourished of certain B vitamins!

So because I am scared to go out unless absolutely necessary because of Covid19 I am waiting until things die down a bit so I can tell my new doctors here in Rugby, Warwickshire about my health past and how I have never received treatment and see what they got to say about that!

I think perhaps this is what my doctor meant when he phoned me a few months ago about a medical review, because I gave him a list of symptoms in an email and he was concerned and said he is going to look into my files etc. about other things and see if there are links – but I never got back to him!  Perhaps he has seen my medical records and understood I am not being treated right!

My doctor knows that I have suffer from chronic anxieties at the best of times and I am very OCD, so getting me out of the house unless it is an utter emergency during covid is going to be a huge challenge!

Just thought I say this to update you all!

Hope that the UK takes lockdown seriously this time around so I can get my health back into check by keeping to my appointments and investigations!

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recent issues

Having second thoughts about taking up NaNoWriMo, I struggle with 250 words a day these days, let alone trying to squeeze in 50,000 in a month – reason?  Migraines, frequent for months now, also I’ve been told that I am showing mild signs of pneumonia which is a worry.  I’ve been ill for weeks now and I am getting progressively worse, been practically bed-bound though for two days, thankfully I have a new laptop so I can do things when I can semi-think.

My main concern is I am unsure how the job center will react to the fact I haven’t gone to the voluntary placement interview yet, particularly as it was supposed to be for the next day and they saw me happy and healthy, but I woke up really bad and it’s not left me for almost 3 weeks now.  I am worried; I wanted to do the voluntary work too as it focuses on a charity I never heard of before but on a subject close to my heart (mental illness and mental learning difficulties and brain injuries) – hope this won’t turn against me?

I am so used to London benefit offices that I worry about every visit.  Unfortunately my husband is unemployed since the National Wildlife Trust could no longer afford him and made him redundant, this is unfortunate because I’ve always had health problems which have made problems with me keeping a job down (auto-immune problems, operations, and rheumatoid arthritis, vertigo and anemia problems as well as panic attacks), needless to say as soon as he became unemployed we had no choice but to go on benefits and they wouldn’t allow him to go on it and support the family I have to go for the interviews too.  Unfortunately even voluntary placements get funny if you have too much time off (even if you’re known to be sick), so I don’t have much of a life as far as social commitments go.

On the positive note my husband is doing home-based voluntary work for seismologists, if at the end of a 9 month period they feel he knows what he is doing he could get employed by them – hopefully the job center will be considerate about this, meanwhile he is trying hard to find work in other places but being aged 57 he is struggling to find anyone who’ll take him seriously, despite his educational and employment history being, Naval engineer, art tutor, customer services, photographer, and having an ecological degree with engineering.

I think my health problems are one of the main contributors to why I am afraid of being published, I cannot commit to anything because of it and really will publishers sympathize with a sick/disabled writer, even if they seem extremely good at what they’re doing?  I doubt it, but I hope I am proven wrong in time.

 

 

 

 

 

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