Monthly Archives: September 2021

Shingle me this…

My new writing and art area has been put on hold for a couple of weeks due to illness, this time it is not me;

On Wednesday, Paul woke up with a rash on his chest, it was quite small at the time and he thought it had something to do with the new deodorant he started to use the day before, but it wasn’t.  On Friday that same rash spread all around to his spine and even more on his chest but had turned into hundreds of red raw looking blisters!  Turned out he has shingles and now (because I have a suppressed immune system) we have resorted to sleeping in separate rooms for the time being. 

I have heard that people who have had their second covid vaccine may get shingles approximately 16 to 20 weeks later, as a high number has, but the doctor insists this isn’t the case for Paul and that it must be stress because of the worry about my pending neurological diagnosis.  I have to admit, I don’t believe that.

Paul is not taking this well, it is mostly the medicine that is making him exhausted, but I am still worried because of his age, despite how healthy he is for his age I am worried.  Paul is twenty seven years my senior!

I still hope however selfishly this may sound, that we will be able to set up the new desk and art area before the 1st October in time for my daily posts for inktober; but if this doesn’t happen by then, the art will still be done, but may be added to the blog a week or two later.  At least my art table is set up, just not in the new area, that’s all.  My inks and sharpies may be a little dry now as I haven’t done much art with inks or sharpies since Easter, but I hope they’ll be Okay, Paul says that they are water based inks so should be fine with a touch of water.

Having Paul ill like this has made me realise just how much I simply can’t manage without him, I have to admit it is an eye opening time for us all right now!

I am somewhat getting used to typing via laptop however much it does lag and some of the keys do not work on first punch (is that the right word?).  So I am starting to do a little bit of typing on my adjustable table on the sofa downstairs or rather, right now, in bed, because everybody had decided to live upstairs since Paul has become sick. 

I feel sorry for Paul because we do not have a TV aerial for the spare bedroom, even though we have a spare old TV for him, he is missing a lot of his favourite science documentaries and the meds are making him feel too sick to eat, he has lost weight even in this short time.

I am also annoyed at him for not wanting help, he still thinks he can do everything even when he is swooning around on the verge of passing out!

Anyway, we will hope he slows down soon and gives himself a break!  He needs it!

Happy reading, everyone!

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new working areas

Writing has been difficult in the past few weeks, due to the annoying fact that my arms are losing strength when typing and the computer desk has been too high for me to type for longer than 10 minutes at a time, without going numb.

I have become almost unbearable to live with because of my temper in regards to not being able to type or even play many online games as my arms won’t let me. 

Paul has helped massively, he has an adjustable table for me now for my laptop and that has meant I can do more things again.  But, typing on my laptop is laggy and frustrating and I make many mistakes, not to mention the lighting on the screen is very sharp.  So, once again Paul decided to take measurements for me and has moved furniture around the living room and bedroom for me.

The new areas for writing are a corner in the bedroom and living room.  Bedroom because I have insomnia and often want to write at night, but also because I get very tired during the day sometimes and often find myself upstairs.  We are planning to maybe make a change again next year; to make the spare bedroom into an upstairs living room for winter, because downstairs is far too cold! 

The corner of the living room will have an L shaped desk at the end of my art table by the end of the week, because I have become a grumpy living nightmare since I can’t work as much as I want to creatively.

Paul is doing all of this for me, unfortunately it has meant that my rabbit has been moved to live in the hallway now, because we don’t have the room anymore in the lounge. 

I will be learning on skill share soon to set up a YouTube channel and editing videos, so I will become a vlogger as well as a blogger in the near future.  I cannot commit to more than once a fortnight for a video just yet though.

I do intend, once the desk I set up properly, to do NaNoWriMo this year, because there are four books nagging me like mad lately in my head.  I am also doing inktober and I will be posting my art daily all of the month of October, with any luck!

Doctors are taking all of my symptoms as a matter of urgency and I have to admit, I am scared.  Normally, I am told that there is a two year waiting list for neurology in this area, but the doctors are pushing for me to be seen within 16 weeks.

I am told what they suspect might not be good.  So there is a lot of stress in my life right now and a lot of limitations as I am literally struggling to do everything! 

Because I am a determined and stubborn person, this lack of being able to do anything, has made me very snappy and I have been losing my will to think positively or even plan for a future to be honest.  Despite what I have said about my creative plans, I somehow feel I am just setting myself up for failure, simply because I don’t have the energy to be as consistent as I would like.  I am also scared that if I become successful in my ventures in the future, that I won’t be able to keep up with the demands of the work or the demands of my agents.  Because I am rarely able to keep up with the demands of going to the doctor surgery because I can’t wake up, or my mucus production is so strenuous on a day, that no taxi will take me to the surgery on the account of me choking and coughing so much as they think I have covid – when I don’t!

So, this is the update of what’s going on here with me and what I hope to plan to do in the future.  Let’s just hope I can actually get to do these things and let’s hope that the doctor hasn’t any real reason to worry, shall we?

 Also, my mental health has had a huge bashing over this; I am literally bawling my eyes out at the slightest thing and becoming a complete emotional train wreck!

Anyway – happy reading and I hope to write again next week at some point.

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Update on whereabouts

Where have I been again?  You may well ask, originally I couldn’t type for around 3 to 4 weeks because I somehow injured my hand, I still don’t know what happened to it.  Woke up one morning and couldn’t use it, it was so painful and I had to even change my diet to accommodate a spoon fed way of eating. 

I couldn’t use my other hand as a substitute and go down the route of cutting things with forks, because that hand is permanently disabled and doesn’t work well due to being deformed. 

I then caught a very bad head cold that made doing most things difficult and then a chest infection.  During the chest infection something then happened where my shoulder and arm lost its entire strength and I was lopsided for about 2 weeks, as there was a noticeable slack to my shoulder muscle. 

I gave up trying to do anything to the blog after all of this for the last 3 weeks because of the summer holidays and everybody who is a long term reader here knows how difficult I find working with Henry home as there is little support in keeping him out of my hair.  Not to mention, that Paul is also badly injured, so couldn’t take Henry out for walks and hiking like he’d usually would.  He has an Achilles problem we think, it’s hard to tell as he won’t see a doctor about it.

Henry starts High school for the first time on Friday and he is dreading it.

Henry has been having a lot of emotional problems in the past couple of years, quite serious anger and depression issues, but school so far has poo-pooed this as being something caused primarily by Covid isolation, but it was something that was building up around a year or two beforehand.  Since Henry was eight years of age, he has been having suicidal thoughts and that unnerves me because I have never ever known anyone as young as that to be that depressed and is not trustworthy enough when he is angry to be around sharp objects!  There is surprising little support about this primarily because of waiting lists and Covid didn’t help with that.

Until Henry actually attempts to physically harm himself in a manner of which can be officially proven, Henry is not considered an emergency case, even if he does punch himself in the face and chest really hard, because the bruising is not sufficient (whatever that means) he can wait.

Henry’s life, I admit has not been an easy one, it is no wonder he is growing up to become an angry and bitter soul.  He is a member of Warwickshire Young Carers because he has me (a sick mum) and a sort of elderly father.  Though I impose no care routine on Henry, school felt that the young carers could give him emotional support because his mother’s health and future is uncertain.

Along with this, Henry has experienced a lot of death in his father’s family and the majority of family communication from Paul’s side has stopped because certain people have passed away or they have their own illnesses or problems and cannot commit to visiting more than once a year on average.  In Henry’s small life, he has heard of nine family deaths, and four serious family illnesses.  Four of the deaths affected Henry directly because three were his main child carers when I went in and out of hospital.  There is no one we can rely on for that anymore, so basically I have to skip hospital appointments if they coincide with Henry’s holiday times.  A family friend also died of Covid recently.

Along with this we also have a problematic neighbour which makes Henry nervous to go out into the garden anymore, in fact, so do I.

I’d like to move but Henry doesn’t and Paul respects Henry’s wishes on that.

Because I don’t feel safe with this excessively nosy, rude and obnoxious neighbour, Paul and I have planned to get a dog.  We did organise a border collie with a farmer, but the breeding went wrong and they only had 2 pups which survived the birth and we have to wait another two years.  But luck has it that we may end up by Christmas with a bloodhound, because a local man wants to give away a couple of his pups to a good home for free and he said he won’t want them to go before they are 6 months of age.  It is likely to be a female bloodhound and a solid colour, very light brown or as the man calls it, yellow.

In the past I was very skilled at training dogs and was once offered a position as a police dog trainer but my mother made me turn it down, because I have to bring my work home with me and she didn’t want extra dogs in the house.

A bloodhound will be a new experience and I have done a lot of research on the breed to see if I can cope.  Physically maybe not, but if all else fails you can walk a dog with a disability scooter, lol.

But I think… though Paul disagrees and thinks I am way too optimistic…. That I am only as sick as I am because I am not motivated for doing things for myself.   I live for others; I have never lived for myself.  Paul has always endeavoured to take a lot of my responsibilities away from me because he wants to indulge in caring for me and also Henry.  So Paul doesn’t need me and neither does Henry, every time I try to do something for either of them, someone else takes over.  I guess that’s why I am so sick, it’s a form of depression – I don’t feel needed.  I don’t feel I would be missed.  I have absolutely forbidden both Paul and Henry to do anything with the dog if we get one.  Because I think, I need that needed feeling back again and I think a dog is the answer!

I am trying to find new ways to feel needed.

I know I sound like a sad bugger saying all this.

But I need to try to find something that makes me feel that I have some value.

So, I have a webcam and mic now – I am researching skill share and other things about how to set up a YouTube channel and how to create an art and writing business.

I am hoping to start the YouTube channel by January 1st, perhaps sooner; I don’t know how long it will take me to learn all this technological stuff to do it.

I’ll keep you posted.

Thanks for reading!

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